21 episodes

Welcome to Simply Unbreakable, a podcast from Chronically Simple, hosted by Kristy Dickinson and Brenda Agnew. Simply Unbreakable is about telling stories, learning from each other, and forging new ways to navigate the healthcare system together.

Simply Unbreakable Chronically Simple

    • Health & Fitness
    • 5.0 • 1 Rating

Welcome to Simply Unbreakable, a podcast from Chronically Simple, hosted by Kristy Dickinson and Brenda Agnew. Simply Unbreakable is about telling stories, learning from each other, and forging new ways to navigate the healthcare system together.

    Be Brave with Kyla Thomson

    Be Brave with Kyla Thomson

    Welcome to another episode of Simply Unbreakable brought to you by Chronically Simple. Your hosts, Kristy Dickinson, and Brenda Agnew are joined by Kyla Thomson, also known as Bella Brave’s mom. Bella lives with a rare disease and inspires others to be brave and find joy in the midst of the hard times. When Kyla started sharing Bella’s medical updates with family and friends on social media, she did not expect the millions of people that would eventually follow their journey. Kyla shares the complicated road to getting Bella’s diagnoses, the impact of organ donation, and how social media has been a way to spread joy and positivity for them.
    Mentioned in this episode:
    Brought to you by Chronically Simple
    Simply Unbreakable
    Download Chronically Simple App
    Bella Brave Merch
    Bella Brave Instagram: @kylact
    Bella Brave TikTok: @kylact
    Ad music by Coma-Media from Pixabay
    Simply Unbreakable is where ideas are shared and conversations about navigating the healthcare system are had. The ideas shared are those of the individuals and should not be interpreted as medical advice.

    • 53 min
    Transitioning in Care: Navigating the Health Care System with Julie Drury

    Transitioning in Care: Navigating the Health Care System with Julie Drury

    Welcome to another episode of Simply Unbreakable brought to you by Chronically Simple. Your hosts, Kristy Dickinson, and Brenda Agnew are joined by Julie Drury who is an advocate for patients, families, and caregivers across the health care system, both nationally and internationally. Julie has a very interesting life experience, having had to navigate the system as a parent and caregiver to her medically complex daughter, Kate, who lived with a rare disease.
    Key Takeaways:
    [2:10] Why is it still a fight and an effort to navigate the healthcare system?
    [6:36] Brenda shares a personal experience she recently had with her son.
    [9:37] Julie talks about her daughter Kate, who died at 8 years old.
    [12:17] Julie calls the Health Care system a “hot mess”.
    [13:07] Julie shares a personal experience transitioning in care.
    [16:25] 98% of the complaints from patients about the health care system are about communication.
    [18:07] Brenda shares her simple point of view: If you can make a conversation or a process easier, why not do it? At the end of the day it makes more sense to have good communication, no one wants to enter an adversarial situation.
    [20:34] Julie talks about how transitioning could work more efficiently.
    [25:13] Julie explores the reasons why the health care system works the way it does.
    [28:10] Julie speaks about the value and expertise of those who have experience in navigating the health care system.
    [32:22] What can we do to help fix this transition aspect?
    [36:09] One way to start changing things is to identify those good leaders and seek assistance from them.
    [37:19] Julie recommends being very strategic.
    [40:30] Kristy talks about transitioning to palliative care.
    [42:25] Julie speaks on the transition from ICU to a floor room.
    Mentioned in this episode:
    Brought to you by Chronically Simple
    Simply Unbreakable
    Download Chronically Simple App
    Simply Unbreakable is where ideas are shared and conversations about navigating the healthcare system are had. The ideas shared are those of the individuals and should not be interpreted as medical advice.
     

    • 44 min
    Setting Boundaries with Family and Friends

    Setting Boundaries with Family and Friends

    Welcome to another episode of Simply Unbreakable brought to you by Chronically Simple. On this episode, Kristy Dickinson and Brenda Agnew talk about setting boundaries with their family and friends as a patient or caregiver. They share some of the moments they’ve had to say no or take a step back, and what has helped them to improve their relationships with family and friends while managing a chronic illness.
     
    Mentioned in this episode:
    Brought to you by Chronically Simple
    Simply Unbreakable
    Download Chronically Simple App
     
    Simply Unbreakable is where ideas are shared and conversations about navigating the healthcare system are had. The ideas shared are those of the individuals and should not be interpreted as medical advice

    • 52 min
    Pancreatic Cancer: Finding Support with Amanda Jodoin

    Pancreatic Cancer: Finding Support with Amanda Jodoin

    Welcome to another episode of Simply Unbreakable brought to you by Chronically Simple. On this episode, Kristy Dickinson and Brenda Agnew are joined by Amanda Jodoin, Chief Operating Officer of Pancreatic Cancer Canada. They talk about the challenges surrounding a pancreatic cancer diagnosis, the support available for those who are diagnosed, and the need for more funding and research to find more effective treatment options.
    Mentioned in this episode:
    Brought to you by Chronically Simple
    Simply Unbreakable
    Download Chronically Simple App
    Simply Unbreakable is where ideas are shared and conversations about navigating the healthcare system are had. The ideas shared are those of the individuals and should not be interpreted as medical advice.

    • 52 min
    The Importance of Inclusion with Dana Geall

    The Importance of Inclusion with Dana Geall

    Welcome to another episode of Simply Unbreakable brought to you by Chronically Simple. On this episode, Kristy Dickinson and Brenda Agnew are joined by Dana Geall, a mother of five, including triplets with Cerebral Palsy. Dana is also the author of See Me For Me, a colourful picture book that introduces children to people with disabilities, and can help parents and teachers start important dialogues about empathy and inclusion.
    Mentioned in this episode:
    Brought to you by Chronically Simple
    Simply Unbreakable
    Download Chronically Simple App
    Simply Unbreakable is where ideas are shared and conversations about navigating the healthcare system are had. The ideas shared are those of the individuals and should not be interpreted as medical advice.

    • 43 min
    The Reality of Living with a Rare Disease

    The Reality of Living with a Rare Disease

    Welcome to another episode of Simply Unbreakable brought to you by Chronically Simple. In honour of Rare Disease Day, Kristy Dickinson and Brenda Agnew reflect on their own experiences navigating the world through the eyes of a patient or caregiver. They touch on some of the milestones and challenges they’ve faced over the years, including the diagnosis process, self-limiting beliefs, and participating in sports and activities.
     
    Mentioned in this episode:
    Brought to you by Chronically Simple
    Simply Unbreakable
    Download Chronically Simple App
     
    Tweetables and quotes:
    “Individually we might be rare, but together we are strong."

    • 53 min

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