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Parenting Special Needs Magazine now has a Podcast!!



Parenting Special Needs’ Podcast provides practical tips, shares life’s lessons, tackles the challenges and celebrates the joys of one of life’s greatest gift.



Get empowered, educated and inspired with host and Parenting Special Needs Magazine Publisher/Creator, Chantai Snellgrove as she keeps us informed on the latest trends in the special needs community. She will discuss books, ideas and news you want to hear, as well as interview special guests like parents, authors, industry experts, doctors, trendsetters, and all-around successful people that understand what we are all going through, as well as different ways to navigate the, often times, confusing questions, frustration and diagnoses. As a special needs parent, Chantai knows that “Together, we learn from others who have been on this path before us.”

Parenting Special Needs Podcast Parenting Special Needs Magazine

    • Kinder und Familie

Parenting Special Needs Magazine now has a Podcast!!



Parenting Special Needs’ Podcast provides practical tips, shares life’s lessons, tackles the challenges and celebrates the joys of one of life’s greatest gift.



Get empowered, educated and inspired with host and Parenting Special Needs Magazine Publisher/Creator, Chantai Snellgrove as she keeps us informed on the latest trends in the special needs community. She will discuss books, ideas and news you want to hear, as well as interview special guests like parents, authors, industry experts, doctors, trendsetters, and all-around successful people that understand what we are all going through, as well as different ways to navigate the, often times, confusing questions, frustration and diagnoses. As a special needs parent, Chantai knows that “Together, we learn from others who have been on this path before us.”

    Biophilic Design Can Benefit People with Special Needs

    Biophilic Design Can Benefit People with Special Needs

    Episode #35: Biophilic Design: What it is? Why it matters? How it can benefit people with special needs

    [Click to Listen to Podcast]

    Understanding Biophilic design with Architect Merilee Meacock: What it is, Why it Matters, and how it benefits people with special needs. 

    Biophilic Design is used in the building industry to increase occupant connectivity to the natural environment through the use of direct and indirect nature, space, and place conditions; connecting to people, plants, and animals through tactile, visual, and passive experiences to foster relaxation, focus, energy, feeling safe, and inspiration.



    In today’s Purposeful Conversation, we are talking with an architect, Merilee Meacock, a leader in the educational design community. She has assisted large and small organizations to find new building sites, made recommendations for planning new campuses and designed improvements to make existing buildings more functional and dynamic. Merilee will explain how Biophilic Design can benefit people with special needs.



    Here are some excerpts from our conversation with Merilee and why listening to this podcast can help you incorporate positive strategies into your child’s life:

    Part of our work is research around the educational environment, special needs, housing, and autism. My newest research is around anxiety and how the environment can support all of those various aspects. As we do our research, we run across different people in the industry or in other industries where we trade notes on things, and biophilic design actually came through. People see that as a real benefit, not only to the special needs community but to humanity at large.



    There is a human desire to connect to nature, it’s sort of in our DNA and there are cognitive, psychological, and physical benefits to connecting to nature. There’s a move in the design community to reconnect people back to nature.



    It gives people a sense of inner calm and focus that they might need to either learn or to communicate with someone.



    We use a sensory-based design where we design for all the senses: touch, sound, and smell. When you can appeal to all of the senses, those who may be missing one of their senses are able to still experience the architecture through other means. In nature, there are lots of opportunities to experience all of your senses with water being one of the strongest ways to do that. The sound of water trickling, the ocean, waterfalls or even little water features that you can put in your garden all contribute to the experience.



    In this podcast, Merilee shares with us some of the amazing projects she has worked on and how Biophilic Design has been incorporated into buildings, pools, and other outdoor areas. An excellent example is what they did with The Bancroft School’s Mount Laurel, NJ Campus by providing very sensory-rich experiences on the campus, such as:

    • Creating a car-free campus so students did not have to navigate through traffic

    • Hiding fencing behind plants or allowing it to become part of the architecture to create a homey feel

    • Creating a beautiful environment including open vistas and little rolling rivers

    • 32 Min.
    Advocate Tom Petrik is not afraid to stand out in a crowd

    Advocate Tom Petrik is not afraid to stand out in a crowd

    Episode #34: Super Dadvocate Tom Petrik

    [Click to Listen to Podcast]

    In today’s Purposeful Conversation, we are talking with advocate, Tom Petrik. We selected Tom to be our 2019 Dadvocate.

    Who is Tom Petrik?

    Tom is a teacher assistant in special education, a coach for Special Olympics, a recreational coach, Eagle Scout, and an NRA Rifle Instructor. He is currently working at a private school Camelot Therapeutic Day School in Chicago.

    He’s married to his grade-school sweetheart and has four sons. Chris, his third son, who is 25, has an official diagnosis of Fragile X, and ADHD. Tom and his wife believe that he also has autism.



    Why we selected Tom to be our 2019 Dadvocate?:

    We’ve been running our Parenting Special Needs Facebook page since 2009, and while I’ve never had the pleasure of “officially” meeting Tom until this podcast, he has been advocating and sharing his knowledge and posting comments under our “Advice Needed” posts for years.

    In the ten years that we’ve been asking “Advice Needed” questions on our page, I can count a total of (maybe) three men that have ever commented. And I don’t recall if the other two did it consistently, but Tom has done it for years! So, Tom, in my mind, stuck out from the crowd. Curiosity set in, and I wanted to know more about Tom, for instance; why he doesn’t have a problem speaking and advocating right along with a bunch of women. I thought it was time to find out more about him and to say “thank you.”

    Even now as we have started a new support group called Parenting Special Needs Magazine Support Group, Tom has been right there, jumping in once again to share information and ask probing questions to help provide resources and information.

    In this conversation, you’ll hear the following:



    * Why Tom doesn’t have a problem advocating.

    * Why he feels it’s important to advocate and what other dads need to know.

    * What he wishes he knew earlier about raising a child with special needs.

    * He believes we’re at a specific tipping point right now with inclusion.

    * The two words Tom would like everyone in the special needs community to hear.



    The key message: You can do this!

    Actionable advice:

    Find out what programs and supports are available from your state, every state is different.

    Sign up early, many programs or services have long waiting lists.

    Make sure to set future plans up in advance.

     

    Links or articles mentioned in this podcast:

    Parenting Special Needs Magazine Facebook Page

    Parenting Special Needs Magazine – Support Group

    What is Fragile X

    Medicaid Waiver by State

    • 43 Min.
    Encourage traveling for all without limits

    Encourage traveling for all without limits

    Episode #33: Encourage Traveling without Limits

    [Click to Listen to Podcast]

    In today’s Purposeful Conversation, we’re talking with Mom entrepreneur, Julie Jones, from Have Wheel Chair will Travel. Julie talks with us about accessible travel and her new magazine Travel Without Limits.

    Julie Jones: I’m from Australia, which you can probably tell from my accent. I have a son, Brayden, who I also refer to as BJ in my blogs. He’s now 23 years old and lives with cerebral palsy, uses a wheelchair, and needs assistance with all of his day-to-day living. So, he’s entirely dependent when we travel. I write for Have Wheelchair Will Travel, as well as some other publications, including yours. And I love sharing our travel adventures with people. I’ve always expected that, as a family, we would travel and when Brayden was diagnosed with cerebral palsy that became a little trickier. My focus, in the beginning, was very much around therapy. I really delved into this five-days-a-week therapy and was very much like a mouse on a treadmill: It just wasn’t sustainable. I think, like many families, in the beginning, it’s all-consuming. Although you don’t give up on that therapy, you realize that you need to have more of a balance.

    So, travel for us is very much a balance, and it’s been perfect for Brayden and his sibling, Amelia, as a connecting point and for us a family, as well.

    Takeaways from this podcast:



    * Find out what started Julie on this magical accessible journey helping her family and others.

    * Learn about Australia’s first disability-specific travel magazine Travel Without Limits, its mission, and why you should read it.

    * Learn about accessible travel and the changes and improvements taking place, tips that savvy, accessible travelers know, but that less savvy accessible travelers don’t.

    * Hear Julie’s number one tip to encourage families or someone new to disabilities.





    Accessible Travel & Balance

    [0:53] Julie talks about how accessible travel created a balance and a connecting point for her family and a love for sharing their travel adventures with others.

    [2:34] New and exciting things are happening with accessible travel.

    [3:22] Julie shares the reality and the need for more articles on traveling with a disability.

    [6:30] Julie discusses the mission and how the magazine will aid us all when traveling with disabilities.

    [7:10] Julie shares about one of her favorite stories in the new issue about a woman who needs four support workers to travel. Despite the many, many challenges, she continues to travel and enjoy it. Read it here.



    Find out Julie’s most fun, accessible trip to date

    [8:15] The most fun and accessible trip was also magical

    [12:21] Hear about tourism provider changes and exciting things that are happening with travel, events, and inclusion.



    [16:15] Everyday items to pack that savvy accessible travelers know and less savvy travelers don’t (four or five great things to pack are shared).

    [18:57] Julie’s tells her number one tip for parents or someone new to having a disability and traveling adventures.

    Listen to find out where Julie’s next travel adventure is taking her, what will be in the next issue of “Travel Without Limits” and how you can share your travel adventures, tips, and tricks.





    Remember to enjoy the adventure.!!

    Links mentioned in the Podcast:

    Real Moms Share: Julie Jones Rolling on with a Positive Attitude!

    Travel Tips: Making Fun Memories...

    • 26 Min.
    Raising a child with special needs: Want to know what is predictable?

    Raising a child with special needs: Want to know what is predictable?

    Episode #32: Raising a child with special needs: Know what is Predictable?

    [Click to Listen to Podcast]

    Do you want to know what’s “predictable” and “constant”

    about raising a child with special needs?

    What you will learn in this podcast:

    [0:29]  The only thing that is predictable?

    [2:24]  Know this and beware of it EACH YEAR?

    [2:50] As our children progress, expect the following

    [4:05] A few things that DID NOT work for me in my personal life and with my kiddo.

    Do you know what’s “predictable” and “constant” about raising a child with special needs?

    I’m living this lesson right now, in my own life, with my daughter. She’s getting ready to leave school and transition to the “next phase” of her life; which is hopefully a college program and working.

    Our “Plan A” goals, visions, and mapped out path had a few twists and turns…AND….because of changes, our “Plan B” is currently in LIMBO!

    And, just FYI, LIMBO is scary. It knocked me for a loop and it has caused anxiety for my daughter who prefers, likes, AND NEEDS routine. Needless to say, our whole household is anxious.

    I’m sharing this because I know…that I know…that I know change is bound to happen.

    Why? Because “stuff” happens.

    Teams change, teachers change, schools change, principles change, districts change, rules change, and SPOILER ALERT, our children change, yearly!!

    If each year, your family went to your favorite amusement park and rode the same roller coaster, you would know what twists and turns to expect. I like how author, Diane Linder (Beyond Words: Reflections On Our Journey To Inclusion), explains it:

    Each year brings new expectations; each year brings a new ride, complete with twists and turns. While many students progress along a line, a straight line with a known slope, children with special needs do not.

     

     

     

    They ride a wavy curve, and the parents and teachers have to learn to accept this.

    It will be a bumpy ride–the ups and downs determined in part by progress. As our child progresses, expectations change. And, as they change we all must re-adjust.

    Each year brings new teachers, new aids, new team members, and for a child with transition difficulties, this in and of itself is a challenge. Though the challenges change, the types of adjustments are similar.

    We must all find a balance between high expectations and acceptance.

    Finding a balance takes time and effort.

    We can all handle the ride much better if we are able to learn from each other.

     

    But think about the below quote…

     



     

    Links mentioned in the podcast:

    The Delicate Balance between Expectation and Acceptance

    A Path to the Future

     

    • 5 Min.
    Do you suffer from decision fatigue? Here are ways to combat it…

    Do you suffer from decision fatigue? Here are ways to combat it…

     

    Episode #31: Do you suffer from decision fatigue?

    [Click to Listen to Podcast]

    Do you suffer from decision fatigue? Here’s Help

    The other day, a friend and I “jinxed” each other by saying, “I DON’T want to make another decision!!” at the same time.

    Have you ever said that??

    I say it all the time to my husband: I just don’t want to make another decision when he asks, “what’s for dinner, breakfast, or lunch”, or “what do we have to eat, or where do we want to eat?” I just can’t make another decision or even think straight.

    Did you know that’s called decision fatigue? Yes, that’s a real thing.

     

    We Make Thousands of Decisions Every Day

    Researchers at Cornell University estimate we make about 226 decisions each day on food alone.

    And as your level of responsibility increases, so does the multitude of choices you have to make.

    It’s estimated that the average adult makes about 35,000 decisions each day (whether you realize it or not). Each decision, of course, carries certain consequences with it that are both good and bad.

    What you will learn in this podcast:

    • What is decision fatigue exactly?

    • How can you overcome or beat decision fatigue?

    • One of the best strategies successful people use to work around their decision fatigue

    • A few things that worked for me in my personal life and with my kiddo.

    • Recap and best practices for combatting decision fatigue

     

    Simplify the choices you need to make through the day by turning small decisions into routines.

     

    What is decision fatigue exactly?

    [2:17] As a person makes decisions throughout the day, the brain depletes its limited amount of mental stamina, and starts employing one of two shortcuts.



     

    How can you overcome or beat decision fatigue?

    [2:46] Simplify the choices you need to make through the day?

     

    One of the best strategies successful people use to work around their decision fatigue

    [3:34] Listen to what Steve Jobs and Mark Zuckerberg did

    [4:07] President Barack Obama had this to say…

     

    A few things that worked for me in my personal life and with my kiddo.

    [4:45] What works for my morning routine

    [5:37] My earring hack

    [6:57] My make-up hack

    [7:38] Helping Kailee get dressed in the morning

    [8:11] Decision about fitting therapy into our daily routine

    Recap and Best practices for combatting decision fatigue

    [9:07-10:51] Ways to help you decrease decision fatigue

     

    Curious minds and decision fatigue brains what to know?

    QUESTION: Decision Fatigue can anyone help me with these two questions. If not can you recommend a professional, we could ask?

    Can being constantly bombarded by questions or a child that perseverates cause fatigue or decision fatigue brain? If so, any suggestions or quick tips to help?

    Answers by a few Professionals:

    ADRIENE FERN MSE,ESE, CPM

    Director Of Family Services at PALM BEACH SCHOOL FOR AUTISM INC

    I agree there is decision fatigue. A helpful strategy lean on a partner, family member or friend to assist in making decisions. The burden of having to make decisions solely is a major contributing factor to brain/decision fatigue.

    Emma Gierschick

    AFR 100 Women of Influence 2018. Woman of the Year 2019. Children with a disability specialist. White Ribbon Advocate

    Absolutely – it’s exhausting and sooooo much easier to just give in or get frustrated (which doesn’t help anyone)

    I try asking my daughter to ‘show me’ what she’s trying to say or use Pec images to demonstrate what is happening.

    It’s generally worse if she’s feeling anxious so I try to calm and reassure her and give her emergency bush flower essences too.

    Remy Nirschl

    • 11 Min.
    How to set clear goals and plan naturally

    How to set clear goals and plan naturally

    #30: How to set clear goals and plan naturally

    [Click to Listen to Podcast]

     

    As parents of children with special needs, we have to be able to not only set goals and help our children reach them, but we also have to become good at planning.

    Wouldn’t it be great to have a successful, easy to use method (or “recipe” to follow) for planning and to set and achieve clear goals?

    Well, I’ve found a couple of methods (processes) that have helped me and I know they can help YOU.

     

    What you will learn in this podcast:



    * How to set and achieve clear targets

    * Clarify your focus with Realistic Thinking

    * What doing your homework means

    * Important IEP tips to be aware of

    * The process of planning naturally

    * Easy ways to define the next concrete steps



     

    How to set and achieve clear targets

    [2:59] Set and achieve clear targets or goals by thinking realistically and making sure you do your homework. THAT’S IT…sounds simple enough, right?

     



     

    Explanation of thinking realistically as it pertains to success

    [1:52] What happens if you don’t use realistic thinking?

    [2:44] You can be positive and full of hope for your child’s future? But, that alone is not a strategy.

    Make sure you’re doing your homework?

    [3:41] A couple of examples are explained that should be covered when doing your homework.

    [4:14] Example to clarify realistic thinking

    [5:03] Important tips we all should KEEP in mind when planning

    [5:27] Good time to review how your child learns best

     



     

    The process and steps are broken down and defined when using natural planning.

    [6:32] An example of natural planning being used in everyday life

    [8:49 -13:38] The 5-step process broken down and explained.

     

    Links or resources mentioned in the Podcast:

    How Successful People Think by John C. Maxwell

    Getting Things Done by David Allen

    Wrightslaw

     

     



     

     

    This post contains affiliate links, which means Parenting Special Needs LLC, could receive a commission if you purchase using this link. We appreciate your support.

    • 13 Min.

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