Sometimes it seems like you need Ninja skills to defeat Lyme disease. Join acupuncturist Mackay Rippey and his producer, Aurora, as they bring you interviews with interesting and informative people who are using their unique skills and knowledge to deal with Lyme and other tick born diseases.
My name is Mackay Rippey, I'm an acupuncturist in Clinton, NY (http://www.mackayrippey.com)and the host of Lyme Ninja Radio.
I'll never forget the Sunday morning I dragged my sorry-feeling-self to the bathroom and found a perfectly formed bullseye on my left arm. I was lucky, able to return to my acupuncture practice after only few days. It's possible to beat the bacteria that are making you sick. I have and so have many others, but you have to be smarter than Lyme. That's why I created Lyme Ninja Radio.
Join us as we talk to some of the most interesting people in the Lyme community.
#276: Mandy Roome, PhD - Ecological Risk Of Tick - Borne Pathogens
Mandy Roome is a Research Scientist at the Bassett Research Institute in Cooperstown, NY. She has performed extensive field and laboratory research on tick-borne diseases in New York state since 2012, and has recently begun expanding her research throughout the Northeast. Her research explores the ecological risk of Lyme and other tick-borne pathogens, risk factors associated with infection, quality of life changes resulting from acute or chronic Lyme infection, and the occupational hazards of tick-borne disease exposure.
#275: Somer DelSignore, Pediatric NP - Co-infections
Somer is a veteran board certified pediatric nurse practitioner and member of ILADS. She currently practices as a Pediatric Lyme Specialist utilizing ILADS methodologies. Somer trained in some of the top pediatric hospitals in the country including Children's Hospital of Philadelphia, Children's of Dallas, Texas, Penn State Children's in Hershey, PA and most recently Levine Children's Hospital in Charlotte, NC. Her passion is within Integrative pediatrics combining Eastern and Western medicine modalities. She completed a lyme disease internship with Richard Horowitz of Hyde Park, NY. She currently works with Ken Bock, an expert in Autism and PANS/PANDAS. Somer specializes in the treatment of autoimmune, neuroinflammatory conditions, lyme and other tick-borne illnesses and mycotoxicosis/ mold exposures. She has served as a clinical preceptor to numerous PA and NP programs. Somer currently is a medical writer/blogger for bockintegrative.com and has served as an editorial board member for professional publications. Somer also provides clinical consultation to other providers regarding integrative medicine and difficult Lyme or other tick-borne disease cases.
#274: Jenn Gladysz - The Carnivore Diet For Lyme Disease
In 2009 Keith developed pain in his neck after a fall from a horse. He did all the usual things to heal a sore neck but didn't improve. The pain lingered and started to travel to other parts of his body. At this point we suspected there might be something else going on.
After seeing a number of different doctors over two years, Keith was finally tested for Lyme in 2011. He tested positive and was given the usual 3-week course of antibiotics. He improved for a short time but then his symptoms returned.
Several doctors denied he was still sick and told us there was nothing they could do. He continued to decline. Then Keith saw a top infectious disease doctor at Columbia Hospital, who re-tested him. The doctor said the test was negative for Lyme (with one band showing) and that there was no such thing as Chronic Lyme. He suggested that it was all in Keith's head. It was totally demoralizing.
Once we re-grouped from that experience, we continued to look for help. Keith saw an osteopath and the treatment was helpful but he was still in a lot of pain. The osteopath agreed that there are some people with Lyme who, even after the 3-week course of antibiotics, are still sick. Just this validation was huge for us. The osteopath was willing to give Keith 6-weeks of antibiotics to see if it would help but he wouldn't give more, as he was afraid to lose his medical license. The antibiotics seemed to help for awhile but then Keith got worse again.
Then we heard of a Chinese herbalist who was having good luck treating Lyme patients. Keith would drive several hours once a month for his appointments, to get herbs. Keith tried this for several months with some improvement but no lasting results.
Thankfully, before we could try any of those, I stumbled upon two books that helped set us on the right path, Cannabis for Lyme Disease & Related Conditions: Scientific Basis and Anecdotal Evidence for Medicinal Use by Shelley M White and Healing Lyme: Natural Healing of Lyme Borreliosis and the Coinfections Chlamydia and Spotted Fever Rickettsiosis by Stephen Harrod Buhner.
Out of desperation, I designed a protocol for Keith from what I learned.
Within couple weeks of starting this new protocol we knew we were on the right track. He stopped getting worse and actually started to improve. He stopped taking antibiotics and then after a year, stopped taking the herbs. His health had stabilized and but his health had not been restored.
Still in research mode, I read about the Keto diet, which sounded crazy at first but we took a leap of faith and decided to give it a try. Within a few weeks Keith started to feel better.
# 273: It's Lyme Time How A Tick Bite (Nearly) Ruined My Life
Bob Kriva is a chronic Lyme disease patient who shares the story of his experience in his new book "It's Lyme Time: How A Tick Bite (Nearly) Ruined My Life." After noting a lack of first-hand accounts of Lyme disease written by non-celebrities, Bob decided to share his story of the frustrations involved in seeking a diagnosis, being taken seriously by the medical community, and seeking a cure. Bob is a Certified Medical Coder (CPC), as well as a Registered Radiologic Technologist RT(R) who currently resides in Madison, Wisconsin.
#272: Dave Korsunsky, CEO, Heads Up Health - Tracking Your Lyme Journey
David has fifteen years of experience working for industry leading technology firms and most recently served as Director of Technical Alliances at VMware (NYSE: VMW), Inc. where he led strategic partnerships with global EHR companies including EPIC, Cerner, McKesson, GE, Allscripts and many more. David went on to lead sales engineering at CloudPhysics, a big data firm collecting and analyzing over 80B data points per day. As an avid health enthusiast, he recognized an opportunity to build a software solution that makes it easier for anyone to take control over their health through better use of their data.
#271: Dr. Heidi Puc - Lyme Literate Neurofeedback
Dr. Heidi Puc (Poots) is a hematologist and oncologist, recieved fellowship training at Memorial Sloan Kettering Cancer Center, and practiced integrative medicine at The Stram Center. Dr. Heidi Puc has opened her own practice in her hometown outside Syracuse NY, and brings to that practice an integrative approach including nutrition, herbs, and “mind-body” therapies. You can learn more about her at her webiste imofcny.com
This is a fantastic podcast for providing someone with the best information available on Lyme disease. It has helped me so much to navigate through this terrible illness and all that it entails.
I recently stumbled across this podcast while looking for information on Lyme disease. After listening to two of the episodes I am now hooked. As a functional medicine practitioner I have both a professional and personal fascination with Lyme. For this reason the Lyme ninja podcast is essential listening.