31 episodes

Explore the spectrum of adventure sports and outdoor living, through narratives and interviews from people living with epilepsy.

From long-distance hikes in Europe to skiing in snowstorms, the storytelling episodes will share life-changing journeys and the smaller moments spent between seizures.

The ‘chats’ with guests dive into the deeper stuff, the hidden aspects of taking on adventures with epilepsy - from carrying medication in a backpack, to assessing seizure risks in the wilderness and recognising limitations.

Learn about epilepsy, then start planning your adventure.

Seize Your Adventure Francesca Turauskis

    • Wilderness
    • 5.0 • 9 Ratings

Explore the spectrum of adventure sports and outdoor living, through narratives and interviews from people living with epilepsy.

From long-distance hikes in Europe to skiing in snowstorms, the storytelling episodes will share life-changing journeys and the smaller moments spent between seizures.

The ‘chats’ with guests dive into the deeper stuff, the hidden aspects of taking on adventures with epilepsy - from carrying medication in a backpack, to assessing seizure risks in the wilderness and recognising limitations.

Learn about epilepsy, then start planning your adventure.

    A LIVE Chat with Frankie York: Surfing and learning how to adventure with epilepsy

    A LIVE Chat with Frankie York: Surfing and learning how to adventure with epilepsy

    Back in July, Seize Your Adventure grew a little bit bigger. Francesca York (who luckily goes by Frankie to stop any confusion!) has volunteered her help over the next few months as an SYA Intern and it will be great to get her fresh eyes/ears on things.

    This episode shares the Instagram LIVE conversation me and Frankie had back in August, where we got to learn a little bit more about her, and how she seizes her adventure.

    We talked about:


    Learning to surf (because of a boy...)

    The dangers of surfing with epilepsy, and some close calls

    How your choices regarding risk can affect others

    The best way to learn to surf as a beginner

    How surfing can be addictive and becomes a lifestyle

    Learning to listen to your body when you have epilepsy

    Speaking to lifeguards about your epilepsy

    Basic safety in the water when surfing

    Plans for Frankie's study abroad year in Spain...


    Frankie is hard at work on her own episode about her relationship with surfing, and how people have helped her through her diagnosis., so make sure you are subscribed to hear that episode later in the year.

    CONTENT WARNING: We talk about some close calls with surfing, and the potential consequences of having a seizure in water.

    Disclaimer: Please remember this is Frankie' personal experience. We take no responsibility for individual decisions made with regards to adventure sports or medical conditions.

    SUPPORT THE PODCAST:

    Become a patron to support the podcast and continue telling stories of epilepsy in adventure. Sign up for as little as $3 a month (that’s  less than the price of a coffee!!). All Patrons will get extra content every month, even between seasons, and Patrons at $5 and above get bonus episodes. Find out more at patreon.com/seizeyouradventure. You can also make a one-off donation at https://www.paypal.me/seizeyouradventure.

    MUSIC:

    Kev Rowe on Soundcloud | Creative Commons Attribution License

    TRANSCRIPT ON ITS WAY.

    I am working to try and get accurate transcripts for all the Seize Your Adventure episodes. In the meantime, you can find most episodes on YouTube for auto transcription.

    • 31 min
    A Chat with Chris Winwood: Endurance cycling, backcountry hikes and working in adventure with epilepsy.

    A Chat with Chris Winwood: Endurance cycling, backcountry hikes and working in adventure with epilepsy.

    Chris is an Epilepsy Education & Outreach Worker for the British Columbia Epilepsy Society and in summer last year Chris also raised money for BCES by cycling from Prince George to Jasper - a distance of 375KM - in just two days.
    (N.B. I can't add up and in the podcast I say 275KM... Sorry Chris!)
    Chris is a hardcore adventurer. I was introduced to Chris about a year ago, via the British Columbia Epilepsy Society. Chris is an Epilepsy Education & Outreach Worker for the BCES.

    As well as his work for BCES, he’s also a ski instructor, and he did a BA in Nature Based Tourism at university. His Facebook page always shows beautiful pine forest, trees and rocks and rocks and trees and the odd lake.

    Chris' lifestyle, his career and his independence really relies on being healthy and able drive.

    We talked about:

    -His first seizure when he was 21 years old

    -Having to give up driving

    -Depression due to epilepsy

    -Reaching a moment of crisis due to depression

    -How his friends, family and colleagues supported him (and how some didn't...)

    -Laughing about his own condition

    -Working for British Columbia Epilepsy Society

    -His Facebook videos talking about epilepsy

    -Mitigating epilepsy risks in the backcountry

    -Leaving a trip line when going on solo adventures

    -Finding good friends to adventure with

    -Hiking the Chilkoot Trail in the Yukon

    -Turning to road cycling because he couldn't drive

    -His 375km cycling challenge...

    -And (of course) bears!!


    CONTENT WARNING: Chris talks about depression due to epilepsy, misuse of alcohol and a moment of crisis in this episode. If you want to skip that part of the chat, the conversation about his adventure life starts at 20 minutes.

    CONTENT WARNING 2: There is the smallest swearword in there.

    Disclaimer: Please remember this is Chris' personal experience. We take no responsibility for individual decisions made with regards to adventure sports or medical conditions.

    If you have depression, or would like to talk to someone about your mental health and how you feel, if you are in the UK you can contact Mind for information and support or contact the Samaritans if you are in crisis. Those in Canada can contact Crisis Services Canada. 

    VISIT CHRIS' FACEBOOK PAGE:

    The Diaries of an Epileptic Dirtbag Otaku

    SUPPORT THE PODCAST:

    Become a patron to support the podcast and continue telling stories of epilepsy in adventure. Sign up for as little as $3 a month (that’s $1.50 per episode - less than the price of a coffee!!). Find out more at patreon.com/seizeyouradventure. You can also make a one-off donation at https://www.paypal.me/seizeyouradventure.

    MUSIC:

    Kev Rowe on Soundcloud | Creative Commons Attribution License

    • 43 min
    Epilepsy, Pregnancy and Birth with Jewel Gibson

    Epilepsy, Pregnancy and Birth with Jewel Gibson

    In this bonus episode we get to hear some more of my chat with mom, wife, teacher and blogger, Jewel Gibson. I asked Jewel to tell me a bit more about the specifics of have a baby when you have epilepsy.

    Last time, we heard about Jewel’s path to an epilepsy diagnosis, and her personal challenge of running the New York Half Marathon to raise epilepsy awareness. We also heard that Jewel is diagnosed with ‘catamenial seizures’ - seizures that are affected or triggered by changes in hormones.

    But I was also really interested to learn more from Jewel as a mom. As well as her blog, Jewel has also done a short podcast series called Well Fit Mama. So what does it take to be a Well Fit Mama? And how did epilepsy affect her pregnancy? I asked her about what steps she had to take to make sure both she and the baby were safe, and whether there was anything she wanted to say to other women with epilepsy who want to have children.

    Jewel was already a Mom, but she didn’t have epilepsy when she was pregnant the first time.

    A QUICK WARNING: Jewel does talk about the later stages of childbirth and aspects such as epidurals in semi-graphic detail around 7.30 minutes after the start of the actual conversation.

    Disclaimer: Jewel does talk about specifics with medication and birth choices. She is talking about her personal experience with pregnancy and childbirth whilst living with epilepsy. Other’s experiences and situation may vary.

    VISIT JEWEL'S BLOG:

    https://lifesajewel.com/

    WELL FIT MAMA PODCAST:

    https://thewellfitmama.com/

    SUPPORT THE PODCAST:

    Become a patron to support the podcast and continue telling stories of epilepsy in adventure. Sign up for as little as $3 a month (that’s $1.50 per episode - less than the price of a coffee!!). Find out more at patreon.com/seizeyouradventure. You can also make a one-off donation at https://www.paypal.me/seizeyouradventure.

    TRANSCRIPT ON ITS WAY.

    I am working to try and get accurate transcripts for all the Seize Your Adventure episodes. In the meantime, you can find most episodes on YouTube for auto transcription.

    • 14 min
    A Chat with Jewel Gibson: Catamenial Seizures and Running with Epilepsy

    A Chat with Jewel Gibson: Catamenial Seizures and Running with Epilepsy

    Jewel Gibson is a mom, a wife, a teacher,  and a blogger from Brooklyn, New York. Her Instagram and blog, Life's A Jewel, focuses on motherhood and encouraging women to live healthier lives, experience fulfilling relationships and conquer parenthood fashionably. She also uses her platform to talk about the day-to-day challenges navigating a seizure disorder.

    Jewel was an athlete and runner in highschool, so when she saw  an advert from The Epilepsy Foundation of Metropolitan New York about running the United Airlines Half Marathon, she figured it would be fun to try. She wanted to run to help eliminate the stigma about epilepsy and seizures, as well as raise awareness within the community.

    But when Jewel started training, she realised that her seizures and epilepsy were going to make running more difficult than she remembered! Jewel couldn't find any information on running with epilepsy, and how this might affect the way you train. She had to figure it out on her own and learn how to run without aggravating the condition. 

    In today's episode Jewel talks about:


    Her first seizures and difficult EMT experience

    The confusion between pseudo/non-epileptic seizures and epileptic ones

    The difficulty getting to her diagnosis of 'catamenial' seizures

    How her family supported her through her diagnosis

    Learning to accept help when her seizures were bad

    Hiding her epilepsy at work

    Starting a blog because she didn't see other Black people talking about epilepsy

    Why she decided to do the NY Half

    The COLD New York weather during training!

    How running makes her feel free

    The anxiety around seizures and when they might happen

    Deciding what to tell her students when she has a 72 hour EEG

    Balancing being a mom/wife/woman/teacher

    How the 'adventure' question made her realise how adventurous her life is!

    And more...

    DEFINITIONS:

    Catamenial  seizures - seizures that are affected or triggered by changes in hormones

    Pseudoseizures -  Now more commonly known as psychogenic seizures, which are not caused by electrical activity in the brain.  Also called Non-epileptic seizures (NES), dissociative seizures, non-epileptic attacks. The name 'pseudoseizure' is an older term. In the UK it is not used because it suggests the person is not having 'real' seizures.

    VISIT JEWEL'S BLOG:

    https://lifesajewel.com/

    WELL FIT MAMA PODCAST:

    https://thewellfitmama.com/

    SUPPORT THE PODCAST:

    Become a patron to support the podcast and continue telling stories of epilepsy in adventure. Sign up for as little as $3 a month (that’s $1.50 per episode - less than the price of a coffee!!). Find out more at patreon.com/seizeyouradventure. You can also make a one-off donation at https://www.paypal.me/seizeyouradventure.

    MUSIC:

    Kev Rowe on Soundcloud | Creative Commons Attribution License


    TRANSCRIPT ON ITS WAY. In the meantime, autotranscripts are on YouTube.

    • 41 min
    Cath Shanks Takes Over: Skateboards, Slacklining and Urban Exploring with Epilepsy

    Cath Shanks Takes Over: Skateboards, Slacklining and Urban Exploring with Epilepsy

    On Tuesday 19th May, I handed over the Seize Your Adventure Instagram account to Cath Shanks,  a skate coach who was diagnosed with temporal lobe epilepsy in 2010. In this bonus episode, you get to hear how it went, and listen to the Instagram Live interview we had afterwards.
    I've only discovered Cath recently, and her account @specialeptic is still new. But the account is a mix of great fun and heart-breakingly honest:

    "SOME DAYS.... some days are harder than others. some days are that little bit darker. some days it’s not even the seizures that are the problem. some days I think I’d rather have seizures than take meds. some days it’s just a little bit too much to cope with. some days I can pull myself out of the rut, some days I can’t. some days Epilepsy sucks WAY MORE than others. some days I just wish I had a different brain. some days, like today."

    Cath has also been learning to slackline during lockdown. Which is just so cool. You can see some of her progress on her YouTube channel.

    Cath talks about:


    Her cocktail of epileptic seizures

    Learning to skateboard as an adult

    Why an all-woman skateboarding lesson was perfect for her

    Having a seizure whilst teaching at summer camp

    How she got a job teaching skateboarding

    The comfort she has found in the epilepsy community

    Doing jigsaws in lockdown

    And more...


    Find Cath on Instagram as @specialeptic

    SUPPORT THE PODCAST:

    Become a patron to support the podcast and continue telling stories of epilepsy in adventure. Find out more and sign up at patreon.com/seizeyouradventure. You can also make a one-off donation at https://www.paypal.me/seizeyouradventure.

    MUSIC:

    Kev Rowe on Soundcloud | Creative Commons Attribution License

    This interview will have an auto transcript on YouTube soon!

    • 15 min
    A Chat with Jared Muscat: Surfing, Paddleboarding and Epileptic Opportunity

    A Chat with Jared Muscat: Surfing, Paddleboarding and Epileptic Opportunity

    For Jared Muscat, surfing has been a passion, an obsession, and in his own words an addiction, since he was a teenager. Surfing was part of what led Jared to his current job working for the outdoor clothing company Patagonia. And it was on Patagonia’s blog that I first read some of Jared’s story about surfing with epilepsy, his hard epilepsy diagnosis and journey, and a paddleboarding challenge he did to raise awareness for the condition.
    It slightly surprised me to realise that I haven’t had any sea-based adventurers on the podcast yet. The ocean has often offered ‘adventure’ in the traditional sense - the swashbuckling, finding new lands kind of adventure.

    But whilst the heyday of adventure on the high seas is over, in today’s conversation, we talk about how the power and unpredictability of the sea can still offer adventure of the everyday kind.

    In today's episode Jared talks about:


    Having brain surgery to stop seizures

    Not being allowed to surf post-surgery

    How yoga helped him with his recovery

    Whether removing his amygdala has affected his fear levels!

    How he got into surfing as a teenager

    His path to working for Patagonia

    How encouraging his Patagonia team have been

    Previous employer's discrimination because of epilepsy

    Paddleboarding when you can't surf

    'Paddling Towards a Cure' - paddleboarding 17 miles for epilepsy awareness

    His reaction when doctors told him to stop surfing because of epilepsy

    What is Epileptic Opportunity?

    The importance of a good support network with epilepsy

    What 'adventure' means to him

    And more!


    READ JARED'S BLOG POST:

    Paddling Towards a Cure

    CONNECT WITH JARED:

    Instagram: @jaredamuscat

    SUPPORT THE PODCAST:

    Become a patron to support the podcast and continue telling stories of epilepsy in adventure. Find out more and sign up at patreon.com/seizeyouradventure. You can also make a one-off donation at https://www.paypal.me/seizeyouradventure.

    FOLLOW SEIZE YOUR ADVENTURE:

    Instagram: @SYAdventurers

    Facebook: @SYAdventurers

    Twitter: @SYAdventurers

    MUSIC:

    Kev Rowe on Soundcloud | Creative Commons Attribution License

    I AM STRIVING TO MAKE SEIZE YOUR ADVENTURE ACCESSIBLE. TRANSCRIPTS WILL BE AVAILABLE ON THE WEBSITE.

    • 37 min

Customer Reviews

5.0 out of 5
9 Ratings

9 Ratings

matchboxninja ,

Super educational & well produced!!

This podcast is so informative in not only understanding the different types of epilepsy and the huge variety of ways that individuals manage their symptoms, but also in understanding and relating to their stories of how they keep on adventuring. As someone who doesn't have epilepsy, it's been invaluable in educating me so that I can have better, and more respectful, conversations with others who do have epilepsy, and also inspires me to keep on adventuring. I absolutely adore the way that this podcast has been put together; it's super professional and highly entertaining! Thank you Fran!

frankie_dewar ,

Inspiring podcast for everyone

Having grown up with family members with epilepsy I can personally relate to so many of the stories messages and Challenges in this podcast. I think it’s incredible how much of a light it shines on developing independence and making the outdoors more accessible.

The stories are so inspiring and I would recommend this podcast to anyone whether they have epilepsy or not!

Thank you for the huge inspiration!

Cheesits-in-my-orange-soda ,

Inspiring!

This is a hugely inspiring podcast! I’ll be recommending it for any of the students that I work with who may be nervous about adventuring either with epilepsy or other conditions that aren’t necessarily discussed frequently in the outdoor world!

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