34 episodes

A podcast from the Johns Hopkins University Disability Health Research Center that challenges stereotypes of disability by sharing stories, data, and news. Episode transcripts can be found at http://disabilityhealth.jhu.edu/included

Included: The Disability Equity Podcast Bonnielin Swenor

    • Society & Culture

A podcast from the Johns Hopkins University Disability Health Research Center that challenges stereotypes of disability by sharing stories, data, and news. Episode transcripts can be found at http://disabilityhealth.jhu.edu/included

    Healthcare During the COVID-19 Pandemic and Beyond

    Healthcare During the COVID-19 Pandemic and Beyond

    MaryBeth Musumeci, associate director of the Program on Medicaid and the Uninsured at the Kaiser Family Foundation, discusses how states are expanding access to behavioral healthcare, including the role of telehealth. She also describes the ethical issues behind COVID-19 mandates, the rights of nursing home residents during the pandemic, and new opportunities in the American Rescue Plan. In this compelling episode, Musumeci highlights the importance of making these improvements to healthcare access permanent. 
    Episode Transcript: Click here
    Episode transcripts can be found at http://disabilityhealth.jhu.edu/included/
    Useful Links:
    https://www.kff.org/medicaid/issue-brief/voices-of-paid-and-family-caregivers-for-medicaid-enrollees-receiving-hcbs/  https://www.kff.org/medicaid/issue-brief/state-variation-in-medicaid-ltss-policy-choices-and-implications-for-upcoming-policy-debates/ https://www.kff.org/coronavirus-covid-19/issue-brief/state-medicaid-home-community-based-services-hcbs-programs-respond-to-covid-19-early-findings-from-a-50-state-survey/ https://www.kff.org/medicaid/issue-brief/potential-impact-of-additional-federal-funds-for-medicaid-hcbs-for-seniors-and-people-with-disabilities/  

    • 37 min
    Disability Data Initiative

    Disability Data Initiative

    Dr. Sophie Mitra, professor in the department of economics, co-director of the disability studies program, and founding director of the research consortium on disability at Fordham University, discusses the disability data initiative. Dr. Mitra shares her findings that people with disabilities are often not included in national surveys, not asked meaningful questions, and can be stigmatized. Dr. Mitra's work emphasizes that disability is  common and that the inequalities associated with disability vary across countries.
    Episode Transcript: Click here
    Episode transcripts can be found at http://disabilityhealth.jhu.edu/included/
    Useful Links: 
    Disability Data Initiative: https://disabilitydata.ace.fordham.edu/
    Disability Studies Program: Disability Studies | Fordham

    • 24 min
    Disability Moral Asymmetry

    Disability Moral Asymmetry

    In this episode, the Director of the Institute for Ethics and Public Affairs at San Diego State University, Dr. Joe Stramondo, discusses his paper  "Causing Disability, Causing Non-Disability: What's the Moral Difference?". In this conversation, he describes society's standard view of disability and the reasons why there is a moral asymmetry between causing a disability and not causing a disability. This important conversation gets to the core of many debates about disability, especially in medical settings.
    Episode Transcript: Click here
    Episode transcripts can be found at http://disabilityhealth.jhu.edu/included/
    Useful Links: 
    Published Work: https://scholar.google.com/citations?user=4FPA1i4AAAAJ&hl=en SDS Webpage: https://disstudies.org/   

    • 39 min
    Music and Hearing

    Music and Hearing

    Music producer, composer, and hearing technology consultant Richard Einhorn describes his diverse experiences from creating award-winning music to advocating for adults with hearing loss worldwide. Einhorn tells his story of suddenly losing hearing and experimenting with powerful hearing assistance technologies. He shares his optimism for universal design to destigmatize hearing assistance and allow music to be accessible to all.
    Episode Transcript: Click here
    Episode transcripts can be found at http://disabilityhealth.jhu.edu/included/
    Learn more at: www.richardeinhorn.com
    Other links
    Preventing and Negating Hearing Loss Sound on Sound Magazine: https://www.soundonsound.com/sound-advice/preventing-negating-hearing-loss LE Audio: The Evolution of Bluetooth: Sound on Sound Magazine: https://www.soundonsound.com/sound-advice/le-audio-evolution-bluetooth Sound of Real: Hearing Health Magazine : https://hearinghealthfoundation.org/blogs/sound-of-real-a-music-composers-reactions-to-sound-of-metal Biden’s Latest Executive Order Is a Boon for People with Hearing Loss Hearing Health Technology Matters Web site https://hearinghealthmatters.org/findhearing/biden-executive-order-otc-hearing-aids-people-with-hearing-loss/ The Consumerization of Hearing Health Comes of Age Canadian Audiologist Magazine: https://canadianaudiologist.ca/issue/volume-8-issue-1-2021/hearing-health-consumerization/ Music, Sound Quality, and Hearing Aids: An Interview with Brian Moore and Richard Einhorn Canadian Audiologist Magazine: https://canadianaudiologist.ca/issue/volume-5-issue-3-2018/moore-einhorn-interview-feature/

    • 30 min
    Disability and Employment

    Disability and Employment

    This episode features Taryn Williams, the Assistant Secretary of Labor for Disability Employment Policy at the United States Department of Labor. She shares the mission of the Office of Disability Employment Policy (ODEP) and this office's policies and programs aimed at increasing employment opportunities for people with disabilities. She discusses the interconnection between COVID-19 and employment for people with disabilities, including a focus on long-COVID and mental illness, and provides perspective on how the pandemic has created a possibility of more flexible work arrangements and higher education to advance disability inclusion in the workforce.
    Episode Transcript: Click here
    Episode transcripts can be found at http://disabilityhealth.jhu.edu/included/
    A few U.S. Department of Labor Office of Disability Employment Policy key resources:
    National Disability Employment Awareness Month (NDEAM): dol.gov/NDEAM Job Accommodation Network: AskJAN.org Employer Assistance and Resource Network on Disability Inclusion: AskEARN.org Partnership for Employment and Accessible Technology (PEAT): peatworks.org Center for Advancing Policy on Employment for Youth (CAPE-Youth): capeyouth.org ODEP’s new practice brief, Leveraging the Shift to Remote Work to Increase Employment of People with Disabilities:   https://askearn.org/wp-content/uploads/2021/08/EARN_2021_Practice_Brief_Remote_Work.pdf Workplace resources regarding COVID-19 and Long COVID-19, including information about reasonable accommodations and supports: https://www.dol.gov/agencies/odep/topics/coronavirus-covid-19-long-covid

    • 34 min
    Disability and Intersectionality

    Disability and Intersectionality

    Sandy Ho, a White House Champion of Change in 2015, returns to discuss her work supporting the inclusion of people from intersecting backgrounds in disability research and advocacy. She shares a brief history of the connection between intersectionality and the disability justice framework and why an intersectional approach is  key to combating ableism. Sandy is the co-founder of the Disability and Intersectionality Summit, and she discusses this initiative's aim to uplift disabled people of color who experience compounded marginalization. 
    Episode Transcript: Click here
    Episode transcripts can be found at http://disabilityhealth.jhu.edu/included/
    Important Links
    https://www.disabilityintersectionalitysummit.com/
    https://heller.brandeis.edu/community-living-policy/
    https://www.sinsinvalid.org/disability-justice-primer
     

    • 19 min

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