Challenge Accepted Stephanie Lucas

Stephanie shares about the transition from ending the clinical trial, starting a pandemic and getting a new progressive hearing loss diagnosis. She shares about the transition from feeling that "maybe" things will turn out fine, to knowing you've got an uphill battle to climb; exploring the experience of watching your world shift in a single appointment, and releasing denial. 

The first in a new mini-series where Stephanie interviews each of the different parent guides on the Hands and Voices of Oregon team! This series will explore hearing loss from each of the different angles of our families, and explore the common threads between us. Turi is the cheerleader and one of the original founders of the Guide by your Side program in Oregon. She shares about her experience raising a deaf child - who is now an adult - and the most important factors to success: Inclusion and community. 
Hands and Voices of Oregon: www.handsandvoicesor.org 
H&V National: www.handsandvoices.org
Why'd They Do That: www.whydtheydothatgame.com
Stephanie's Instagram: https://www.instagram.com/stephanielucas.mft/

Stephanie shares about her own emotions during the clinical trial they completed as a part of CMV research. She discusses how her needle phobia impacted the frequent blood draws, and what she learned about herself and the medical community. 

Baby Signing Time Affiliate Link: https://bit.ly/3fmKmg1

Stephanie's Instagram: https://www.instagram.com/stephanielucas.mft/

For a transcript of this podcast please visit https://stephanielucasmft.wordpress.com

Stephanie's email newsletter sign up: https://www.subscribepage.com/f8d8e6

In this episode we talk to Hailey Adkisson about her daughter Juniper who has infantile spasms, a rare and catastrophic form of epilepsy. We discuss the process of making medical decisions, holding onto and losing hope, and carving out a different view of the future for your child. Check out her instagram @growing_juniper
Raising awareness during Epilepsy Awareness Month, she is also hosting a fundraiser for Juniper’s intensive treatments this summer.
Check out the link here:
https://www.bonfire.com/growing-juniper/
More Links:
https://www.epilepsy.com
https://www.epilepsy.com/learn/types-epilepsy-syndromes/infantile-spasms-west-syndrome
https://www.cureepilepsy.org/
https://www.brainrecoveryproject.org/

In this episode Stephanie discusses the process of deciding to enroll Riley in a drug trial for CMV. She explores the emotions related to the cost and the systemic pressures it puts on a family when decisions that could forever alter their child's future are on the line. 

In this episode Stephanie interviews her husband, Grant, about his experience with their daughter's hearing loss diagnosis. They explore together his take on the impact it had on him and their marriage. We discuss the topics of paternal post partum depression, learning to find balance and how to know when things just aren't right. Grant shares about how as a male, he processed his emotions through actions instead of words and learning to be comfortable with reaching out and sharing about his experience.

Stephanie recommends the book FedUP by Gemma Hartley to start discussing the topic of emotional labor between a male/female partnerships.

Stephanie's Instagram: https://www.instagram.com/stephanielucas.mft/

For a transcript of this podcast please visit https://stephanielucasmft.wordpress.com

Stephanie's email newsletter sign up: https://www.subscribepage.com/f8d8e6