178 episodes
The Couple Shift | An ALS Story Maria Aleandra and Julian Rodriguez
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- Society & Culture
We're a husband and wife living with ALS (Amyotrophic Lateral Sclerosis). This is a story of sorrows and joy, grief and magic. A first person account of how to navigate the unthinkable, a space to uncover the truth of what love and courage really look like. We hope that through Jules and his story you feel inspired to live life to the fullest.
Thank you listening, subscribing and sharing.
#thecoupleshift
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Word of the Year: 2024 Edition
The other day a listener asked us... but what's your word of the year this year?? Here's the answer :) Plus a few highlights and updates from the past couple of weeks.
As always, thanks for being here. And to all our new friends, welcome.
ALS won't stop us.
#RightHereRightNow
🎧 Please subscribe, share with friends and leave a review!
⚡️ Instagram: @teamhighoctanejules
🧢 Website: www.teamhighoctane.com
✨ MA's website: https://mariaaleandra.com/
✉️ Email us: TCS@mariaaleandra.com -
The Awkward Pause... communication with ALS
Did you miss us? It's so good to be back! Ever been caught in an awkward moment in conversation, listen in to find out why those awkward moments matter. We also talk about Tobii etiquette and how to speak to someone who uses an eye gaze device or who has trouble communicating.
ALS won't stop us.
#RightHereRightNow
🎧 Please subscribe, share with friends and leave a review!
⚡️ Instagram: @teamhighoctanejules
🧢 Website: www.teamhighoctane.com
📣 MA's DC speech: https://youtu.be/6th6Z5NLlIQ
❤️ GoFundMe: https://gofund.me/77ead571
✨ MA's website: https://mariaaleandra.com/
✉️ Email us: TCS@mariaaleandra.com -
Scary times: Life with ALS
What happens when a simple cold sends you to the ER? This is life with ALS. Join us a we take you through a few recent milestones, both joyful and sorrowful. It feels so good to return to one of our favorite places, in front of the microphone, looking into each other's eyes and sharing all of the feels that accompany this tender and beautiful life we life. We share, we cry, we laugh. The Couple Shift is back, as vulnerable and wonderful as ever. Thank you for being here.
ALS won't stop us.
#RightHereRightNow
🎧 Please subscribe, share with friends and leave a review!
⚡️ Instagram: @teamhighoctanejules
Other ALS podcasts you can support:
I'm dying to tell you: https://imdyingtotellyoupodcast.com/
Beyond MND: https://open.spotify.com/show/7xWlipjW7z9ZD4UA0XWnhL?si=74e7db92b52e47b3
I lost my person: https://open.spotify.com/show/2vQ8NQuLn5GCZ4daJMvXYF?si=d5e610a2d0c74c8f
ALS Caregivers and Beyond: https://rss.com/podcasts/als-caregivers-and-beyond/
🧢 Website: www.teamhighoctane.com
📣 MA's DC speech: https://youtu.be/6th6Z5NLlIQ
❤️ GoFundMe: https://gofund.me/77ead571
✨ MA's website: https://mariaaleandra.com/
✉️ Email us: TCS@mariaaleandra.com -
Grief, Loss and Baseball
We're back for an update, sharing honest thoughts that we hadn't even expressed to each other until this moment. Thanks for staying connected with us.
ALS won't stop us.
🎧 Please subscribe, share with friends and leave a review!
⚡️ Follow us our brand new Instagram account! @teamhighoctanejules
🧢 Get your merch: www.teamhighoctane.com
📣 MA's DC speech: https://youtu.be/6th6Z5NLlIQ
❤️ GoFundMe: https://gofund.me/77ead571
✨ MA's website: https://mariaaleandra.com/
✉️ Email us: TCS@mariaaleandra.com -
Recharged - What does renewal look like with a terminal illness?
Lots has happened - from our new beer to the comedy fundraiser to media interviews and a meeting with Conan O'Brien!! (huge bucket list item for Jules!). We've also been through a tougher than expected period as a couple and have welcomed help at home to support Jules care routine. Here's a quick recap of what's been happened - and what it means to be Recharged.
ALS won't stop us.
🎧 Please subscribe, share with friends and leave a review!
⚡️ Follow us our brand new Instagram account! @teamhighoctanejules
🧢 Get your merch: www.teamhighoctane.com
🎤 Comedy fundraiser: https://tinyurl.com/5ctshaxv
📣 MA's DC speech: https://youtu.be/6th6Z5NLlIQ
❤️ GoFundMe: https://gofund.me/77ead571
✨ MA's website: https://mariaaleandra.com/
✉️ Email us: TCS@mariaaleandra.com -
I'm in the business of living
Jules shares his post PEG (feeding tube) experience, what pisses him off about hospitals and ALS plus our thoughts on the new Michael J. Fox documentary.
ALS won't stop us.
🎧 Please subscribe, share with friends and leave a review!
⚡️ Follow us our brand new Instagram account! @teamhighoctanejules
🧢 Get your merch: www.teamhighoctane.com
🎤 Comedy fundraiser: https://tinyurl.com/5ctshaxv
📣 MA's DC speech: https://youtu.be/6th6Z5NLlIQ
❤️ GoFundMe: https://gofund.me/77ead571
✨ MA's website: https://mariaaleandra.com/
✉️ Email us: TCS@mariaaleandra.com