337 episodes

The T1D news show you've been waiting for! Long-time broadcaster, blogger and diabetes mom Stacey Simms interviews prominent diabetes advocates, authors and speakers. Stacey asks hard questions of healthcare companies and tech developers and brings on "everyday' people living with type 1. Great for parents of T1D kids, adults with type 1 and anyone who loves a person with diabetes.

Diabetes Connections with Stacey Simms Type 1 Diabetes Stacey Simms

    • Health & Fitness
    • 3.8 • 4 Ratings

The T1D news show you've been waiting for! Long-time broadcaster, blogger and diabetes mom Stacey Simms interviews prominent diabetes advocates, authors and speakers. Stacey asks hard questions of healthcare companies and tech developers and brings on "everyday' people living with type 1. Great for parents of T1D kids, adults with type 1 and anyone who loves a person with diabetes.

    "He's Why I Have My Vision" - Alecia & Marty Have a Friendship Forged in Diabetes History

    "He's Why I Have My Vision" - Alecia & Marty Have a Friendship Forged in Diabetes History

    Clinical trials are incredibly important for research, but the people who take part don't usually get to meet anyone they've helped.  Marty & Alecia are a very special exception!
    Marty Drilling took part in a clinical trial in 1974 that later helped save Alecia Wesner’s eyesight! We’ll share their remarkable story and talk about how much progress has been made in treating diabetes eye issues.
    Join the Diabetes Connections Facebook Group!
    In Innovations this week.. a new partnership in the closed loop space. We'll talk about Lilly and Ypsomed
    Check out Stacey's new book: The World's Worst Diabetes Mom!
    This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider.
    Sign up for our newsletter here
    -----
    Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners!
    -----
    Get the App and listen to Diabetes Connections wherever you go!
    Click here for iPhone      Click here for Android
    Episode transcription:
    Stacey Simms  0:00
    Diabetes Connections is brought to you by One Drop created for people with diabetes by people who have diabetes by Gvoke HypoPen, the first premixed auto injector for very low blood sugar, and by Dexcom, take control of your diabetes and live life to the fullest with Dexcom.
     
    Announcer  0:22
    This is Diabetes Connections with Stacey Simms.
     
    Stacey Simms  0:27
    This week, taking part in a clinical trial is incredibly important, but it's often thankless you don't expect to meet the people you might help years later. That's why it was remarkable when Alecia met Marty,
     
    Alecia Wesner  0:40
    the people who tested that technology, I'll never meet them and tell them but you know, you're some that I can still see or the reason I have the strap is the reason that I do all of these things. And my doctor had told me that most of them, you know, they either left or didn't or they lost their life
     
    Marty Drilling  0:56
    while she was moved because I was still alive and she'd been told we all died. I was just moved to St. meet somebody who had benefited and certainly appreciated.
     
    Stacey Simms  1:06
    Marty Drilling took part in a clinical trial in 1974 that later helped save Alecia Westerners eyesight will share their story and talk about how much progress has been made in treating diabetes eye issues.
    In innovations this week, a new partnership in the closed loop space could bring a new pump to the US market.
    This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider.
    Welcome to another week of the show. I am so glad to have you along. If you're listening as this airs, it is Thanksgiving week here in the US probably a Thanksgiving, like none other for many of us, but I hope you are staying healthy and safe. Of course on the show, we aim to educate and inspire about type 1 diabetes by sharing stories of connection. My son Benny was diagnosed with type one right before he turned two, and he is almost 16 years old. This episode I think is a really nice one for Thanksgiving. It gave me a lot to be thankful for specifically, the amazing people in the diabetes community who lived through very different times, and went through these clinical trials to make things better for people that they assumed they would never meet. It's also a really great Thanksgiving story, because it's just one of these heartwarming, yeah, I got to admit, Alecia made me cry. Oh, my goodness, it was a wonderful story.
    So I'm really glad you're here, we also have some really good information about not just taking care of your eyes, but complications that can happen, what you can do about them and the progress that has been made. So if this is something that you have been worried about, I just saw a Facebook post from a you

    • 47 min
    On The World Stage With T1D: Cellist Alisa Weilerstein

    On The World Stage With T1D: Cellist Alisa Weilerstein

    Alisa Weilerstein has been living with type 1 diabetes almost as long as she’s been making music. She debuted with the Cleveland Orchestra at age 13, played Carnegie Hall at 15, performed at the White House at 27, and at 29 was awarded the MacArthur Foundation “genius grant” fellowship. She was diagnosed with type 1 diabetes at age 9 and her first concern, of course, was for her fingertips! Alisa speaks to us from Berlin, where she and her family spend half their time.
    In Tell Me Something Good we share stories about girl scouts stepping up and hearing a Dexcom alarm at the Supreme Court.
    This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider.
    Check out Stacey's book: The World's Worst Diabetes Mom!
    Alisa mentions playing in concert while pregnant. See that video here
    Join the Diabetes Connections Facebook Group!
    Sign up for our newsletter here
     
    -----
    Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners!
    -----
    Get the App and listen to Diabetes Connections wherever you go!
    Click here for iPhone      Click here for Android
     
    Episode Transcription (rough transcription, not yet corrected)
     
    Stacey Simms  0:00
    Diabetes Connections is brought to you by One Drop created for people with diabetes by people who have diabetes by Gvoke Hypopen, the first premixed auto injector for very low blood sugar, and by Dexcom take control of your diabetes and live life to the fullest with Dexcom.
     
    Announcer  0:22
    This is Diabetes Connections with Stacey Simms.
     
    Stacey Simms  0:27
    This week, she was playing the cello before she went to kindergarten. In fact, when Alisa Weilerstein was diagnosed with type one at age nine, her first thought was her  fingertips.
     
    Alisa Weilerstein  0:41
    I was already quite curious about the cello and the left hand, of course, it's the hand that goes on the fingerboard. And I remember saying to my doctor, I'm not going to click my fingers on my left hand, they won't be able to play.
     
    Stacey Simms  0:50
    She was certainly able to keep playing - Carnegie Hall at 15, the White House at 27 and at 29 Weilestein was awarded the MacArthur Foundation Genius Grant fellowship. She has quite a story. It was great to talk to her
    and tell me something good girl scouts stepping up. And did you hear the Dexcom at the supreme court hearings?
    This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider.
    Welcome to another week of Diabetes Connections. I'm so glad to have you along. I am your host Stacey Simms, and we aim to educate and inspire by sharing stories of connection. If you are new to the show, I am so glad to have you here a little bit about me. My son was diagnosed with type one right before he turned two he is almost 16 now so it's been a minute, my husband lives with type two. I don't have diabetes, but I have a background in broadcasting and local radio and television. And that is how you get the podcast. I am always amazed when I meet and talk to people with incredible musical talent like our guest this week. To me playing music reading music, expressing yourself through music is like another language. I appreciate music. But I don't have that kind of innate understanding that a true artist has my old radio show co host when I did mornings in Charlotte, North Carolina, where I am now for more than 10 years. And he was also a musician. And they just have this natural ability. I mean a true musician who can write music and read music and play and play by ear. To me it really is something special. And I hope I did this interview with Alisa justice. Because of course we're interested in talking about diabetes, but we talked about music as well.
    I also want to let you k

    • 37 min
    Staying in the Military After A T1D Diagnosis - Jason Cyr's Story

    Staying in the Military After A T1D Diagnosis - Jason Cyr's Story

    Staying in the US Military ater a type 1 diabetes diagnosis isn't easy, but it can be done. Meet Jason Cyr. Diagnosed in 2011 while deployed in Africa, he was able to return to the Army and retire on his own terms a few years later. Jason is an élite cyclist and now a cycling coach.
    Stacey mentions another veteran who was able to stay on active duty after a type 1 diabetes diagnosis. You can listen to our episode with Mark Thompson here.  
    In Tell Me Something Good diabetes month stuff, a big milestone for the college diabetes network and a new podcast about diabetes and mental health.
    This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider.
    Check out Stacey's book: The World's Worst Diabetes Mom!
    Join the Diabetes Connections Facebook Group!
    Sign up for our newsletter here
    -----
    Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners!
    -----
    Get the App and listen to Diabetes Connections wherever you go!
    Click here for iPhone      Click here for Android
    Episode Transcription
     
    Stacey Simms  0:00
    Diabetes Connections is brought to you by One Drop created for people with diabetes by people who have diabetes by Gvoke HypoPen, the first premixed auto injector for very low blood sugar, and by Dexcom take control of your diabetes and live life to the fullest with Dexcom.
     
    Announcer  0:22
    This is Diabetes Connections with Stacey Simms.
     
    Stacey Simms  0:28
    This week, we're celebrating Veterans Day by sharing the story of Jason Cyr. He was diagnosed with type one while serving in the US military deployed in Africa in 2011.
     
    Jason Cyr  0:40
    You know, I was like oh my gosh, this is like my career is on this trajectory to continue to serve whether it's special operations or just back to the regular army. I really enjoy this I started because I really love working with soldiers mentoring soldiers leading soldiers and I was like this is all over now. So now what am I gonna do?
     
    Stacey Simms  0:56
    Cyr was able to stay in the military. He shares that story what he's doing now and why I have a photo of him on a unicycle
    In Tell me something good. Lots of Diabetes Awareness Month stuff and a big milestone for the college diabetes network.
    This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider.
    Welcome to another week of the show. I am so glad to have you along. I am your host, Stacey Simms, and we aim to educate and inspire about type 1 diabetes by sharing stories of connection. My son was diagnosed with type one right before he turned two, we are getting close to his 14 year diversity. My husband lives with type two, I don't have diabetes, but I have a background in broadcasting and local radio and television news. And that is how you get the podcast.
    It is of course diabetes Awareness Month. So there's lots of things you're seeing if you follow me on social media. I'm posting as I do every year, photos, stories of people in the Charlotte, North Carolina area where I live, who live with diabetes. And I also and this is the first time I'm doing this in diabetes Awareness Month, I'm running a contest, I'm running two contests, and they have started as this episode first airs, if you're listening to it, the week of veterans week of 2020, the contests are going so I'm not gonna spend too much time on them here because they are social media only one of them is in the Facebook group Diabetes Connections, the group you have to be in the group to take part and the other one is on my Instagram and Instagram for me is only Stacey Simms, I do not have a separate one for the show. It's enough. So you get pictures of me walking my dog and pictures of my husband cooking and diabetes awareness stuff and podca

    • 38 min
    “The Mission Hasn’t Changed At All” - JDRF CEO Aaron Kowalski on the Impact of COVID-19

    “The Mission Hasn’t Changed At All” - JDRF CEO Aaron Kowalski on the Impact of COVID-19

    JDRF began this year by funding more research projects than ever before, but after COVID changed everything, what does the future hold?  We caught up with CEO Aaron Kowalski to ask what their mission to "cure, prevent & treat" type 1 diabetes look like in a time when fund raising is down and the future is unclear.
    In Tell Me Something Good find out about two contests Stacey is running. One in our FB group (see link below) and the other over on Instagram.
    We're celebrating 1,000,000 downloads!! Get your free Ebook "Diabetes Connections Extras" full of expert advice for managing insulin-dependent diabetes. Terrific for newly diagnosed families or caregivers and friends who want to learn more.
    Get the Ebook here
    This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider.
    Check out Stacey's new book: The World's Worst Diabetes Mom!
    Join the Diabetes Connections Facebook Group!
    Sign up for our newsletter here
    -----
    Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners!
    -----
    Get the App and listen to Diabetes Connections wherever you go!
    Click here for iPhone      Click here for Android
    Episode Transcription (rough transcript - check back for edited version)
    Stacey Simms  0:00
    Diabetes Connections is brought to you by One Drop created for people with diabetes by people who have diabetes by Gvoke Hypo Pen, the first premixed auto injector for very low blood sugar, and by Dexcom, take control of your diabetes and live life to the fullest with Dexcom.
     
    Announcer  0:23
    This is Diabetes Connections with Stacey Simms.
     
    Stacey Simms  0:28
    This week, catching up with JDRF’s CEO to talk about what this year has been like, and what it all means for their mission and research going forward. I also asked if he felt it was a good decision to keep those fundraising emails going during a pandemic.
     
    Aaron Kowalski  0:44
    But the decision to continue to ask people to support us was not to have people feel pressured that they were struggling, but for the folks who could who had the financial capabilities to lean in and help us preserve some of the incredible mission momentum we have.
     
    Stacey Simms  1:00
    Aaron Kowalski is the first CEO of JDRF to actually live with Type One Diabetes. We talked about a wide range of topics.
    Tell me something good a big milestone to share with you and of course, it is diabetes awareness month we've got contests to talk about. this podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider.
    Welcome to another week of the show. I am so glad to have you here we aim to educate and inspire about type 1 diabetes by sharing stories of connection. I'm your host, Stacey Simms, and my son was diagnosed almost 14 years ago, his diversary is in early December. He's a sophomore in high school now he was diagnosed as a toddler, my husband lives with type two diabetes, I do not have diabetes. But I have a background in broadcasting local radio and television news. And that is how you get the podcast.
    It is of course diabetes Awareness Month, every year in the month of November. And we say that this is more for people outside the community, right, it's our chance to educate them about diabetes, because every day is diabetes Awareness Month once you have a type of diabetes, so I'm not going to do too many different things on the show for this month. But I have some efforts going to educate people outside of the usual suspects around here. I'm also going to be running two contests, I'm going to share all that information. After the interview one contest on Instagram one on Facebook, if you follow me, you will see them if you don't more information coming up.
    I also want to let you know that I have r

    • 45 min
    "It's Not Going To Go Away" - The Future of Telemedicine and Diabetes

    "It's Not Going To Go Away" - The Future of Telemedicine and Diabetes

    Have you seen your doctor remotely this year? Turns out that endocrinology is the number one specialty using telemedicine in 2020. We talk to Dr. Peter Alperin from Doximity about their recent study that says about 20% of all medical visits will be conducted via telemedicine this year. We also talk about what this means going forward, how to get the most of a visit when you can't be in person and why the heck doctors' offices still use fax machines!
    Check out Stacey's new book: The World's Worst Diabetes Mom!
    Join the Diabetes Connections Facebook Group!
    Sign up for our newsletter here
    -----
    Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners!
    -----
    Get the App and listen to Diabetes Connections wherever you go!
    Click here for iPhone      Click here for Android
    Episode Transcription
    Stacey Simms  0:00
    Diabetes Connections is brought to you by One Drop created for people with diabetes by people who have diabetes by Gvoke Hypo-pen, the first pre mixed auto injector for very low blood sugar, and by Dexcom take control of your diabetes and live life to the fullest with Dexcom.
     
    Announcer  0:22
    This is Diabetes Connections with Stacey Simms.
     
    Stacey Simms  0:28
    Hi, and welcome to another episode of our show. As this episode goes live, it is Election Day in the United States and we are not going to focus on that here. I am guessing many of you have actually found this episode in the days following its initial release. But whenever you are joining us I think this is a really interesting topic that you know many of us experienced for the first time this year. And that's telehealth.
     
    If you are new to the show. I'm really glad you found us. I'm your host, Stacey Simms, and we aim to educate and inspire about type 1 diabetes. My son Benny was diagnosed when he was a toddler way back in 2006. He is now a sophomore in high school and we had one telehealth visit earlier this year. That was back in March, when everything started, we were able to go into the doctor's office for his summer and fall endocrinology appointments. I talked more about the experience, you know how it went some of the pitfalls that we ran into for that first telehealth appointment. And I do that in the interview.
    Just a heads up this will be a shorter than usual episode is just the interview, we will have a regular episode with our segments with Tell me something good and all of that later this week.
    For this episode, I am talking to the folks from Doximity. This is a professional medical network, sort of like LinkedIn for doctors. They had a study recently that said endocrinology is the specialty that uses telemedicine the most number one at everybody. And there are some interesting reasons why, of course remote or telehealth or whatever want to call it was huge earlier this year, it did peak around April or May. But there are some predictions that about 20% of all medical visits will still be conducted via telemedicine by the close of this year by the end of 2020. And that would represent about $29 billion worth of medical services. It is certainly worth watching.
    So why endocrinology? What does this mean going forward? And why do doctors offices still use fax machines? Those are some of the questions I asked Dr. Pete Alperin, who joined us from Doximity. Dr. Alperin, thank you so much for joining me. I appreciate you spending some time with us today.
    Dr. Peter Alperin
    Thanks. Thank you so much for having me looking forward to it.
    Stacey Simms
    So a lot to unpack here with this study and why endocrinology but let me just back up first and ask you what is Doximity? What do you all do?
     
    Dr. Peter Alperin  2:51
    So Doximity is the largest online network of health professionals in the United States. And I think a great way to think about us is we're like a LinkedIn

    • 23 min
    The Amazing Race: Leo Brown's Unique Diabetes Story

    The Amazing Race: Leo Brown's Unique Diabetes Story

     Meet Leo Brown from this season of The Amazing Race! He lives with diabetes, but his story isn’t a typical one. Leo was born with congenital hyperinsulinism, where the body makes too much insulin, and had almost his entire pancreas removed. Leo will share his unique story and tell us about running the race with his girlfriend, Alana.
    Learn more about congenital hyperinsulinism
    In Tell Me Something Good, babies! Weddings! And a football first for someone who’s been kicking t1d every day for a long time.
    This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider.
    Check out Stacey's new book: The World's Worst Diabetes Mom!
    Join the Diabetes Connections Facebook Group!
    Sign up for our newsletter here
    -----
    Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners!
    -----
    Get the App and listen to Diabetes Connections wherever you go!
    Click here for iPhone      Click here for Android
    Episode Transcription:
    Stacey Simms  0:00
    Diabetes Connections is brought to you by One Drop created for people with diabetes by people who have diabetes by Gvoke Hypo Pen, the first premixed auto injector for very low blood sugar, and by Dexcom take control of your diabetes and live life to the fullest with Dexcom.
     
    Announcer  0:23
    This is Diabetes Connections with Stacey Simms.
     
    Stacey Simms  0:28
    This week, meet Leo Brown, a contestant on this season of The Amazing Race who lives with diabetes. Now on the show, he's racing around the world with his girlfriend, Alana, but they had what could have been their biggest setback before the race even got started.
     
    Leo Brown  0:42
    I think I was actually on the flight to LA at the start line. When I realized I had left all my insulin at home. There was one thing I didn't remember it was in the fridge. It was lined up like little soldiers.
     
    Stacey Simms  0:57
    Oh my gosh. Well, Leo's story is not a typical diabetes one. He was born with congenital hyperinsulinism, where the body makes too much insulin and had almost his entire pancreas removed. He developed diabetes at age 19. And he'll share his unique story and tell us about the race
    In tell me something good babies, weddings, and a football first for someone who's been kicking T one D every day for a long time. This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider.
    Welcome to another week of the show. I love The Amazing Race. I started watching when I was pregnant with my daughter Lea. And that was 19 years ago, I realized that talking to Leo and doing this episode Oh my gosh. Anyway, welcome. We aim to educate and inspire about type 1 diabetes by sharing stories of connection. My son was diagnosed almost 14 years ago, when he was a toddler. I have a background in broadcasting and that is how you get the podcast.
    It has been two years since the last version of The Amazing Race aired and I really have been excited to see it come back. It's just great to see people traveling again. As soon as the first episode of the season aired in mid October, my eagle eyed diabetes friends started posting photos of Leo at one point he's playing the steel drums and you can clearly see the Dexcom on his stomach. I like many of you jumped to the conclusion that he lives with type one. But it turns out his diabetes story as I've already teased a bit is very unique. And we'll talk about that with him in just a moment.
    But first Diabetes Connections is brought to you by One Drop. One Drop is diabetes management for the 21st century. One Drop was designed by people with diabetes. For people with diabetes. One Drops glucose meter looks nothing like a medical device. It's sleek, compact and seamlessly integrates with the award winning O

    • 49 min

Customer Reviews

3.8 out of 5
4 Ratings

4 Ratings

Kristin in Canada ,

Fabulous

Stacey’s podcast is informative, entertaining, and thought provoking. A great half hour (or so!) listen that gives my daughter and I things to talk about, plan, and think about with regards to her type 1. Diabetes Connections is a great tool for families who are working with type 1.

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