27 min

004 Journey Towards Safe and Secure Global Data Access BC Platforms Podcast

    • Life Sciences

Today's podcast will focus on the topic of the journey to a safe and secure global data access. This podcast sheds light on industry challenges and expectations, as well as innovative approaches to collaboration.
The discussion is led by Tõnu Esko, BC Platforms Scientific Advisory Board Chairman, and Vice Director of the Institute of Genomics at the University of Tartu, where he also holds a Professor of Human Genomics position. He is the Head of Estonian Biobank Innovation Center, and focuses on public-private partnerships and innovation transfer. Dr. Esko is also a research scientist at the Broad Institute of Harvard and MIT. He acts as one of the senior leaders for Estonian Personal Medicine Program, and serves as scientific advisor for several companies. 
Our speakers today are Jennifer Cubino and Anni-Ahonen Bishop from BC Platforms. 
Jennifer Cubino is a BC Platforms COO, Customer Success and Data Science. She has many years of experience as a clinical research industry executive, most recently at IQVIA/Quintiles. She has a diverse background, including creating and leading strategic partnerships, clinical trial operations, business strategy, precision medicine, technology development and oncology. Her focus is developing high performing and engaged teams capable of tackling rapidly changing markets. With seven years of experience as a former IRB member at Tufts Medical Center, Jennifer has a deep commitment to patient wellbeing. 
Anni-Ahonen Bishop has held several positions at BC Platforms before being appointed as Pharma and Research Solutions Director. She first worked as a science expert and leader as a project manager and team leader. Miss Anni Bishop has extensive experience in science communications, software design, product development and management of both large customer projects and international cross disciplinary collaboration projects. 
What is covered:
- The main challenges for pharma industry in accessing healthcare data 
- The harmonization of different data silos as a way of approaching and managing the technical challenges 
- How BC Platforms can provide help to different data custodians to interact with the industry and make the data more readily available
- How pharma and biobanks can collaborate in order to preserve data privacy and keep it under the legal and ethical framework
Resources:
- The Institute of Genomics, University of Tartu https://genomics.ut.ee/en
- The Estonian Biobank https://genomics.ut.ee/en 
- OMOP Common Data Model https://www.ohdsi.org/data-standardization/the-common-data-model/
- General Data Protection Regulation https://gdpr-info.eu/
- The Health Insurance Portability and Accountability Act https://www.hhs.gov/hipaa/index.html
Connect with Jennifer Cubino:
- https://www.linkedin.com/in/jennifercubino/
Connect with Anni Ahonen-Bishop:
- https://www.linkedin.com/in/anniahonenbishopp/ 
Connect with Dr. Tõnu Esko: 
- https://www.linkedin.com/in/tõnu-esko-24511524/ 
Connect with BC Platforms: 
- https://www.bcplatforms.com 
- https://www.linkedin.com/company/bc-platforms/ 
- sales@bcplatforms.com 
 

Today's podcast will focus on the topic of the journey to a safe and secure global data access. This podcast sheds light on industry challenges and expectations, as well as innovative approaches to collaboration.
The discussion is led by Tõnu Esko, BC Platforms Scientific Advisory Board Chairman, and Vice Director of the Institute of Genomics at the University of Tartu, where he also holds a Professor of Human Genomics position. He is the Head of Estonian Biobank Innovation Center, and focuses on public-private partnerships and innovation transfer. Dr. Esko is also a research scientist at the Broad Institute of Harvard and MIT. He acts as one of the senior leaders for Estonian Personal Medicine Program, and serves as scientific advisor for several companies. 
Our speakers today are Jennifer Cubino and Anni-Ahonen Bishop from BC Platforms. 
Jennifer Cubino is a BC Platforms COO, Customer Success and Data Science. She has many years of experience as a clinical research industry executive, most recently at IQVIA/Quintiles. She has a diverse background, including creating and leading strategic partnerships, clinical trial operations, business strategy, precision medicine, technology development and oncology. Her focus is developing high performing and engaged teams capable of tackling rapidly changing markets. With seven years of experience as a former IRB member at Tufts Medical Center, Jennifer has a deep commitment to patient wellbeing. 
Anni-Ahonen Bishop has held several positions at BC Platforms before being appointed as Pharma and Research Solutions Director. She first worked as a science expert and leader as a project manager and team leader. Miss Anni Bishop has extensive experience in science communications, software design, product development and management of both large customer projects and international cross disciplinary collaboration projects. 
What is covered:
- The main challenges for pharma industry in accessing healthcare data 
- The harmonization of different data silos as a way of approaching and managing the technical challenges 
- How BC Platforms can provide help to different data custodians to interact with the industry and make the data more readily available
- How pharma and biobanks can collaborate in order to preserve data privacy and keep it under the legal and ethical framework
Resources:
- The Institute of Genomics, University of Tartu https://genomics.ut.ee/en
- The Estonian Biobank https://genomics.ut.ee/en 
- OMOP Common Data Model https://www.ohdsi.org/data-standardization/the-common-data-model/
- General Data Protection Regulation https://gdpr-info.eu/
- The Health Insurance Portability and Accountability Act https://www.hhs.gov/hipaa/index.html
Connect with Jennifer Cubino:
- https://www.linkedin.com/in/jennifercubino/
Connect with Anni Ahonen-Bishop:
- https://www.linkedin.com/in/anniahonenbishopp/ 
Connect with Dr. Tõnu Esko: 
- https://www.linkedin.com/in/tõnu-esko-24511524/ 
Connect with BC Platforms: 
- https://www.bcplatforms.com 
- https://www.linkedin.com/company/bc-platforms/ 
- sales@bcplatforms.com 
 

27 min