Welcome to epilepsycast – the podcast about all things epilepsy, from Epilepsy Action. We’re looking forward to bringing you the latest epilepsy news and real-life stories every fortnight.
Talking epilepsy and comedy with Maisie Adam - Purple Day bonuscast
“Ultimately, you have to find the light in it rather than the dark.”Epilepsy is hugely varied and affects everyone differently. For Purple Day 2021, we are excited to be able to share comedian Maisie Adam’s epilepsy story in this special bonus episode of epilepsycast. Diagnosed with epilepsy at 14, Maisie talks about her experiences coming of age with epilepsy and sharing it as part of her comedy routines. In this insightful chat, she reveals how humour helps her deal with the realities of her condition, and how she handles misconceptions that others have. She also shares insights into her comedy career and how she’s found doing stand-up in the global pandemic.You can watch ‘Vague’, Maisie’s standup show about her epilepsy, here - www.amazon.co.uk/Maisie-Adam-Vagu…Up/dp/B07XZHK914Transcript link: otter.ai/u/TMcCcQzuH0sEVr13guCT7pQclGI?f=
What do you want to tell the world about epilepsy? - Purple Day bonuscast
Purple Day is all about people with epilepsy coming together to raise their voices and speak out. Listen to Derrick, Debbie, Murray, Bob, Phil, Lauren and Charlotte as they tell us about their epilepsy, the myths they would love to bust and what they want the world to know about the condition.
Bonuscast - What’s changed with epilepsy in the last 70 years?
What’s changed with epilepsy in the last 70 years? In this special bonuscast, we talk with Epilepsy Action Chief Executive Philip Lee about the history of epilepsy, key milestones and changes for people with epilepsy, the challenges that 2020 has brought and what we hope for the future.
ep 8 - A winning tale of friendship
Ellis, 9, was diagnosed with focal epilepsy in 2019. His whole world was turned upside down, becoming withdrawn and depressed. His seizures still aren’t under control. Reggie, a good school friend of Ellis, has proven to be a hero when it comes to recognising Ellis’ seizures. Both in person and throughout lockdown, Reggie checks on Ellis to keep his spirits high. We talk to the two boys about epilepsy, friendship and what they’ve been up to recently.This week’s epilepsy news:As season one of epilepsycast draws to a close, we look back over some of our favourite moments of the podcast so far.We share a story from Joe who was diagnosed with epilepsy when he was 15, now 28 he still isn’t seizure free. We always want to hear powerful stories from people with epilepsy. You can write your own at epilepsy.org.uk/my-storyFor more information and advice on face coverings, visit epilepsy.org.uk/info/daily-life/safety/coronavirus-covid-19. You can also buy Epilepsy Action face coverings and hygiene hooks by visiting our shop.
ep 7 - epilepsy and having a baby
Ibby had baby daughter Niamh just under four weeks ago. She had seizures all through pregnancy, including just before the epidural for her C-section. We talk to her about being new to epilepsy, the joy of having a baby and the challenges the two can bring together. This week's epilepsy news:We talk through an article from The Sun about some shocking figures from the Office for National Statistics showing that Brits are more likely to have a degree than to have no qualifications at all - but those with epilepsy are the least likely to have a degree and the most likely to have no qualifications out of all disability types.Keele University researchers are looking for the opinions of people with epilepsy, carers, family, friends, people who receive alerts from wearable alarms and healthcare professionals. The aim is to explore how people use them, and what their opinions are about them.
ep 6 - A marathon, not a sprint
Patience was diagnosed with epilepsy when she was 14. She has both tonic-clonic and focal seizures, sometimes two or three a week. Patience chats with us about her epilepsy journey. How her sister reacted to her first seizure, how shocked her friends and family were, her struggles with work and an invisible condition and her incredible decision to move her life to a different city. Throughout, Patience maintains her philosophy: ‘Keep in control’. Check out Patience’s new YouTube channel ‘Complete Patience’: www.youtube.com/channel/UC49RazyRNhh8S2-Y7BhPtmwThis week’s epilepsy news: • With face coverings in shops becoming mandatory on 24th July, we share advice received from Dr Rhys Thomas about how safe they are for people with epilepsy. (www.epilepsy.org.uk/info/daily-life…avirus-covid-19) • The International Bureau for Epilepsy is looking to gather stories of people’s experience with COVID-19 and lockdown. Please email us on firstname.lastname@example.org to share any stories. • Epilepsy Action has launched its gaming for good fundraising programme. Set yourself some gaming challenges, stream on your platform of choice and get your viewers involved in donating and learning about epilepsy. Learn more at epilepsy.org.uk/gaming
Hello from a parent of a 5 year old with Epilepsy who’s seizures have broken through during lockdown after almost a year seizure free! Thank you. Thank you for putting this podcast together so I can hear other people’s stories and feel part of a community 💜