Making the Most of Now

Clive Phillips
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  • HEALTH & FITNESS
Making the Most of Now Podcast

The podcast brings together the Multifocal Motor Neuropathy community to discuss this rare neurological condition and related ones. We talk to medical experts, patients and their supporters in the hope of informing and inspiring.

  1. 22 AUG

    Dr Jeff Allen - A deep dive into MMN

    A true deep dive into MMN with Dr Jeff Allen, one of the worlds leading experts in the field of inflammatory neuropathies and head of the GBS|CIDP Foundation International Global Medical Advisory Board. Jeff is lead author of a recently published paper on diagnosing and treating MMN that can be found at https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10819864/.In this conversation we discuss the latest guidelines for diagnosis and treatment of MMN and a range of exciting MMN research develo...

    57 min

  2. 30 JULY

    Edward Gent - Tackling a marathon when you have MMN - why it's a team sport

    Edward Gent joins me to discuss his recent foray into marathon running as part of the Ride for MMN and MMN Awareness Month. Edward had never attempted anything like this before his diagnosis with MMN, so it was a real step into the unknown. A slightly wobbly one at that given how the condition affects him.Founder of Health Haven an app that helps connect people to personal trainers, nutrition advisors and other experts to help them achieve their exercise goals, Edward was well placed to ...

    1h 22m

  3. 14 JULY

    Lynn Rogers - Research Scientist and Triathlete on life with CIDP

    In this episode I chat with Lynn Rogers about her life with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP). Lynn is a research scientist who in 2017 found herself experiencing pain and loss of movement that saw her being admitted to hospital 10 days after her first symptoms with significant loss of lower limb movement. Instead of being on the start line of the Ironman Canada event she had been training for, Lynn found herself starting a long, often tortuous diagnosis and treatm...

    2h 18m

  4. 31 MAY

    Rich Collins - Bringing New Energy to GBS, CIDP and MMN in the UK

    In this episode recorded at the start of GBS|CIDP Awareness Month I chat to Rich Collins CEO at GAIN Charity in the UK. GAIN stands for Guillain-Barré Syndrome & Associated Inflammatory Neuropathies. It is the only charity dedicated to supporting the GBS, CIDP and MMN community in the UK and Republic of Ireland. Rich joined GAIN at the start of the year and has wasted no time getting to know the community. In this conversation we touch on everything from the challenge of trying ...

    1h 17m

  5. 1 MAY

    Nancy Di Salvo - Connector Across Continents

    In this episode of the podcast I chat to Nancy Di Salvo Director of International Affairs at the GBS|CIDP Foundation International. A truly remarkable woman Nancy has has lived through two bouts of Guillain Barre Syndrome (GBS) and with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP). In our chat she discusses with me her experience of these conditions and how she has overcome the challenges they have posed, to become an incredible rare disease advocate and support to others affected...

    1h 18m

  6. 23 APR

    Kate Costello - Nutritionist and Wellness Coach - Keeping to the Basics

    What can those with autoimmune condition do to help manage their condition beyond the treatment prescribed by their doctor? What diet should i be on if i have an autoimmune condition?Common questions that pop up in the MMN community. So I thought it was time to ask an expert. in this episode I chat to Kate Costello about her work as a nutritionist to try to "avoid the complicator" and get the heart of the basics of nutrition. Kate has some simple practical tips we can all try to fol...

    1h 24m

  7. 12 FEB

    Anita Brikman - Liquid Gold - About Plasma

    To coincide with MMN Awareness month my first conversation this year is with Anita Brikman, President and CEO of the Plasma Protein Therapeutics Association (PPTA) A former TV presenter, Anita has dedicated much of her career to educating and empowering people about healthcare matters. Since leaving the bright lights of the TV studio a decade ago she has forged a leadership career in the healthcare sector. In mid 2023 she joined the PPTA, a global trade organisation representing mo...

    1h 5m

  8. 12/12/2023

    James Coxon - Riding to World Records with MMN

    In this episode I chat to James Coxon about his remarkable journey with MMN which has seen him become a world record holding cyclist since he was forced by the condition to take early retirement from his career as a dentist. From the stress and uncertainty of not know what was causing him to loose shoulder and upper arm strength to riding his recumbent trike in World Championships and winning. This is a truly remarkable story of Making the Most of Now.To learn more about James you ...

    1h 16m
See All (18)

About

The podcast brings together the Multifocal Motor Neuropathy community to discuss this rare neurological condition and related ones. We talk to medical experts, patients and their supporters in the hope of informing and inspiring.

Information

  • Creator
    Clive Phillips
  • Years Active
    2023 - 2024
  • Episodes
    18
  • Rating
    Explicit
  • Copyright
    © 2024 Making the Most of Now
  • Show Website
    Making the Most of Now

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