Episode 105 | Perry Montoya has traveled the world, but now he's on a new journey‪.‬ Sarc Fighter: Living with Sarcoidosis and other rare diseases

Perry Montoya is a travel writer and tour guide.  He's led people through the holy sites around Jerusalem and understands the history of the Bible.  Now he's learning to understand and cope with Sarcoidosis.  Listen in as he details the demands of his disease including multiple organ involvement.  Despite this setback, he remains optimistic and is looking for ways to help others.  He also discusses a rare disorder within the sarcoidosis space known as Heerfordt-Waldenstrom Syndrome. 

 
Show Notes:
More on aTyr Pharma: https://atyrpharma.com/
Participate in the aTyr Clinical Trial: https://bit.ly/3EUOxNq
More on the Efzofitimod study: https://sarcoidosisnews.com/news/benefits-seen-efzofitimod-pulmonary-sarcoidosis-treatment-trial/
More onHeerfordt-Waldenström syndrome:  https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5595615/
FSR awards $100,000 in Grants: https://www.stopsarcoidosis.org/fsr-awards-100000-in-support-of-cardiac-sarcoidosis/
More on ACE test to determine multiple organ involvement of Sarcoidosis: https://sarcoidosisnews.com/news/biomarker-detects-multiple-organ-involvement-sarcoidosis-diagnosis/
No Stupid Questions Podcast about the Zeigarnic Effect: https://freakonomics.com/podcast/do-you-need-closure/
More about the Zeigarnic effect: https://en.wikipedia.org/wiki/Zeigarnik_effect
Help FSR further its mission by becoming an Alliance Volunteer:  www.stopsarcoidosis.org/gsca-leaders/
Become a community outreach leader: https://www.stopsarcoidosis.org/gsca-leaders/
 
MORE FROM JOHN:
Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/
Do you like the official song for the Sarc Fighter podcast?  It's also an FSR fundraiser!
If you would like to donate in honor of Mark Steier and the song, Zombie, Here is a link to his KISS account.  (Kick In to Stop Sarcoidosis)  100-percent of the money goes to the Foundation.  https://stopsarcoidosis.rallybound.org/MarkSteier
The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/
Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR  https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E
My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/
email me  carlinagency@gmail.com