54 episodes

Curious, knowledgeable wife of an Ataxian. My mission is to share reputable Ataxia information in short, simple, digestible servings. I want the world to become acquainted with Ataxia and the way it robs someone of their balance, coordination, ability to walk, talk, swallow, and see.

Ataxia, Did You Know? Dana Mauro

    • Education

Curious, knowledgeable wife of an Ataxian. My mission is to share reputable Ataxia information in short, simple, digestible servings. I want the world to become acquainted with Ataxia and the way it robs someone of their balance, coordination, ability to walk, talk, swallow, and see.

    Dr. Jeremy Schmahmann explains Ataxia patients how important to exercise

    Dr. Jeremy Schmahmann explains Ataxia patients how important to exercise

    #ThoughtfulTuesday Exercise , Take a step, Stay tune to the end!
    Dr. Jeremy Schmahmann explains Ataxia patients how important to exercise
    #kNOwATAXIA MGH Neurology

    • 4 min
    Dr Jeremy Schmahmann Ataxia patients prevent infection COVID-19

    Dr Jeremy Schmahmann Ataxia patients prevent infection COVID-19

    Dr Jeremy Schmahmann.. is head of the Ataxia Unit at Massachusetts General Hospital in Boston, Massachusetts MINDlink Foundation
    Ataxia patients: steps to take care of yourself to prevent infection COVID-19 https://youtu.be/c-ic6Wn9m0Q

    • 1 hr 5 min
    Be a part of the Joint Mission Bataan

    Be a part of the Joint Mission Bataan

    Listen in to my conversation with Mike De Rosa and Mark Minkin. Find out how they and other representatives from across the country are raising funds and awareness about Ataxia on March 15th https://ataxia.org/jointmissionbataan/

    The Joint Mission Bataan is an exciting opportunity to support the Ataxia community, and veterans, at the same time. The National Ataxia Foundation and many individuals from around the country have committed to hiking 26.2 miles in the New Mexico desert as part of the Bataan Memorial Death March.

    Be a part of the Joint Mission Bataan- an operation to increase awareness of Ataxia, raise funds, and find a cure. Contributions will go towards fulfilling NAF’s mission of improving the lives of persons affected by Ataxia through support, education, and research.
    #kNOwATAXIA Nation
    #thoughtfultuesday

    • 18 min
    SCAR Scale

    SCAR Scale

    • 24 min
    Feeling alone in your Ataxia diagnosis – finding the right support system is key.

    Feeling alone in your Ataxia diagnosis – finding the right support system is key.

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    • 6 min
    Making the most out of the first appointment with your neurologist.

    Making the most out of the first appointment with your neurologist.

    Making the most out of the first appointment with your neurologist.By Dana Mauro

    • 6 min

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