ASPEN Podcasts

ASPEN Podcasts
ASPEN Podcasts

Improving patient care by advancing the science and practice of clinical nutrition and metabolism. For more information and resources, visit nutritioncare.org.

  1. SBS Podcast Series - Episode 8- Quality of Life in Adults with Short Bowel Syndrome

    27. JAN.

    SBS Podcast Series - Episode 8- Quality of Life in Adults with Short Bowel Syndrome

    This ASPEN podcast series is based on the Nutrition in Clinical Practice Supplement titled ‘Unmet Needs in Short Bowel Syndrome’ published in 2023. This episode features Marion Winkler, PhD, RD, and Swapna Kakani, MPH, focusing on quality of life in adult patients with short bowel syndrome. This podcast series aims to educate clinicians on the current state of evidence in the management of SBS, stimulate ideas and questions for future research, and provide information in patient-friendly language to better educate and improve the health of patients with SBS. This podcast is supported by Ironwood. QOL Resources: HPN-PRQOL: hpn_proq_.pdf The Gutsy Perspective: project news | the gutsy perspective Oley Foundation: www.oley.org Short Bowel Syndrome: Where to find support, information, and community Let's Talk SBS Conversation Guide PDF Let's Talk SBS Appointment Checklist PDF QOL References: Fu M, Shi M, Li M, He G. The experience and needs of living with home parenteral nutrition in adult patients: A meta-synthesis of qualitative studies. Journal of Clinical Nursing. 2024;33:4468-4483. Winkler MF, Machan JT, Xue Z, Compher C. Home parenteral nutrition patient-reported outcome questionnaire: sensitive to quality of life differences among chronic and prolonged acute intestinal failure patients. J Parenter Enteral Nutr. 2021;45(7):1475-1483. Business Corporate by Alex Menco | alexmenco.net Music promoted by www.free-stock-music.com Creative Commons Attribution 3.0 Unported License creativecommons.org/licenses/by/3.0/deed.en_US February 2025

    30 Min.
  2. SBS Podcast Series - Episode 7 Patient- and Family-Centered Care Approach to Management of SBS

    7. JAN.

    SBS Podcast Series - Episode 7 Patient- and Family-Centered Care Approach to Management of SBS

    This ASPEN podcast series is based on the Nutrition in Clinical Practice Supplement titled ‘Unmet Needs in Short Bowel Syndrome’ published in 2023. This episode features Vanessa Kumpf, PharmD, Swapna Kakani, MPH, and Marie Neumann, MA, focusing on the patient and family-centered approach in the management of short bowel syndrome. This podcast series aims to educate clinicians on the current state of evidence in the management of SBS, stimulate ideas and questions for future research, and provide information in patient-friendly language to better educate and improve the health of patients with SBS. This podcast is supported by Ironwood. Recommended Patient Resources: National Cancer Institute's Patient-Centered Communication in Cancer Care – Promoting Healing and Reducing Suffering SBS Conversation Guide: Let's Talk SBS Conversation Guide PDF Let's Talk SBS Appointment Checklist PDF G.U.T. Gain Understanding of Transitions – A Guide to Key Milestones in Short Bowel Syndrome: • Key milestones include with the addition of a glossary and several resources: • Basics of Short Bowel Syndrome • Going home (ie Discharge Checklist, Adjusting to Life at Home) • Off to School (ie Communicating with School Staff & Preparing for Emergencies) • Adolescence (ie Addressing Concerns and Emotional Struggles and Fostering • Independence with Healthcare Team) • Transitioning to Adult Healthcare The Gutsy Perspective: community-driven research on life with SBS | the gutsy perspective Patient-Centered Outcomes Research Institute (PCORI): https://www.pcori.org/ The Promise of Patient-Led Research Integration into Clinical Registries and Research Scorecard: Patient Engagement Management (PEM) Suite: https://pemsuite.org Business Corporate by Alex Menco | alexmenco.net Music promoted by www.free-stock-music.com Creative Commons Attribution 3.0 Unported License creativecommons.org/licenses/by/3.0/deed.en_US January 2025

    27 Min.

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Improving patient care by advancing the science and practice of clinical nutrition and metabolism. For more information and resources, visit nutritioncare.org.

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