40 episodes

Your Story Matters. We raise awareness for those living with chronic illness, pain, and associated mental health challenges by providing a platform to share their stories. Their unfiltered reality.

Hosted by award-winning Patient Advocate and lived Experience Champion Joel Nelson, weekly on Sunday evenings from 7pm (GMT) in front of a LIVE audience on our YouTube Channel here: https://youtube.com/joelvsarthritis.

The Joel Nelson Podcast Joel Nelson

    • Health & Fitness
    • 5.0 • 2 Ratings

Your Story Matters. We raise awareness for those living with chronic illness, pain, and associated mental health challenges by providing a platform to share their stories. Their unfiltered reality.

Hosted by award-winning Patient Advocate and lived Experience Champion Joel Nelson, weekly on Sunday evenings from 7pm (GMT) in front of a LIVE audience on our YouTube Channel here: https://youtube.com/joelvsarthritis.

    Advocating in Memory of My Mother | A World Parkinson's Day Special

    Advocating in Memory of My Mother | A World Parkinson's Day Special

    On World Parkinson's Day, join us for a poignant and inspiring conversation with Dr. George Ackerman, a passionate advocate for Parkinson's disease and dementia awareness. Driven by the memory of his mother, Sharon, who bravely battled the disease, Dr. Ackerman has dedicated his life to raising awareness, furthering research, and offering hope to millions impacted by Parkinson's.
    Hear Dr. Ackerman share his mother's journey with Parkinson's, the profound impact she had on his life, and his work, including his organisation, "Together for Sharon," and how it's making a difference in the lives of patients and their families.
    This is more than just a talk show; it's a platform for inspiration, action, and hope.
    If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. 3
    Follow our GUEST: Instagram: https://www.instagram.com/togetherforsharon/YouTube: https://www.youtube.com/channel/UCIeBLOelhaLQNvgeNMzu-5gTwitter/X: https://twitter.com/togetherforsha1 
    Follow the HOST:Instagram: https://instagram.com/joelvsarthritis Facebook: https://www.facebook.com/joelvsarthritis Twitter/X: https://twitter.com/joelvsarthritisTwitch: https://twitch.tv/joelvsarthritis
    Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcXAll Links: https://linktr.ee/Joelvsarthritis
    Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!
    DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.
    Music Credit: Buffon – by Gideon Murray

    • 48 min
    Degenerative Arthritis: How to Live Your Best Life with a Full-Time Job and Kids

    Degenerative Arthritis: How to Live Your Best Life with a Full-Time Job and Kids

    Osteoarthritis (OA) doesn't discriminate.
    It can affect people of all ages, including young adults and even children. In this episode, we talk to Rebecca Kudyk, who was diagnosed with severe Osteoarthritis at the age of 25.
    Rebecca shares her story of living with OA and how she has managed to not only maintain a high-profile job and young family, but thrive.
    In this episode, you will learn: 
    How OA can affect people of all ages
    The challenges of living with OA and other comorbidities
    How to stay positive and find ways to manage pain, fatigue and family
    Rebecca's tips for managing OA and maintaining a high-functioning lifestyle
    If you or someone you know is living with OA, this episode is for you.
    If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. 3
    Follow our GUEST: Instagram: https://instagram.com/chronically_bex
    Follow the HOST:Instagram: https://instagram.com/joelvsarthritis Facebook: https://www.facebook.com/joelvsarthritis Twitter/X: https://twitter.com/joelvsarthritisTwitch: https://twitch.tv/joelvsarthritisJoin our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcXAll Links: https://linktr.ee/JoelvsarthritisWatch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.Music Credit: Buffon – by Gideon Murray

    • 46 min
    Can Gender Delay Diagnosis? (with Prof Yeliz Prior)

    Can Gender Delay Diagnosis? (with Prof Yeliz Prior)

    In this episode, we ask what role gender plays in delays to diagnosis.
    We are incredibly fortunate to be joined by Professor Yeliz Prior, Professor of Clinical Rehabilitation at the University of Salford, who lives with axial spondyloarthritis (axSpA) and osteoarthritis.
    Alongside exploring her personal lived experience journey and the great work she does as a prominent figure in the Rheumatology community, we discuss diagnostic delay and how gender and different patterns of clinical presentation across them can impact this.
    Listen now to what was, at the time of recording, our most-watched live show ever - and for good reason!If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. 3
    Follow our GUEST: Twitter: @ProfYelizPrior
    Follow the HOST:Instagram: https://instagram.com/joelvsarthritis Facebook: https://www.facebook.com/joelvsarthritis Twitter/X: https://twitter.com/joelvsarthritisTwitch: https://twitch.tv/joelvsarthritisJoin our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcXAll Links: https://linktr.ee/JoelvsarthritisWatch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.Music Credit: Buffon by Gideon Murray

    • 43 min
    In Conversation with Rare Autoinflammatory Conditions Community UK

    In Conversation with Rare Autoinflammatory Conditions Community UK

    Ahead of Rare Disease Day, we welcome Rachel Rimmer and Mark Telkman from Rare Autoinflammatory Conditions Community UK (RACC-UK) to illuminate the often-overlooked world of these chronic illnesses and how they differ from autoimmune diseases.
    RACC-UK is a UK-based charity supporting individuals living with rare autoinflammatory conditions, their families, and carers. They work tirelessly to improve their lives through information, support, advocacy, working alongside healthcare professionals and informing policy.
    Discover how RACC-UK creates a lifeline for patients facing isolation and empowers them to become active participants in their healthcare. Learn about their valuable resources and initiatives that make a real difference in the lives of those living with autoinflammatory conditions.
    Join us as Rachel shares her poignant diagnosis journey in the search for answers. Despite symptoms from birth, it took over a decade for her to be diagnosed with Mevalonate Kinase Deficiency (MKD). We learn about this experience and how it led to advocacy and becoming the Director of RACC-UK.
    This conversation is more than just a medical exploration; it's a call to action. We'll discuss the challenges of raising awareness, receiving a timely diagnosis, and ensuring a better future for all affected by these complex conditions.
    If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. 3
    Follow our GUEST: Instagram: https://instagram.com/@racc_ukWebsite: https://raccuk.com/
    Follow the HOST:Instagram: https://instagram.com/joelvsarthritis Facebook: https://www.facebook.com/joelvsarthritis Twitter/X: https://twitter.com/joelvsarthritisTwitch: https://twitch.tv/joelvsarthritis
    Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcXAll Links: https://linktr.ee/Joelvsarthritis
    Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.

    • 46 min
    People-Centered Healthcare: Treating the Person, as well as the Disease

    People-Centered Healthcare: Treating the Person, as well as the Disease

    We are incredibly fortunate to be joined by not only Ass. Prof. Dr. Rachel Sommer, Head of People-Centered Health Care Research and Psychodermatology at University Medical Center Hamburg-Eppendorf, but a surprise guest in leading Dermatologist Prof. Dr. Matthias Augustin, Director of the Institute for Health Services Research in Dermatology and Nursing of the same institution who discuss the vitally important work they both do in people-centered healthcare.
    Person-centered healthcare (PCHC) is a holistic approach to healthcare that puts the patient's needs and preferences at the centre of care. 
    In PCHC, the patient is seen as an active partner in their own healthcare, involved in all aspects of their care, from setting goals to making decisions about their treatment. This approach has been shown to provide improved patient outcomes and quality of life.
    We will explore the relevance of PCHC, especially in the context of mental health and dermatological conditions, discuss the benefits, how to implement it in practice, and current projects related to PCHC in dermatology.
    If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. 3
    Follow the HOST:Instagram: https://instagram.com/joelvsarthritis Facebook: https://www.facebook.com/joelvsarthritis Twitter/X: https://twitter.com/joelvsarthritisTwitch: https://twitch.tv/joelvsarthritisJoin our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcXAll Links: https://linktr.ee/JoelvsarthritisWatch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.

    • 38 min
    Autoimmune Disease in Families | Did Stress Cause My Autoimmune Condition? | Part 3

    Autoimmune Disease in Families | Did Stress Cause My Autoimmune Condition? | Part 3

    In this final episode of our three-part mini-series focusing on three people with three autoimmune diseases in one family, 'Joel vs Arthritis' Twitch community member Lauren Gibbons shares her story of living with Ulcerative Colitis and how she believes childhood trauma and stress contributed to the development of her autoimmune condition. 
    She discusses her journey to diagnosis, her decision to undergo total colectomy surgery, and how she is managing her Ulcerative Colitis today - including by using peer support communities and gaming as escapism.
    Lauren also shares her insights on the connection between stress and autoimmune disease and offers advice to others struggling with similar challenges. 
    Discussion Topics:
    What is Ulcerative Colitis?Lauren's journey to diagnosisThe decision to undergo total colectomy surgeryManaging Ulcerative Colitis on a daily basisThe connection between stress and autoimmune diseaseAdvice for others living with autoimmune diseaseUsing peer support communities as part of the management of long-term health conditionsIf you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. 3Follow our GUEST: Instagram: @theless.eye.know
    Follow the HOST:Instagram: https://instagram.com/joelvsarthritis Facebook: https://www.facebook.com/joelvsarthritis Twitter/X: https://twitter.com/joelvsarthritisTwitch: https://twitch.tv/joelvsarthritisJoin our Online Peer Support Community and Discord server here.All Links: https://linktr.ee/JoelvsarthritisWatch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.

    • 39 min

Customer Reviews

5.0 out of 5
2 Ratings

2 Ratings

KPieris ,

Authentic and brilliant

Like Joel’s blog and social media, on his podcast he stays true to himself and the affects his disease has on him, his family and friends. Arthritis is all consuming and podcasts like this are so important for raising awareness and we are people who have to try and thrive with the disease that is too familiar to people as being just for old people!

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