39 min
Episode #31 | EUPATI Education in Action: Leda's Path to Patient Advocacy Demystifying NMO & MOG
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- Medicina
Episode #31 | EUPATI Education in Action: Leda's Path to Patient Advocacy
In this episode, we delve into the world of patient advocacy with Leda Bresnov. Leda shares her transformative journey following her NMO diagnosis and the pivotal role patient advocacy and education played in reshaping her life. From her initial involvement as the Denmark Ambassador with the Sumaira Foundation to her experiences in EUPATI’s Patient Academy, Leda's dedication to raising awareness and empowering fellow patients is making a significant impact in healthcare. Join us as Leda offers her insights into the power of patient involvement in healthcare decision-making, highlighting the importance of education and advocacy in shaping the future of healthcare.
ABOUT US:
The Demystifying NMO and MOG podcast is a Sumaira Foundation (TSF) project and
was made possible with the generous support of Genentech.
SOCIAL & WEBSITE:
Leda Bresnov
Website - https://www.sumairafoundation.org/ledas-nmo-story-i-want-to-live-while-i-live/
Instagram - https://www.instagram.com/bresnov/
Twitter -https://twitter.com/Bresnov
Demystifying NMO podcast
Instagram - https://www.instagram.com/demystifying_nmomog
Twitter - https://twitter.com/DemystifyingNMO
The Sumaira Foundation
Website - https://www.sumairafoundation.org
Facebook - https://www.facebook.com/TheSumairaFoundation
TIMESTAMPS/TOPICS:
00:01:14 Leda Bresnov
00:04:36 EUPATI Patient Expert Training Programme
00:07:21 Patient Expert Training Programme
00:11:02 Patient Input and Drug Development
00:23:39 Self-Advocacy & Involvement in Healthcare Decision-Making
LINKS:
EUPATI - https://eupati.eu/
European NMOSD Toolkit - https://www.nmosd-in-focus.com/-/media/Themes/Horizon/nmosd-in-focus-com/nmosd-in-focus-com/Documents/European-NMOSD-Patient-Toolkit.pdf
SUPPORT the Podcast
Donate to Illuminate
https://www.sumairafoundation.org/advocacy/donate/
CREDITS:
Producer & Host - Brian Dawson
Music - Denys Kyshchuk from Pixabay
Episode #31 | EUPATI Education in Action: Leda's Path to Patient Advocacy
In this episode, we delve into the world of patient advocacy with Leda Bresnov. Leda shares her transformative journey following her NMO diagnosis and the pivotal role patient advocacy and education played in reshaping her life. From her initial involvement as the Denmark Ambassador with the Sumaira Foundation to her experiences in EUPATI’s Patient Academy, Leda's dedication to raising awareness and empowering fellow patients is making a significant impact in healthcare. Join us as Leda offers her insights into the power of patient involvement in healthcare decision-making, highlighting the importance of education and advocacy in shaping the future of healthcare.
ABOUT US:
The Demystifying NMO and MOG podcast is a Sumaira Foundation (TSF) project and
was made possible with the generous support of Genentech.
SOCIAL & WEBSITE:
Leda Bresnov
Website - https://www.sumairafoundation.org/ledas-nmo-story-i-want-to-live-while-i-live/
Instagram - https://www.instagram.com/bresnov/
Twitter -https://twitter.com/Bresnov
Demystifying NMO podcast
Instagram - https://www.instagram.com/demystifying_nmomog
Twitter - https://twitter.com/DemystifyingNMO
The Sumaira Foundation
Website - https://www.sumairafoundation.org
Facebook - https://www.facebook.com/TheSumairaFoundation
TIMESTAMPS/TOPICS:
00:01:14 Leda Bresnov
00:04:36 EUPATI Patient Expert Training Programme
00:07:21 Patient Expert Training Programme
00:11:02 Patient Input and Drug Development
00:23:39 Self-Advocacy & Involvement in Healthcare Decision-Making
LINKS:
EUPATI - https://eupati.eu/
European NMOSD Toolkit - https://www.nmosd-in-focus.com/-/media/Themes/Horizon/nmosd-in-focus-com/nmosd-in-focus-com/Documents/European-NMOSD-Patient-Toolkit.pdf
SUPPORT the Podcast
Donate to Illuminate
https://www.sumairafoundation.org/advocacy/donate/
CREDITS:
Producer & Host - Brian Dawson
Music - Denys Kyshchuk from Pixabay
39 min