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26 épisodes
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Speak life for Trisomy 18 Meredith Willard
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- Famille
Life, love, joy, challenges and medical parenting . Medical Parents Raise Miracles.
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How and when do I get fair care for my trisomy 18 or 13 child
You need a care plan, referrals to fair care and consults to have fair care. Goal is to meet medical needs, stabilize, consult, intervene. From respiratory support to surgeries. How to assert your child’s needs for medical fair care.
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Cooperate with your care and even to transfer we need to cooperate with unfair care to get out!
Cooperate. Know your unit director, your case manager, social worker, charge nurse, social worker, consults, and their team.
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I will not pity you
Having a child with medical complexities and developmental delays is hard, but no need for pity. With this great task, it is the steadfast hope and long suffering that bring peace amongst the challenges.
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How Roses first few months of life impacted me as a mom and wife
Having a medical fragile child requires hours and days to months and for some years, in medical ic setting. There is much to learn, do and fight for as well as tend to the child. This is how I had to step away from some roles and ask for grace as I learned how to bring us all into our new life with the newest member
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Full care and full code is not cruel. Trigger warning.
Intensive medical
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The power of the Holy Spirit as you seek full fair care for Trisomy 18
Power of the Holy Spirit