2 episodes

Welcome to Simply Unbreakable, a podcast from Chronically Simple, hosted by Kristy Dickinson and Brenda Agnew. Simply Unbreakable is about telling stories, learning from each other, and forging new ways to navigate the healthcare system together.

Simply Unbreakabl‪e‬ Chronically Simple

    • Health & Fitness

Welcome to Simply Unbreakable, a podcast from Chronically Simple, hosted by Kristy Dickinson and Brenda Agnew. Simply Unbreakable is about telling stories, learning from each other, and forging new ways to navigate the healthcare system together.

    Navigating Life While Dealing with Chronic Illness with Kristy Dickinson and Brenda Agnew

    Navigating Life While Dealing with Chronic Illness with Kristy Dickinson and Brenda Agnew

    Welcome to the inaugural episode of Simply Unbreakable brought to you by Chronically Simple. Your hosts, Kristy Dickinson and Brenda Agnew spent years navigating the healthcare system, building relationships and finding peace from connections with others.
    Simply Unbreakable is a podcast dedicated to telling stories, learning from each other and forging new ways to help navigate our complex healthcare system and relationships.
    In Simply Unbreakable you will hear stories from resilient and inspiring people who share the stories that need to be heard.
     
    Key Takeaways:
    [1:30] Kristy Dickinson introduces herself.
    [3:43] Kristy shares the reality of being diagnosed with a rare disease.
    [5:10] Being diagnosed doesn’t mean that doctors know how to treat you.
    [7:29] Kristy talks about how the physical and mental aspects you encounter when you suffer from a rare disease.
    [8:30] Dealing with comorbidities is like having many diseases at once.
    [9:50] Managing the mental health aspect of having a rare disease.
    [13:08] Brenda shares some of the aspects of being a 24/7 caregiver.
    [16:56] Brenda shares the story of her pregnancy with twins.
    [21:50] Brenda talks about the moment she received a diagnosis for her child.
    [26:05] Brenda and Kristy share how their sons became friends at school.
    [27:46] Being the best advocate for your child or yourself is not always easy.
    [30:22] Asking for help is sometimes a struggle for a caregiver.
    [34:28] It shouldn't be this complex to navigate the healthcare system.
    [41:05] Alleviating the path for caretakers.
    [42:30] Brenda shares the details of her son’s rare condition.
    [47:30] Kristy shares how some doctors assume they know about a condition and end up causing more harm than healing.
    [52:30] Finding a community of people who understands your journey is priceless.
     
    Mentioned in this episode:
    Brought to you by Chronically Simple
    Simply Unbreakable
    Download Chronically Simple App
    Simply Unbreakable is where ideas are shared and conversations about navigating the healthcare system are had. The ideas shared are those of the individuals and should not be interpreted as medical advice.
     
    Tweetables and quotes:
    "It takes 5 to 7 years to receive a proper diagnosis for a rare disease, meaning that a patient spends a decade with wrong diagnoses, uncertainty, and frustration."

    “Having a rare disease is losing trust and faith in your body.”
    “When a health care provider says ‘That’s Impossible’, it is the most frustrating for a patient.”
    “Some doctors assume they know about a condition and end up causing more harm than healing.”
    “You don’t have to go through your struggle alone.”

    • 56 min
    Welcome To Welcome To Simply Unbreakable

    Welcome To Welcome To Simply Unbreakable

    Welcome to Simply Unbreakable, a podcast from Chronically Simple, hosted by Kristy Dickinson and Brenda Agnew. Simply Unbreakable is about telling stories, learning from each other, and forging new ways to navigate the healthcare system together.

    • 42 sec

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