I am a husband and father with multiple sclerosis (MS) and that affects my life and work in many ways. Trained as an artist to imagine the possible, as a disabled person with MS I also experience the hard truth of physical and cognitive limitation. On the What's The Matter With Me? Podcast I share my experiences, challenges and triumphs as a patient with MS. The podcast develops my Disability Consciousness and bridges to his caregivers, doctors, the disabled community, and community-at-large. As the owner of Hoppin Hot Sauce, I experience firsthand the special challenges faces by disabled entrepreneurs.
Interview: Ligia Andrade Zuñiga
In this episode of the What's The Matter With Me? Podcast, we're presenting an interview with newly-elected San Mateo School District Board Member Ligia Andrade Zuñiga, who is a disabled wheelchair user. I interviewed her because I thought it was remarkable for a disabled woman to win an election. It originally aired Monday, December 28th from 6-7PM.on KFJC 89.7FM on the Thoughtline public affairs program. This material was developed to bring under-represented voices onto the air waves at KFJC, in order to "promote and increase diversity at the station."
What Ligia says is very powerful, and it resonated with me, about how disabled people are invisible. My airname on KFJC is Hemroid The Leader. Please do not be alarmed. it is just an alias.
Interviewing Ligia was suggested to me by Alice Wong of the Disability Visibility Project, who we've covered before, and hopefully we'll hear from again.
Interview someone and learn about them
In The Habit
We're nearing the end of four seasons on the podcast. Like I said last time, I'm thinking of changing or stopping it. For now, I'm still in the habit.
I recorded an interview with the activist Ligia Andrade Zuniga that I hope to air on KFJC.
Reflecting on the mental health epidemic that accompanies the coronavirus epidemic, the podcast takes an unexpected turn.
It comes back on track at the end, courtesy of the words of Marc Maron.
Cya next time. As always, get me via the Contact Form. Hasta luego!
Lots of boxes
I'm thinking about changing this.
I started this podcast with a determination to try and understand who I was as a disabled person, to grow my disability consciousness. Now that I am on the cusp of relocation, I wonder, did I accomplish what I came for? Let me know what you think via the Contact form.
This episode quotes from the first episode of What's The Matter With Me? Podcast, "Trying."
Changing My Home Bookstore
I'm going to a new place
Things are changing, from my home bookstore to the restaurants I'll eat at. I feel positive about it, but I'm having anxiety in the face of so much change.
I think what I mean by "home bookstore" is the bookstore where I'll go most often, every week or so.
Have you heard the news?
Updates to a few recent episodes. Recorded in the backyard
Good And Bad
moving to san leandro
After two of my friends message me I realize that with my move to San Leandro, my support group will evolve. Which I manage not to mention in the episode, is totally scary!
I recorded most of the episode in the backyard, mostly off-the-cuff. The audio track features airplanes and windchimes.
STAY TUNED for extended shout-outs.