43 episodes

Our journal of learning about and living with Lichen Sclerosus from a patient's point of view. Bringing community and awareness to a disorder that hardly anyone knows about. Join me as I research Lichen Sclerosus from every angle and share my struggles living with it. My hope is to build a community of survivors so we can affect change in our lives and the research.

Lichen Sclerosus Podcast Kathy

    • Health & Fitness
    • 5.0 • 1 Rating

Our journal of learning about and living with Lichen Sclerosus from a patient's point of view. Bringing community and awareness to a disorder that hardly anyone knows about. Join me as I research Lichen Sclerosus from every angle and share my struggles living with it. My hope is to build a community of survivors so we can affect change in our lives and the research.

    Lichen Sclerosus Provider Directory and an LS Nonprofit?

    Lichen Sclerosus Provider Directory and an LS Nonprofit?

    Hey!!! Welcome! I'm so happy you're here.
    I've got some AMAZING news.
    We have released the searchable provider directory!
    It's ready for you to explore. It's brand new so we have to work out all the kinks as we grow it but it's better than nothing.
    https://lichensclerosuspodcast.com/searchable-lichen-sclerosus-provider-database/
    We have some equally exciting news.
    We are turning Lichen Sclerosus Support Network into an official nonprofit! Our mission will be to prevent the negative emotional and mental health effects that can come with an LS diagnosis.
    That's right we are going to spread the message even further and help more people.
    So if you can help, please do your part because it's going to take the whole community.
    Check out our new webpage and read all about the exciting things we have coming.
    https://lichensclerosuspodcast.com/nonprofit
    Donate:
    https://fundly.com/lichen-sclerosus-support-network#
    I can't wait to hear your reaction. Let me know what you think and how you can help the community. Email me at kathy@lichensclerosuspodcast.com or DM me on IG @lichensclerosuspodcast.

    • 29 min
    Acceptance and Resilience: A Round Table Discussion

    Acceptance and Resilience: A Round Table Discussion

    Hey! Welcome! I’m so glad you are here with us today! We are going to shake this up a bit and have a live round table discussion about the concepts of acceptance and resilience with some members of the LS Warriors membership. The concepts of acceptance and resilience are critical to living with a disease such as Lichen Sclerosus. In this round table discussion, I will ask our participants a series of questions relating to these concepts and Lichen Sclerosus.
    I would love to hear your thoughts on acceptance and resilience. Email me at Kathy@lichensclerosuspodcast.com or DM me on IG @lichenslcerosuspodcast.
    Join our next LS Support Virtual Meetup from 2-4 and 7-9 PM EST. at https://lssupport.net/connect.
    Or join LS Warriors for 24/7 support and information. https://lssupport.net/lswarriors.
    Reach out to Jaclyn by email at lostlabiachronicles@gmail.com or DM her on IG @thelostlabiachronicles.
    Also, be sure to join her email list so you get notified when she releases a new blog post. https://lssupport.net/jointllc
    Support our sponsor Lichen Sclerosus Support Network by following them on IG @lichensclerosussupportnetwork and check out their website https://lssupport.net for all the ways they can support you on your LS journey.

    • 56 min
    How to Find Peace After Stress Triggers Your LS, Jennifer's Story

    How to Find Peace After Stress Triggers Your LS, Jennifer's Story

    I’m so glad you are here with us today. In today’s episode, we are joined by Jen, one of the LS Warriors! She is here to share the amazing story of her journey with Lichen Sclerosus. Jen’s journey involves a traumatic birth and a lot of stress to her vulva and vagina. She discusses what this process was like, how her symptoms manifested after the birth of her daughter, her diagnosis, and how she now deals with stress and Lichen Sclerosus.
    If you want to reach out to Jen, you can message her on Twitter and/or Instagram @jenpatala.
    Email me at Kathy@lichensclerosuspodcast.com or DM me on IG @lichenslcerosuspodcast.
    Join our next LS Support Virtual Meetup from 2-4 and 7-9 PM EST. at https://lssupport.net/connect.
    Or join LS Warriors for 24/7 support and information. https://lssupport.net/lswarriors.
    Reach out to Jaclyn by email at lostlabiachronicles@gmail.com or DM her on IG @thelostlabiachronicles.
    Also, be sure to join her email list so you get notified when she releases a new blog post. https://lssupport.net/jointllc
    Support our sponsor Lichen Sclerosus Support Network by following them on IG @lichensclerosussupportnetwork and check out their website https://lssupport.net for all the ways they can support you on your LS journey.

    • 44 min
    Lichen Sclerosus and Diet? Does the research look good?

    Lichen Sclerosus and Diet? Does the research look good?

    Today we are joined by Erica Ebrel, a registered dietician and fellow Lichen Sclerosus warrior. Erica is here to talk to us about the relationship between the food we eat and Lichen Sclerosus. She is going to tell us all about what the research says, what we should do if we are interested to know if diet impacts our Lichen Sclerosus, and weighs in on some popular Lichen Sclerosus diets (e.g., low-oxalate).
    I am so grateful for this amazing conversation with Erica. If you want to reach out and talk to her, you can find her on Instagram @ericasappletite or email her at ericaeberl.dietition@gmail.com.
    Let me know if diet affects your LS or if you're trying to figure that out. Email me at Kathy@lichensclerosuspodcast.com or DM me on IG @lichenslcerosuspodcast.
    Join our next LS Support Virtual Meetup from 2-4 and 7-9 PM EST. at https://lssupport.net/connect.
    Support our sponsor Lichen Sclerosus Support Network by following them on IG @lichensclerosussupportnetwork and check out their website https://lssupport.net for all the ways they can support you on your LS journey.

    • 51 min
    How could nutrition therapy help heal your Lichen Sclerosus?

    How could nutrition therapy help heal your Lichen Sclerosus?

    This week we're talking to Heather Cooan once again. If you did not get a chance to check out Heather's diagnosis story, which were the previous two episodes, go back and listen because she shared her amazing story of how she found out she had vulva cancer and how it changed her life. Post healing she was looking for how she could get into the natural healing space to pay it forward and help other women. This led her to her new field and love of nutrition, where she ultimately become a nutrition therapy practitioner and a  functional diagnostic nutrition practitioner.
    Today we’re going to find out exactly what they do and how she could help us heal our Lichen Sclerosus.
    If you’re interested in leaky gut or how hormones or food sensitivities trigger our LS this is the episode for you.
    Find out what buckets are triggering your health issues by taking Heather's test at https://heathercooan.com/lspodcast.
    While you're there be sure to schedule a free consultation with Heather and follow her on her social media platforms.
    Email me at Kathy@lichensclerosuspodcast.com or DM me on IG @lichenslcerosuspodcast and let me know your experiences with nutrition.
    Or better yet join our next LS Support Virtual Meetup every other Saturday from 2-4 and 7-9 PM EST. at https://lssupport.net/connect and tell me in person.
    Support our sponsor Lichen Sclerosus Support Network by following them on IG @lichensclerosussupportnetwork and check out their website https://lssupport.net for all the ways they can support you on your LS journey.

    • 59 min
    How Self-Advocating Actually Helped Beat Vulvar Cancer

    How Self-Advocating Actually Helped Beat Vulvar Cancer

    Today we are joined (again) by therapeutic nutrition consultant, LS warrior, and cancer survivor, Heather Cooan. Last episode we heard her diagnosis story. Unfortunately, Heather went undiagnosed for over 25 years, allowing her Lichen Sclerosus to develop into vulvar cancer. This was a gross failure of the medical system.
    In today’s episode, we learn how Heather advocated for herself and fought for her values. Today her Lichen Sclerosus is in remission and she is now cancer-free! Her story reminds us of the importance of self-advocacy in the medical realm.
    Be sure to subscribe so you don't miss the next episode where Heather details how a Nutrition Therapist can help us get healthy.
    I want to hear from you. What has advocating for yourself done in your life? Email me at kathy@lichensclerosuspodcast or DM me on Instagram @lichensclerosuspodcast.
    I want to thank our sponsor, the Lichen Sclerosus Support Network (LSSN) for making this podcast possible. LSSN is helping bring awareness, information, education, and most importantly support to all Lichen Sclerosus warriors.


    Be sure to follow them on IG and FB @lichensclerosussupportnetwork.
    Resources:
    If you are in the Phoenix area, check out Dr. Joseph Brook’s here: https://www.arizonaspecializedgynecology.com/provider/joseph-brooks-md
    Dr. Bhoola: https://arizonaoncology.com/covid19/
    If you are battling vulvar cancer, check out the vulvar cancer awareness forum here: https://www.facebook.com/vulvarcancerawarenessforum/
    For nutritional consultations, see Heather’s website: https://heathercooan.com/
    If you haven't joined the email list for The Lost Labia Chronicles, a blog about beating Lichen Sclerosus, you want to do that today.
    https://lichensclerosuspodcast.com/lost-labia-chronicles-landing-page/
    Be sure to follow her on IG and FB @thelostlabiachronicles.
     

    • 40 min

Customer Reviews

5.0 out of 5
1 Rating

1 Rating

lizzie tolley ,

Desperate

I was totally desperate and I found these podcasts and it’s been a life saver
Finally finding all this information
I have LS and it’s not good I have regular flairs
I felt so alone and one day I was searching thru podcast and I found Kathys podcast
At last some help

Thankyou

Lizzie

UK

Top Podcasts In Health & Fitness

Listeners Also Subscribed To