U2FP CureCast Matthew Rodreick & Jason Stoffer

This week we are talking with Jake Beckstrom, who is U2FP’s Co-Manager of the Cure Advocacy Network along with our Wisconsin advocate Michael Moore. It's a great conversation where we talk about the drama that took place this year with our legislative work in Wisconsin, where we past our $3M SCI Research in the Wisconsin Assembly, but were unable to then pass it in the Senate. It was a nailbiter that came down to the wire, and Jake and Mike had front row seats for the dramatic, if disappointing end. But they are undeterred. And they stopped by to talk to us about how they are still chasin the cheddar in Wisconsin.

Our guest today is Leann Rees. Leanne is a physical therapist with a PhD from Melbourne, Australia. She’s been in the business of rehab and reintegration for 30 years, 20 of which were spent in spinal cord injury. Leanne’s doctoral thesis examined many aspects and consequences of the media portrayal of spinal cord injury and that is what we’re talking today. This is a fascinating discussion about the historical and contemporary portrayals of SCI and how that portrayal influences the SCI Community and general population.

More info: https://u2fp.org/get-educated/curecast/episode-103.html

Today we’re talking with Dennis Bourbeau. Dennis is a highly regarded clinical and academic researcher in the area of bowel/bladder/and sexual function. He works for the Louis Stokes Veterans Administration Hospital and the Metro Health County Hospital in Cleveland, OH. He’s also a faculty member at Case Western Reserve University. Dennis has graciously agreed to come back to chat with us a second time and give us an update on his work, specifically in bladder control devices. We also discuss the critical importance of connecting with and understanding the patient population, the process of getting a device to the market, and much more.

More info: https://u2fp.org/get-educated/curecast/episode-102.html

Today we are talking to V. Reggie Edgerton, a Professor Emeritus of Nuerobiology at UCLA and co-founder of the spinal stimulation company, SpineX. Reggie Edgerton is a giant in the field of neuromodulation. Some have called him the father of spinal stimulation, and his influence can be found in...

More info: https://u2fp.org/get-educated/curecast/episode-101.html

Today we are celebrating our 100th episode of U2FP’s CureCast podcast! No guest would be more appropriate for that celebration than Kate Willette. Kate and Mathew started the podcast 6 years ago and she co-hosted the first 34 episodes. Kate also wrote the book “Don’t Call it a Miracle” which is required reading for anyone with a spinal cord injury. Kate was dragged into the world of advocacy when her husband, Bruce, became a quadriplegic in 2001 and she refused to sit idly by. Being an educator and writer by training, she took the bull by the horns and demystified the science of spinal cord injury, giving our community tools for advocacy.

More info: https://u2fp.org/get-educated/curecast/episode-100.html

Today we are bringing you part 1 of the “Your Voice Here” series. This collection of interviews was recorded during U2FP’s 2023 Science and Advocacy Symposium in Minneapolis. In this episode, you’ll hear from Physical Therapist, PhD and Researcher, Leanne Rees; Neuroscience student Jason Biundo; and Motivational speaker and Onward Marketing Consultant, Scott Chesney. We cover a variety of topics in this episode, among them: Leanne’s research on the media portrayal of SCI; how Jason’s climbing accident focused his interest in neuroscience to spinal cord injury research translation; and Scott’s wisdom from 38 years of lived experience with an SCI. In the way of topic warning, we do briefly discuss suicidal ideation in our third conversation with Scott, if that is something you would prefer to avoid. I hope you enjoy hearing these conversations as much as I enjoyed being a part of them.

More info: https://u2fp.org/get-educated/curecast/episode-99.html