Let's Talk Neurosense: the psychology of neurodiversity

Dr Naomi Fisher and Dr Danielle Drinkwater

A podcast to discuss important issues about neurodiversity. neurosense.substack.com

Episodes

  1. Supporting children without the need for a diagnosis with Claire Mason

    13 MAY

    Supporting children without the need for a diagnosis with Claire Mason

    Children across the UK are waiting for years in order to get a diagnosis of autism or ADHD. And in the meantime, it can be impossible for their families to get the help that they need. Some of them are stuck; without a diagnosis they cannot access support, but waiting lists means that needs are going unmet. Subscribe for free to be the first to hear about our new podcast episodes In Portsmouth, they decided to do something about this. Their Neurodiversity Team provides services and support for 0-19 year olds across the city, without requiring a diagnosis. In consultation with local families, they created a Neurodiversity Profiling tool which aims to identify a young person’s needs so that support can be offered quickly. The whole city was reorganised along needs-led lines - a diagnosis is not used to limit access to education or health services. This exists alongside the diagnostic pathway which some families still go down. Claire Mason is the Neurodiversity Service Lead in Portsmouth, and in this interview she told us all about how it works. She explained how the profiling tool works, what it means in practice and the feedback they’ve had, both negative and positive. If you want to know more about the Portsmouth needs-led approach, click here. This is a public episode. If you would like to discuss this with other subscribers or get access to bonus episodes, visit neurosense.substack.com

    42 min
  2. Who speaks for who in autism with Amy Lutz

    29 APR

    Who speaks for who in autism with Amy Lutz

    Earlier this year a new book, ‘Upward Bound’, garnered a lot of attention. It’s authorship was attributed to non-speaking autistic man Woody Brown. It was covered in the Guardian, the New York Times and the Today Show. It’s part of a long tradition where non-speaking autistic people are credited with the authorship of books and articles that they spell out, letter by letter, with the support of a facilitator. But is it too good to be true? This is a hotly debated area, with some claiming it can be abusive, while others say it’s the key to unlocking a person’s inner life. Amy Lutz is someone for whom this has personal resonance. She has an adult son, Jonah, who she describes as profoundly autistic. Her concerns about how he and people like him are being spoken over led her to do a PhD which became her book ‘Chasing the Intact Mind- How The Severely Autistic and Intellectually Disabled Were Excluded from the Debates That Affect Them Most’.In our discussion, Amy talks about her experience as a parent, her concerns about the potential harms of facilitated communication, and the contradictions of the neurodiversity movement. She also discusses the limitations of the social model of disability when applied to those with severe cognitive disabilities. Amy sheds light on a fascinating and highly contested area of autism from both a personal and academic perspective. This is a conversation you won’t want to miss. This is a public episode. If you would like to discuss this with other subscribers or get access to bonus episodes, visit neurosense.substack.com

    51 min
  3. To diagnose or not to diagnose: how working with children has changed with Helen Kirkaldie

    8 APR

    To diagnose or not to diagnose: how working with children has changed with Helen Kirkaldie

    Dr Helen Kirkaldie is a clinical psychologist who specialises in working with adopted children and their families. She has extensive experience in working with developmental trauma and attachment. In this conversation, she tells us how working with children has changed over her nineteen years of clinical experience, and how, as a society, we seem to have moved towards a more diagnostic framing of children’s differences and difficulties. She talks about how the question of autism or ADHD is now frequently part of her work, when previously it would not have been. We talk about how children’s behaviour and distress can always be viewed through different lenses, depending on the perspective of the adults around them. We discuss the way that professionals try to help, and how a diagnosis can be essential for children and families in accessing support. We talk about the many different roles that a diagnosis plays, and the dilemmas that this creates for professionals and families. This is an honest conversation about the real-life tensions of clinical practice with distressed children and their families. We hope you enjoy it. Thanks for listening to Let's Talk Neurosense: the Psychology of Neurodiversity. Subscribe for free to receive new episodes as they are released. This is a public episode. If you would like to discuss this with other subscribers or get access to bonus episodes, visit neurosense.substack.com

    1hr 1min

Ratings & Reviews

4.4
out of 5
12 Ratings

About

A podcast to discuss important issues about neurodiversity. neurosense.substack.com

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