The Joel Nelson Podcast Joel Nelson

On Day Three of the EULAR Congress in Vienna, we have a bumper episode for you as the podcast series becomes a talking point of the conference!
In this episode, you will hear from:
Raquel Vaz, Scientific Project Leader at IFPA
Paul Studenic, Researcher and Rheumatologist at Medical University of Vienna
Rebecca Beesley, Volunteer at Juvenile Arthritis Research (JAR Project)
Souzi Makri, Past Chair of EULAR PARE and Vice President of the Cyprus League for People with Rheumatism
Katy Antonopoulou, PARE Committee Member and President of Sjogren’s Europe
You can find us all week at Booth O22. Join us and share your great work to be part of this special podcast series recorded live and on location in Vienna.
For more information about the Good Care for PsA project: See here.
Follow the HOST:Instagram: https://instagram.com/joelvsarthritis  Facebook: https://www.facebook.com/joelvsarthritis  Twitter/X: https://twitter.com/joelvsarthritis Twitch: https://twitch.tv/joelvsarthritis TikTok: https://www.tiktok.com/@joelvsarthritis
Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX All Links: https://linktr.ee/Joelvsarthritis 
DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.
Music Credit: Buffon – by Gideon Murray

We are putting the patient voice into the EULAR conversation on Day 2 of the Congress as we are joined by Andreas Dam, developer of the RheumaBuddy app, and award-winning patient advocate and Chair-elect of the EULAR PARE Committee, Dr. Simon Stones.
You can find us all week at Booth O22. Join us and share your great work to be part of this special podcast series recorded live and on location in Vienna.
For more information about the Good Care for PsA project: See here.
Follow the HOST:Instagram: https://instagram.com/joelvsarthritis  Facebook: https://www.facebook.com/joelvsarthritis  Twitter/X: https://twitter.com/joelvsarthritis Twitch: https://twitch.tv/joelvsarthritis TikTok: https://www.tiktok.com/@joelvsarthritis
Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX All Links: https://linktr.ee/Joelvsarthritis 
DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.
Music Credit: Buffon – by Gideon Murray

As we record LIVE from EULAR 2024 on IFPA’s booth to raise awareness of psoriatic disease and the Good Care for PsA project, we speak to some brilliant guests as the Congress heats up.
In this episode, you will hear from Ingvar Ingvarsson, Vice President of IFPA, Zoë Clark, Programme Manager at NASS, and Loreto Carmona, Rheumatologist, Epidemiologist, and EULAR Advocacy Chair. We talk about their hopes, plans, and work at Europe’s largest Rheumatology gathering.
You can find us all week at Booth O22. Join us and share your great work to be part of this special podcast series recorded live and on location in Vienna.
For more information about the Good Care for PsA project: See here.
Follow the HOST:Instagram: https://instagram.com/joelvsarthritis  Facebook: https://www.facebook.com/joelvsarthritis  Twitter/X: https://twitter.com/joelvsarthritis Twitch: https://twitch.tv/joelvsarthritis TikTok: https://www.tiktok.com/@joelvsarthritis
Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX All Links: https://linktr.ee/Joelvsarthritis 
DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.
Music Credit: Buffon – by Gideon Murray

Hidradenitis Suppurativa (HS) affects countless individuals, causing painful abscesses and scarring and impacting every aspect of life. Yet, it often remains shrouded in silence and misunderstanding. Join us for a powerful conversation with Barry McGrath, co-founder of HS Ireland, patient advocate, and former scientific clinical researcher, as we shine a light on this chronic condition.
Barry discusses his own experience with HS and the challenges faced by people with the condition. He also provides advice for people who are newly diagnosed with Hidradenitis Suppurativa, including finding a good medical team, joining a patient support group, and advocating for themselves.
If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our awareness work. 3
Follow our GUEST: Website: http://hsireland.ie Instagram: https://www.instagram.com/hs_ireland Twitter: https://twitter.com/hsireland1  LinkedIn: https://www.linkedin.com/company/hs-ireland YouTube: https://www.youtube.com/@HSIreland 
Follow the HOST:Instagram: https://instagram.com/joelvsarthritis  Facebook: https://www.facebook.com/joelvsarthritis  Twitter/X: https://twitter.com/joelvsarthritis Twitch: https://twitch.tv/joelvsarthritis TikTok: https://www.tiktok.com/@joelvsarthritis
Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!
Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX All Links: https://linktr.ee/Joelvsarthritis 
DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.
Music Credit: Buffon – by Gideon Murray

For Lupus Awareness Month in May, we are joined by Melissa Chieza, an occupational therapist and mental health practitioner who has been living with Type 1 Diabetes and Lupus since she was a child.
In the episode, Melissa discusses her experiences living with Lupus and Type 1 Diabetes since she was a child. She talks about the challenges of managing both conditions, including the emotional toll and the importance of self-care. Melissa also offers advice to others who are living with chronic illnesses, such as finding a support system, advocating for yourself, and learning to say no.
If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. 3
Follow our GUEST: Instagram: https://instagram.com/melcee97 Twitter/X: https://twitter.com/@mel_chieza 
Follow the HOST:Instagram: https://instagram.com/joelvsarthritis Facebook: https://www.facebook.com/joelvsarthritis Twitter/X: https://twitter.com/joelvsarthritisTwitch: https://twitch.tv/joelvsarthritisTikTok: https://www.tiktok.com/@joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcXAll Links: https://linktr.ee/JoelvsarthritisWatch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.Music Credit: Buffon – by Gideon Murray

In this brief unscripted update, we bring the exciting news that the Podcast is heading out this summer—and its first stop is the EULAR Congress in Vienna!
Keep an ear out for a special mini-series recorded live at the conference in June and for more announcements about other stops and countries on the tour soon!
If you enjoy this podcast, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. 3
Follow the HOST:Instagram: https://instagram.com/joelvsarthritis Facebook: https://www.facebook.com/joelvsarthritis Twitter/X: https://twitter.com/joelvsarthritisTwitch: https://twitch.tv/joelvsarthritisTikTok: https://www.tiktok.com/@joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcXAll Links: https://linktr.ee/JoelvsarthritisWatch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!DISCLAIMER: Please note that the host of this Podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.