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79 episodes
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I AM MADELINE I AM MADELINE
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- Society & Culture
A performer (actress, singer), leader, mentor, and community volunteer with her hands on a number of projects, Madeline is a joy to know. She loves gardening and The Sound of Music. Her friends describe her as "effervescent."
She's one of more than 600,000 Canadians living with family of diseases twice as common as Multiple Sclerosis that many doctors don't even believe in, despite a strong correlation to viral infections. She and others face painful deterioration without more government supports, with still untold numbers of COVID-19 survivors joining them.
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Tilt Table Fiasco vs Watermelon Underpants
Yes the photo is the watermelon pattern on the big girl underpants I put on.
Gfm link
https://gofund.me/cff39173
Mentioned this episode-Not called the economist but economist written "from longcovid odds to lost IQ points, ongoing threats you don't know about"
https://www.ineteconomics.org/perspectives/blog/from-long-covid-odds-to-lost-iq-points-ongoing-threats-you-dont-know-about
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Send in a voice message: https://podcasters.spotify.com/pod/show/i-am-madeline/message -
Emotional Resiliency Challenges
Emotional resiliency conversation today. I speak about this social media post about the power of speaking up https://www.tumblr.com/niceven1/751685307525660672?source=share and this one about goodness https://www.tumblr.com/prettydumbloverboy/635405123372417024/when-you-sneeze-in-public-strangers-will-say?source=share
For new listeners most recent article https://ricochet.media/en/3991/Canada-MAID-policy-death-by-poverty
Gfm https://gofund.me/cff39173
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Send in a voice message: https://podcasters.spotify.com/pod/show/i-am-madeline/message -
Welcome Amazon music listeners
Here are links to some articles that have been done but have some overview of what's happening to me with obviously journalistic vetting plus I'll link the GoFundMe as that's where I've been doing written updates
RICHOCHET article
https://ricochet.media/en/3991/Canada-MAID-policy-death-by-poverty
Also the journalist did a tweet thread with highlights from the article if that's something that you're interested on sharing Facebook and Instagram won't let you share a news links from Canada https://twitter.com/SpichakSimon/status/1707785829433618864?t=RowAITYe-W17QLiZRGTNMQ&s=19
Citr ep April 6 2023
https://www.citr.ca/radio/all-access-pass/episode/20230406/
Petition
https://www.meaction.net/2022/03/01/you-can-still-help-madeline/
https://dir.gov.bc.ca/gtds.cgi?show=Branch&organizationCode=HLTH&organizationalUnitCode=MH
Dabc Nov 2022
Blog
https://disabilityalliancebc.org/article-im-fighting-to-live-but/
Pdf mag
https://disabilityalliancebc.org/transitionfallwinter22/
Tyee November 14 2022
https://thetyee.ca/News/2022/11/14/Chronically-Ill-Dying-Poverty/
Chatelaine
https://www.chatelaine.com/health/maid-assisted-death-poverty/
Gfm
https://gofund.me/cff39173
Tyee article
https://thetyee.ca/News/2021/07/05/I-Should-Not-Have-To-Beg-For-My-Life/
Canada land podcast
https://www.canadaland.com/madeline-medical-assistance-in-dying-priced-out-of-life/
https://www.canadaland.com/podcast/723-the-high-cost-of-living/
Update
https://www.canadaland.com/podcast/741-updates-on-pretendians-porn-and-being-priced-out-of-life/
Millions missing simulcast
https://twitter.com/millionspod/status/1450838974864445440?t=tiE3pZtRLB9LiRVXIg4u8g&s=19
My Op-ed
https://quoimedia.com/canadians-with-disabilities-like-me-are-choosing-to-die-because-we-dont-have-the-financial-resources-to-live/
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Send in a voice message: https://podcasters.spotify.com/pod/show/i-am-madeline/message -
Infection Red Alert + my eyes are full of blossoms
Quickie update about the very dangerous cellulitis infection that's making my bad situation worse. Doing my best to keep my head up and keep my sense of humor afloat. Not sure if I should post a picture of it cuz it's really yucky so I don't know... Blech. Instead I'll post a picture of the blossoms that are helping me navigate the panic that's curling around the edges of my thoughts. I know exactly how bad infections can get in my broken immune system
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Send in a voice message: https://podcasters.spotify.com/pod/show/i-am-madeline/message -
Mission Possible from Impossible???
Mission impossible theme song in my head as I attempt to navigate all the layers of difficulty and complexity going on with more layers of difficulty and complexity getting added recently. So I thought it would do me good to talk about it and that you guys are probably wondering what's the what so here is an update.
Here's the tweet thread of the ricochet article I mentioned in this episode
https://twitter.com/SpichakSimon/status/1707785829433618864?t=QR1t1np3BwUNEKaARKpWvQ&s=19
Also, doing my best to keep my head in as good a place as I can, and I adore spring so here's some spring especially for people who aren't experiencing it yet
#canpoli #bcpoli #pwme #meaction #MECFS
#myalgicE #disability #HumanRights #genderbias #pwd #healthcare #Canada #britishcolumbia
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Send in a voice message: https://podcasters.spotify.com/pod/show/i-am-madeline/message -
Barbie-Heimer Rant, Disability Edition
The title pretty much sums it up... It's My Disability Barbie-Heimer Rant!
RICHOCHET article
https://ricochet.media/en/3991/Canada-MAID-policy-death-by-poverty
Also the journalist did a tweet thread with highlights from the article if that's something that you're interested on sharing Facebook and Instagram won't let you share a news links from Canada https://twitter.com/SpichakSimon/status/1707785829433618864?t=RowAITYe-W17QLiZRGTNMQ&s=19
Gfm
https://gofund.me/cff39173
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Send in a voice message: https://podcasters.spotify.com/pod/show/i-am-madeline/message