Airing Pain is the online radio programme and podcast from Pain Concern (http://painconcern.org.uk/) .
Each edition we bring together people with chronic pain and top specialists to talk about resources that can help.
You can listen to Airing Pain every Tuesday and Sunday at 8pm via Able Radio (https://www.ableradio.com/radio1.html) , with all episodes available on demand here and on our website (http://painconcern.org.uk/airing-pain/) .
Or subscribe via Apple Podcasts, Spotify or your favourite podcast app to get the latest podcats delivered straight to your mobile or tablet.
Pain Concern is a charity registered in Scotland SC023559.
When Children Have Arthritis
How do you identify illness in young children and coping as a family.
This Airing Pain was recorded at the Scottish Network for Arthritis in Children SNAC’s 2022 Family Weekend at Crieff Hydro, which brings together families recently affected by juvenile idiopathic arthritis and some of the country’s leading paediatric rheumatology experts.
Issues covered in this programme include:
juvenile idiopathic arthritis, autoimmune disease, coping as a family, rheumatology, paediatrics, support networks, identifying illness in young children, movement and exercise
00:00 - introduction to SNAC's family weekend by Sharon Douglas
04:03 - introduction to juvenile idiopathic arthritis by Julie Duncan
07:13 - how does juvenile idiopathic arthritis present?
09:00 - what is SNAC and personal stories from a parent.
12:56 - parent of a child with juvenile idiopathic arthritis shares how they first spotted it.
14:42 - Vanessa Raimondo discusses medication options for juvenile idiopathic arthritis.
18:44 - parents & children share their stories.
21:33 - Vanessa Raimondo discusses medication side effects.
23:57 - Alison Ross discusses coping mechanisms for juvenile idiopathic arthritis & more on medications and treatments.
30:23 - parent of a child with juvenile idiopathic arthritis on her daughter's journey with JIA, medications and diagnosis.
31:15 - coping as a parent of a child with juvenile idiopathic arthritis.
31: 54 - coping with juvenile idiopathic arthritis as a family
34: 29 - parents of a child with juvenile idiopathic arthritis share their family's story.
39:10 - how does juvenile idiopathic arthritis make the children who suffer from it feel?
41: 18 - family from Shetland share their story of having a child with JIA in a remote area.
43:27 - Jo Walsh tells us about SPARN (Scottish Paediatric & Adolescent Rheumatology Network) and how they support families with JIA.
47:00 - how to handle the transition from children's health services to young adult services.
48:06 - Vanessa Raimondo tells us about what we can do (aside from medications) to manage JIA.
49:27 - young person shares their experience of juvenile idiopathic arthritis and still enjoying sports, exercise and success growing older with JIA.
54:20 - Sharon Douglas, chairperson and co-founder of SNAC, conclusion and raising awareness about JIA.
This programme exists due to funding from Trefoil House Organisational Grants, the New Park Educational Trust and WCH Trust for Children.
Parents (and their children) of 23 children between the ages of 5 and 14 who have juvenile idiopathic arthritis.
Sharon Douglas - SNAC (Scottish Network for Arthritis in Children) chairperson & co-founder.
Julie Duncan – General Paediatrician NHS Lothian District General Rheumatology Clinic.
Vanessa Raimondo - Rheumatology Nurse based in Edinburgh.
Alison Ross – Children’s Arthritis Nurse working in Aberdeen.
Jo Walsh – Paediactric Rheumatologist based in Glasgow, working as part of SPARN (Scottish Paediatric and Adolescent Rheumatology Network).
SNAC - Supporting Children & Families with JIA
SPARN - Scottish Paediatric & Adolescent Rheumatology Network
Airing Pain 106 - Pain Education for Doctors, Patients and Parents
Airing Pain 99 - Transition Services for Adolescents with Chronic Pain
Airing Pain 78 - Putting Children's Pain in the Picture
Airing Pain 59 - Pain in the Family: Young Adults 1 of 2
Airing Pain 60 - Pain in the Family: Young Adults 2 of 2
Face Pain, Treatment & Management
In this episode of Airing Pain we cover facial pain in its many forms, what treatments are available and how to cope better with your pain.
Pain Management Programmes & the Health Unlocked Forum
Scotland’s Pain Management Programmes (PMPs) and what support is available after graduating.
This edition of Airing Pain has been funded by a grant from the Health and Social Care Alliance Scotland Self Management Fund administered on behalf of the Scottish Government.
What do you know about Pain Management Programmes (PMPs)? Do you know how they function? About the positive outcomes they have? Do you know if there are any PMPs near you?
In this episode of Airing Pain we learn about PMPs and the communities and support networks that are being formed as a result.
In collaboration with Health Unlocked and Alliance Health and Social Care Scotland, Pain Concern have created a small number of online forums designed for people who have graduated a PMP to stay connected and continue to support one another once the programme has ended. These forums are open only to PMP graduates. Not only can graduates communicate with one another on our Health Unlocked forums, they can also communicate with the healthcare professionals who delivered their PMP.
For Pain Concern this is a preliminary experiment to determine whether forums like these are beneficial, and if we should create more!
Paul Evans speaks to Health Unlocked moderator and PMP graduate Louise Cromie about all things Pain Management Programmes, how support networks can be pivotal in someone’s pain journey and, of course, about our Health Unlocked forums.
Issues covered in this programme include: pain management programmes, self-management, supporting one another in pain, pain community, pain education, the spoon theory, managing pain in a crisis, fatigue, burnout
00:21 – Louise Cromie & Paul Evans discuss the origins of the Health Unlocked forums.
01:13 – Louise Cromie shares her own journey with chronic pain.
03:37 – When doctors tell you ‘there’s nothing we can do’ & the vital role specialist pain teams can play.
06:05 – Being believed & having your pain experience validated.
08:36 – A biopsychosocial approach to pain & how to break the cycle of doing too much on good days, then paying for it after.
11:02 – How to manage your pain in unforeseen circumstances.
12:44 – How do Pain Management Programmes (PMPs) help people in pain.
14:53 – The mask we wear when we’re in pain & learning how to lower it.
20:43 – Helping those around you learn about pain & how to be supportive.
22:50 – How to continue coping once a Pain Management Programme ends.
25:14 – How did Pain Concern get involved in supporting PMP graduates?
27:08 – Louise Cromie on becoming a Health Unlocked forum moderator.
Louise Cromie, current Moderator for the Health Unlocked Forum & graduate of a Pain Management Programme (PMP).
Scottish National Residential Pain Management Programme
Greater Glasgow & Clyde Pain Management Programme
‘The Spoon Theory’ & other self-help resources from Great Western Hospitals NHS Foundation Trust
Pain Concern Health Unlocked
Pain Management Programmes NHS
Shingles & Post Herpetic Neuralgia (PHN)
Determining what Shingles really is and why vaccine uptake is so low?
This edition of Airing Pain has been funded by a grant from The RS Macdonald Charitable Trust and The Stafford Trust
What exactly is Shingles? We often hear it thrown into conversation alongside a virus many of us have already had: Chickenpox. So how are the two linked? Why is one more associated with young people and the other with older people? The answer is they are both infections caused by the varicella-zoster virus. The vast majority of us had the Chickenpox virus when we were children, with many parents even intentionally exposing their children to the virus. Shingles, on the other hand, occurs after someone has already had Chickenpox when the virus (which remains in the body) is reactivated.
One of the main worries people have about having Shingles is the potential to develop Post Herpetic Neuralgia (PHN). This is defined as persistent pain 3 months after the initial rash developed. Unfortunately PHN is a chronic condition which causes burning neuropathic pain. This condition is caused by the damage the virus inflicted during its reactivation.
Paul Evans speaks to health professionals and somebody with lived experience of Shingles & PHN in order to illuminate the intricacies of the varicella-zoster virus, how it works and how it affects us throughout our lives.
1:55 - Dr Michael Serpell speaks: What is Shingles and how does it affect us?
6:15 - Dr Robert Johnson speaks: What is Post Herpetic Neuralgia (PHN)?
11:35 - Jan Fisher, who has lived with PHN for 8 years, speaks about her experience.
14:55 - Marian Nicholson from the Shingles Support Society speaks: Shingles awareness, treatment & what to do if you think you have Shingles?
16:55 - Dr Robert Johnson speaks about treatment for Shingles & PHN.
20:05 - Jan Fisher elaborates on her own experience of medication for PHN.
21:25 - Dr Michael Serpell on what you can expect from PHN treatment & pain management techniques.
26:10 - Dr Robert Johnson discusses the Shingles vaccination.
26: 45- Marian Nicholson speaks about the rollout of the Shingles vaccination and who is eligible.
27:45 - Dr Robert speaks about the low uptake of the vaccine and why it's important to get it.
33:11 - Dr Robert Johnson on amitriptyline and studies on preventing PHN.
35:15 - Final words from Jan Fisher on why you should get the Shingles vaccine.
Issues covered in this programme include: Shingles, Chickenpox, varicella-zoster virus, neuropathic pain, Post Herpetic Neuralgia, pain management, virus reactivation, insomnia, vaccination, vaccine uptake, side effects, amitriptyline, Gabapentinoids, depression.
Dr Michael Serpell, Consultant in Anaesthesia & Pain Medicine at Stobhill Hospital Glasgow.
Marian Nicholson, Director of the Herpes Viruses Association & Shingles Support Society.
Dr Robert Johnson, Honorary Senior Research Fellow, Bristol Medical School, University of Bristol.
Jan Fisher, had the Shingles virus & lives with Post Herpetic Neuralgia.
Shingles Support Society
Airing Pain 46: Post-Herpetic Neuralgia and Migraine
Airing Pain 115: Neuropathic Pain 1
Airing Pain 116: Neuropathic Pain 2
Pain Concern’s leaflet on Neuropathic Pain
Herpes Viruses Association
NHS Guidance for Shingles
British Pain Society
IASP Global Year Against Neuropathic Pain 2014-15
Back Pain & Pain from a Global Perspective with the International Association for the Study of Pain (IASP)
Looking into one of the most globally prevalent types of pain, back pain, and exploring different cultural attitudes towards pain.
This edition of Airing Pain was created in association with the International Association for the Study of Pain (IASP) and has been funded by the Plum Trust.
Back pain is one of the most common types of pain that people report. It can arise due to any number of causative factors and can occur in any part of the back. Lower back pain and Sciatica are particularly common and affect approximately 577 million people globally.
In this episode of Airing Pain we have collaborated with the International Association for the Study of Pain (IASP) who are dedicating their global year 2021 to back pain. 2021 Global Year About Back Pain - IASP (iasp-pain.org)
We also dedicate a portion of the episode to useful pain management advice that will benefit anybody living with pain, including those with back pain.
2:00 – Pain Patient Advocate Mary Wing from GAPPA speaks: what is GAPPA?
5:25 – IASP Global Year about Back Pain.
6:20 – Physiotherapist Otieno Martin Ong'wen speaks: global attitudes towards pain and therapeutic exercise.
14:00 - Clinical Research Project Assistant Vina Mohabir speaks: Living with long-term pain and attending pain clinics and the ‘3 P Method’.
19:31 – Otieno Martin Ong’wen speaks: on fostering patient empowerment.
22:05 – Vina Mohabir speaks: on communicating your pain and masking pain.
23: 55 – Mary Wing speaks: on her experience with pain, pain psychology and pain management courses.
26:46 - Otieno Martin Ong’wen speaks: on how different cultural approaches impact psychological therapies for the treatment of pain and therapeutic exercise.
39:56 – Final words from Vina Mohabir.
Issues covered in this programme include: pain from a global perspective, pain in developing countries, Global Alliance of Partners for Pain Advocacy (GAPPA), chronic condition management, back pain, IASP Global Year about Back Pain, self-management approaches, physiotherapy, therapeutic exercise, pain in rural areas, physical strategies, pharmaceutical strategies, psychological strategies, the ‘3 P Method’, masking pain, pain psychology.
Mary Wing, Pain Patient Advocate, Global Alliance of Partners for Pain Advocacy (GAPPA), Australia.
Otieno Martin Ong’wen, Orthopedic Manual Therapist, Movement Dysfunction Specialist, Physiotherapist, Afyafrica Orthopedic Services, Nairobi.
Vina Mohabir, Clinical Research Project Assistant, The Hospital for Sick Children, Toronto.
IASP Global Year About Back Pain 2021
With thanks to:
IASP, International Association for the Study of Pain – https://www.iasp-pain.org/
Pain Management & Taking the Sting Out the Tail of Neuropathic Pain
Issues covered in this programme include: Insomnia and sleep clinics, burning and gnawing pain, pain signals, biomechanics, stress, analgesia, bradykinesia, gabapentin, pregabalin, managing chronic pain and Parkinson's disease.
Informative, understanding and helpful
Recently came across this podcast and have found it enormously helpful. Oddly enough, a discussion about various pain matters is very relaxing mainly due to the approach and voice of the presenter. Will continue working my way through the episodes. Thank you.
Required listening for chronic pain
Helpful and informative podcast talking about the issues of living with chronic pain. Has really helped me.