Epilepsy Sparks Insights

Torie Robinson
  • 5.0 (8)
  • MEDICINE
  • UPDATED WEEKLY

Sparking interest and understanding in the epilepsies whilst bridging the communication gap between epilepsy patients, clinicians, scientists, geneticists – and the world. Hosted by Torie Robinson. **NOT FOR CLINICAL OR PATIENT DECISION-MAKING* Visit www.torierobinson.com & www.epilepsysparks.com.

  1. The Blood-Brain Barrier and Epilepsy! - Dr. Claire Behan & Dr. Chris Greene

    4 DAYS AGO

    The Blood-Brain Barrier and Epilepsy! - Dr. Claire Behan & Dr. Chris Greene

    This chat delves into the intricate relationship between the blood-brain barrier and epilepsy - particularly temporal lobe epilepsy! Claire, Chris, and Torie highlight the dysfunction of the blood-brain barrier in people with an epilepsy, the role of imaging techniques in assessing this dysfunction, and the outcomes of surgical interventions. Excitingly, Claire and Chris also explore future research directions aimed at targeting the blood-brain barrier to improve treatment outcomes! 🌐 More about the episode 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/claire-behan-chris-greene-blood-brain-barrier-temporal-lobe-epilepsy-neurosurgery    🌐 More about Claire https://www.torierobinson.com/guests/claire-behan    🌐 More about Chris https://www.torierobinson.com/guests/chris-greene    👕 Check out our cool merch 👇🏻 https://epilepsy-sparks.creator-spring.com    🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights      🎧 Listen to the podcast 👇🏻 https://epilepsysparksinsights.podbean.com      🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary   📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks  - TikTok https://www.tiktok.com/@epilepsysparks

    16 min
  2. Understanding the Epilepsy Surgery Journey - Dr. Ricardo Morcos

    6 NOV

    Understanding the Epilepsy Surgery Journey - Dr. Ricardo Morcos

    Around 20–30% of people with an epilepsy don’t respond well to anti-seizure medications - so what happens next? Dr. Ricardo Morcos (UCLH) joins host Torie Robinson to explain the epilepsy surgery journey: how people are assessed, what tests are involved, and how teams make decisions together. We discuss: The “tube map”(!) that helps explain this complex process Why surgery isn’t talked about enough Common myths & fears What to expect from surgery & recovery How neuromodulation, new medications & trials also fit in This empowering conversation is for anyone affected by the epilepsies - patients, carers, and clinicians alike! Check out:  🔗 More about episode (inc. transcription) 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/ricardo-morcos-epilepsy-surgery-journey  🌐 More about Ricardo 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/ricardo-morcos  👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com  🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights  🎞️ Watch the Epilepsy Sparks Insights podcast on YouTube 👇🏻 https://youtu.be/QzIoLlRG1Lw    📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks  - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social  - Instagram https://www.instagram.com/epilepsysparks  - Facebook https://www.facebook.com/epilepsysparks   - TikTok https://www.tiktok.com/@epilepsysparks

    24 min
  3. Why Epilepsy Is So Common in UK Prisons - Epilepsy Nurse: Karen McLeod

    23 OCT

    Why Epilepsy Is So Common in UK Prisons - Epilepsy Nurse: Karen McLeod

    We discuss: Why epilepsy is up to four times more common in prison populations The role of traumatic brain injuries, substance use & mental health Barriers to accessing epilepsy specialists behind bars Misuse, mistiming, & under-optimisation of anti-seizure medications The continued use of rectal diazepam and lack of rescue treatment awareness Increased SUDEP risks for people with epilepsy in prisons How NICE guidelines should be improving care - but often aren’t What needs to change to ensure prisoners get the epilepsy care they are entitled to   🔗 More about episode 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/karen-mcleod-uk-prisons   More about Karen McLeod 👇🏻 https://www.torierobinson.com/guests/karen-mcleod   👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com   🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights   🎥 Watch the video 👇🏻 https://youtu.be/2yKOxliR1pY   🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary 👇🏻 https://www.epilepsysparks.com/glossary   📲 Connect with us Website https://www.epilepsysparks.com LinkedIn https://www.linkedin.com/company/epilepsy-sparks Bluesky https://bsky.app/profile/epilepsysparks.bsky.social Instagram https://www.instagram.com/epilepsysparks Facebook https://www.facebook.com/epilepsysparks TikTok https://www.tiktok.com/@epilepsysparks

    12 min
  4. ILAE Academy: Global Training for Epilepsy Clinicians - Prof. Gagandeep Singh

    16 OCT

    ILAE Academy: Global Training for Epilepsy Clinicians - Prof. Gagandeep Singh

    The ILAE Academy is changing how clinicians and researchers learn about the epilepsies! Prof. Gagandeep Singh, Chair of the ILAE Education Council, joins Torie to explain how this innovative, self-paced, and structured platform is helping to shape the next generation of epilepsy specialists! We discuss: What the ILAE Academy is and who it’s for How it keeps up with new discoveries Why accessibility and affordability matter The future of interactive, AI-based learning 🔗 More about episode (inc. transcription) 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/gagandeep-singh-ilae-academy    🤩 More about Gagandeep 👇🏻 https://www.torierobinson.com/guests/gagandeep-singh    🎓 The ILAE Academy https://ilae-academy.totaratalent.com    👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com   🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights    🎞️ Watch episode on YouTube 👇🏻 https://youtu.be/PrYZyKrb4Ec    🔤  Learn key terms related to the epilepsies and neuroscience here 👇🏻 https://www.epilepsysparks.com/glossary    📲 Connect with us! 👇🏻 Website https://www.epilepsysparks.com  LinkedIn https://www.linkedin.com/company/epilepsy-sparks  Bluesky https://bsky.app/profile/epilepsysparks.bsky.social  Instagram https://www.instagram.com/epilepsysparks  Facebook https://www.facebook.com/epilepsysparks  TikTok https://www.tiktok.com/@epilepsysparks

    19 min
  5. Carers in Epilepsy: Quality of Life, Hidden Costs & Research - Dr. Florien Boele

    9 OCT

    Carers in Epilepsy: Quality of Life, Hidden Costs & Research - Dr. Florien Boele

    How much do carers really contribute to epilepsy care, & why are their struggles so often invisible? 💜 Dr. Florien Boele, a researcher in psychosocial oncology & caregiving, talks about the essential but often overlooked role of unpaid carers for adults with epilepsy. Florien talks with Torie about: Who carers are The staggering £184 billion value that carers add to the UK economy The personal costs of caregiving - sleep, stress, health, finances & relationships Why epilepsy research rarely includes carers (compared with other diseases) The importance of measuring carer outcomes through core outcome sets Florien’s study to define what truly matters most to carers 👉🏻 Tune in to hear how research is beginning to highlight carers’ voices & why supporting them means supporting people with epilepsy too.   🔗 More about episode 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/florien-boele-quality-of-life-carers-epilepsy   🤩 More about Florien 👇🏻 Dr. Florien Boele | Family caregiving, quality of life, & the epilepsies — Torie Robinson   👕 Join the Epilepsy Sparks community with our merch!👇🏻 https://epilepsy-sparks.creator-spring.com   🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights   🎧 Watch episode on YouTube 👇🏻 https://youtu.be/7F7N3TvnMjM    🔤 Learn key terms related to the epilepsies and neuroscience here 👇🏻 https://www.epilepsysparks.com/glossary    📲 Connect with us! 👇🏻 Website https://www.epilepsysparks.com LinkedIn https://www.linkedin.com/company/epilepsy-sparks Bluesky https://bsky.app/profile/epilepsysparks.bsky.social Instagram https://www.instagram.com/epilepsysparks Facebook https://www.facebook.com/epilepsysparks TikTok https://www.tiktok.com/@epilepsysparks

    14 min
  6. Improving Seizure Diaries in LGS, Dravet & DEEs – Dr. Ewan Nurse

    2 OCT

    Improving Seizure Diaries in LGS, Dravet & DEEs – Dr. Ewan Nurse

    Did you know seizure diaries in LGS & Dravet often capture less than half of seizures?! Today we hear from Dr. Ewan Nurse, an engineer & epilepsy researcher in Melbourne, who shares research into seizure reporting in developmental & epileptic encephalopathies (DEEs). We explore why seizure diaries miss so many seizures, how carers sometimes log non-seizure events, and what that means for families and clinicians. Ewan also talks about the promise & limits of wearable devices, EEG headbands & implants, and why collaboration between engineers, clinicians, carers & families is essential for the future of epilepsy care. 🌐 More about Ewan👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/ewan-nurse-seizure-diaries-eeg-dees-dravet-lgs    🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights     👕 Check out our cool merch 👇🏻 https://epilepsy-sparks.creator-spring.com    🎧 Listen to the podcast 👇🏻 https://epilepsysparksinsights.podbean.com     📖 Chapters 00:00 Intro 14:30 Understanding Developmental and Epileptic Encephalopathies 17:57 Future of Seizure Tracking Technology 21:01 Collaboration Between Clinicians and Engineers 23:52 The Broader Impact of Epilepsy Beyond Seizures 00:00 Conclusion & Thanks   🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary    📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks  - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social  - Instagram https://www.instagram.com/epilepsysparks  - Facebook https://www.facebook.com/epilepsysparks   - TikTok https://www.tiktok.com/@epilepsysparks

    14 min
  7. The Silent Witness: Why Most Seizures Go Unrecorded (Part 1) - Dr. Ewan Nurse

    25 SEPT

    The Silent Witness: Why Most Seizures Go Unrecorded (Part 1) - Dr. Ewan Nurse

    In this first half of our chat with Dr. Ewan Nurse, we explore why seizure reporting matters so much in epilepsy care. From forgotten focal seizures to the challenges of eyewitness accounts, Ewan explains why accurate seizure diaries are vital yet so difficult to achieve. We discuss research findings showing that most minor seizures go unreported(!), why some go over-reported(!), the role of memory, stigma, and psychology in diary-keeping, and the importance of involving carers in the process. 🌐 More about Ewan👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/ewan-nurse-seizure-diaries-silent-witness   🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights     👕 Check out our cool merch 👇🏻 https://epilepsy-sparks.creator-spring.com    🎧 Listen to the podcast 👇🏻 https://epilepsysparksinsights.podbean.com     🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary    📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks  - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social  - Instagram https://www.instagram.com/epilepsysparks  - Facebook https://www.facebook.com/epilepsysparks   - TikTok https://www.tiktok.com/@epilepsysparks

    15 min
  8. Rare Epilepsies, Patient Advocacy, & Becoming a NEUROLOGIST- Phillip Pearl

    18 SEPT

    Rare Epilepsies, Patient Advocacy, & Becoming a NEUROLOGIST- Phillip Pearl

    In this second episode with Dr Phillip Pearl, we explore the human side of rare epilepsies: what drives him as a paediatric neurologist, how advocacy transforms progress, and why research in ultra-rare conditions can change the lives of people with common disorders. We also tackle difficult but vital topics - SUDEP, depression, and suicide in epilepsy - and end on a hopeful note with music and the brain!   🌐 More about Phillip 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/phillip-pearl-rare-epilepsies-sudep-neurology-journey     👕 Check out our cool merch 👇🏻 https://epilepsy-sparks.creator-spring.com    🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights    🎧 Watch the chat on YouTube 👇🏻 https://youtu.be/scBYPashBAs    📖 Chapters 00:00 – Intro 00:56 – Meet Dr Phillip Pearl 01:17 – What keeps you going, as a paediatric neurologist 03:19 – Choosing paediatric neurology 05:06 – Falling in love with neurology 06:25 – Future of metabolic epilepsies 07:30 – Gene therapy breakthroughs 09:44 – SUDEP & risk awareness 11:18 – Depression, mortality, & suicide in epilepsy 11:55 – The intersection of music and epilepsy 12:28 – Conclusion & thanks   🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary    📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks  - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social  - Instagram https://www.instagram.com/epilepsysparks  - Facebook https://www.facebook.com/epilepsysparks   - TikTok https://www.tiktok.com/@epilepsysparks

    13 min
See All (100)

5
out of 5
8 Ratings

About

Sparking interest and understanding in the epilepsies whilst bridging the communication gap between epilepsy patients, clinicians, scientists, geneticists – and the world. Hosted by Torie Robinson. **NOT FOR CLINICAL OR PATIENT DECISION-MAKING* Visit www.torierobinson.com & www.epilepsysparks.com.

Information

  • Creator
    Torie Robinson
  • Years Active
    2021 - 2025
  • Episodes
    100
  • Rating
    Clean
  • Copyright
    © 2022 Epilepsy Sparks Insights
  • Show Website
    Epilepsy Sparks Insights

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