42 episodes

A podcast from the Johns Hopkins University Disability Health Research Center that challenges stereotypes of disability by sharing stories, data, and news. Episode transcripts can be found at http://disabilityhealth.jhu.edu/included

Included: The Disability Equity Podcast Bonnielin Swenor

    • Society & Culture

A podcast from the Johns Hopkins University Disability Health Research Center that challenges stereotypes of disability by sharing stories, data, and news. Episode transcripts can be found at http://disabilityhealth.jhu.edu/included

    42: Reproductive Health and Disability

    42: Reproductive Health and Disability

    Dr. Willi Horner-Johnson takes a cross-disability approach to pregnancy and health in her work as Associate Professor at Oregon Health and Science University's School of Public Health, director of the Oregon Office on Disability in Health, and co-PI of the National Center for Disability and Pregnancy. Her work studies both pregnancy of people with disabilities and the birth of people with disabilities from preconception to post-partum health. She calls for a culture shift in reproductive care to respect people with disabilities, and for more accessible healthcare settings. 
    Episode Transcript: here
    Episode transcripts can be found at http://disabilityhealth.jhu.edu/included/
    Other links:
    "Perinatal Health Risks And Outcomes Among US Women With Self-Reported Disability, 2011–19," Health Affairs: https://www.healthaffairs.org/doi/10.1377/hlthaff.2022.00497
    "'It Would Have Been Nice to Have a Choice': Barriers to Contraceptive Decision-making among Women with Disabilities," Women's Health Issues: https://www.whijournal.com/article/S1049-3867(22)00001-9/fulltext
    OHSU University Center for Excellence in Developmental Disabilities - Reproductive Health Research: https://www.ohsu.edu/university-center-excellence-development-disability/reproductive-health-research
    National Center for Disability and Pregnancy Research homepage: https://heller.brandeis.edu/disability-and-pregnancy/

    • 23 min
    41: Web Accessibility

    41: Web Accessibility

    Jared Smith, associate director of WebAIM, shares his expertise from over 20 years of working in web accessibility. In this episode, Smith highlights how online access means equity to information and ecommerce for all. He describes his team’s systems to search websites for a wide variety of barriers, even with few federal guidelines in place. Tune in to hear how he views the future of technology, and how you can do your part to ensure an equitable online environment.

    Episode Transcript: here
    Episode transcripts can be found at http://disabilityhealth.jhu.edu/included/
    Learn more at: https://webaim.org/
    Other links:
    The WebAIM Million – 2022 Update: https://webaim.org/blog/webaim-million-2022/
    COVID-19 Vaccine Website Accessibility Dashboard: https://disabilityhealth.jhu.edu/vaccinedashboard/webaccess/

    • 24 min
    40: Making Their Days Happen: Personal Assistant Services

    40: Making Their Days Happen: Personal Assistant Services

    In this episode, we welcome back Dr. Lisa Iezzoni, a professor of medicine at Harvard Medical school and an internationally recognized health services researcher, to discuss her new book, Making Their Days Happen: Personal Assistant Services Supporting People with Disability Living in Their Homes and Communities. Learn about the research findings and personal anecdotes that motivated Dr. Iezzoni’s book about policy, interactions with the disability community, and more. Episode Transcript: Click here
    Episode transcripts can be found at http://disabilityhealth.jhu.edu/included/
    The book is available at any bookseller
    https://www.amazon.com/Making-Their-Days-Happen-Communities/dp/1439920761
     
     

    • 32 min
    Disability Health Equity and Health Implementation Science

    Disability Health Equity and Health Implementation Science

    Dr. Megan Morris is a University of Colorado-Anschutz Associate professor, certified speech-language pathologist, and founding director of the Disability Equity Collaborative, a community aimed at advancing equitable care for patients with disabilities through practice, policy and research. Dr. Morris focuses on understanding, identifying and addressing disparities in care delivered to patients with disabilities and uses patient-informed data to address disparities via pragmatic and sustainable changes such as documenting disability in the electronic health record to inform accommodations.
    Episode Transcript: Click here
    Episode transcripts can be found at http://disabilityhealth.jhu.edu/included/
    Link: https://www.disabilityequitycollaborative.org/

    • 36 min
    Disability and Emergency Management During COVID-19

    Disability and Emergency Management During COVID-19

    Linda Mastandrea, Director of the Office of Disability Integration and Coordination at the Federal Emergency Management Agency (FEMA), shares her work as a disability law and civil rights attorney. She discusses her role in the COVID-19 response, the lack of data on how emergencies impact people with disabilities, and the barriers for people with disabilities to access emergency assistance. This episode highlights the importance of including people with disabilities in the decision-making process. 
    Episode Transcript: Click here
    Episode transcripts can be found at http://disabilityhealth.jhu.edu/included/
    Resource Links 
    Learn more about the FEMA Office of Disability Integration and Coordination (ODIC) and its mission, and subscribe to receive news and updates about our work: Office of Disability Integration and Coordination | FEMA.gov Learn more about the ODIC Director, Linda Mastandrea: Linda Mastandrea | FEMA.gov Learn and share disaster preparedness resources for People with Disabilities: Individuals with Disabilities | Ready.gov  I   Personas con discapacidades | Ready.gov

    • 24 min
    Health and Social Equity for People with Disabilities

    Health and Social Equity for People with Disabilities

    Dr. Kimberly Phillips, Research Assistant Professor at the Institute on Disability at the University of New Hampshire, provides an overview of her broad range of projects on increasing equity for people with disabilities through employment and community participation. She differentiates the medical and social models of Disability and provides insight and evidence from her research aiming to improve disability awareness and inclusion via new training programs with an aim to ultimately reduce barriers and improve healthcare for people with disabilities. 
    Episode Transcript: Click here
    Episode transcripts can be found at http://disabilityhealth.jhu.edu/included/
    Article link
    https://pubmed.ncbi.nlm.nih.gov/34103262/
     

    • 28 min

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