A seriously funny take on life from the disability driven duo... Simon Minty and Phil Friend.
Get Up, Stand Up for Your Rights (and micro-aggressions)
Delivering training on disability means you get some excellent questions on the subject. A colleague of ours was recently asked, ‘Is impotence a disability under the Equality Act?’ We try and work it out by exploring the impact and then ask, what sort of discrimination might arise to see a case?
After last month’s hugely popular show about the word Ableism we move to another relatively new term - microaggressions. Defined as ‘an indirect, subtle or unintentional form of discrimination, we ponder when to let it slide and when do you tackle it? We wonder what might be the impact on someone after a 1000 of these?
WeThe15 campaign launched recently. Their website states, ‘WeThe15 is sport’s biggest ever human rights movement to end discrimination…of the world’s 1.2 billion persons with disabilities who represent 15% of the global population.’ Phil has some doubts, what is different, what change will come about or is it another campaign that lights up the sky before fading? Or as Simon suggests, is this is what’s needed, constant wheel-reinvention to keep the agenda moving forward?
Geoff tells us about two of his current favourites - The White Lotus and Have You Heard George’s Podcast? We round off with a bumper Listeners Corner. Maybe we mention you? Take a listen via the link below.
Erectile dysfunction (impotence) defined
There are many blogs that explore this subject well. Have a search and read. Here’s one from the BBC on language.
The White Lotus on Sky
The White Lotus IMDB
Have You Heard George’s Podcast? George the Poet
Ableism doesn’t mean what you think it means.
Have you noticed a change in how disability is discussed? For example, words like ‘ableism’ and ‘internalised ableism’ are perhaps not mainstream but more commonplace, especially on social media.
We were thrilled when Professor Fiona Kumari Campbell, Professor of Disability and Ableism Studies, University of Dundee, agreed to come on the show. In an authoritative and entertaining interview, Fiona explains the most dominant use of ‘ableism’ isn’t as intended. Fiona’s concerned it is being used as a sledgehammer, without explanation, and its hostile use creates them and us. Fiona reminds us social theories are explanatory narratives, making sense about the world and a watershed moment for some, but they are theories, the social model isn’t a fact. Fiona suggests being disabled can be a constant state of ambivalence with the negative reminders we frequently receive having a cumulative impact. Fiona encourages us to have dialogue, to listen and above all else, to read more.
It’s a treat to listen, think and absorb Fiona’s thinking, her concerns about what is happening, what’s been lost along with what we can do and what we need to think about in the future.
And some reading and watching recommendations for you, Geoff returns with his Cultural Corner. This month it’s Mare of Easttown and The Shipping News.
Professor Fiona Kumari Campbell, is Professor of Disability and Ableism Studies in the School of Education & Social Work, University of Dundee, Fiona is an interdisciplinary scholar-activist and not a traditional academic, being biracial, disabled, LGBT and from a religious minority background. Fiona has written extensively on issues related to disability – a philosophy & sociology of ableism, disability in Sri Lanka, law, biotechnology and is recognised as a world leader in scholarship around studies in ableism.
Further information and links
Papers and publications on Academia Educ
Contours of Ableism - Professor Fiona Kumari Campbell, Palgrave Macmillan, 2009
Internalised Ableism: The Tyranny Within from Contours of Ableism (also Internalised Oppression)
United Nations Human Rights video - What is Ableism?
People and topics Fiona makes reference to
Sayonara CP / Goodbye CP
Japanese film featuring people with Cerebral Palsy 1972
Theory as a Liberatory Practice “I saw in theory…a location for healing”
bell hooks, Glorian Jean Watkins
Articulating a sociology of desire exceeding the normative shadows
by James Overboe
"I refuse to be an accountant of atrocity." Randall Kennedy
BBC article on micro-agressions and ableist language
NCCJ Handy primer with disability essentials
Thank you to
Disability and ability coexist
A full show, we have several current topics and two brilliant guests. Author Victoria Scott has written a book that is, influenced by her relationship with her sister (who is disabled) and the family dynamics when deciding if medical intervention is the right path. Geoff Adams-Spink tells us about Netflix smash, Lupin plus a new Radio 4 show, The Confessional where celebrities admit to behaviour they are not always proud of.
And of course, you have Phil and Simon rattling through topics that have got them thinking. Simon cites disabled lawyer, Gregory Mansfield, whose insightful tweets show disability and ability happily co-exist and blasts those who get stuck at the ‘dis’ part. Phil wonders if Ambassadors actually have power and influence. We also discuss the seemingly more easy question of compulsory vaccinations for people working in care or support roles.
Links to everything are below. We hope you enjoy the show.
Gregory Mansfield on Twitter
FT Vaccine compulsory for some jobs Paywall
BBC New disability Ambassador
Netflix Lupin trailer on YouTube
BBC Radio 4 The Confessional
Victoria Scott on Twitter
Patience by Victoria Scott Bookstore
Patience by Victoria Scott Goodreads
Struggling or Floundering? When do you help a disabled person?
In her recent Guardian article, Dr Frances Ryan raised concerns that ‘Remote working has been life-changing for disabled people, don’t take it away now‘ As we come out of lockdown, we know that some companies are expecting employees to be back in the office 9 to 5, seven days a week. Ryan also flags up concerns regarding cultural events. Is there a new risk that organisers might say disabled people can watch it online rather than making the event or venue accessible?
When two of Simon’s neighbours react differently to an on the street altercation he has, what should they do? What’s the difference between supporting versus defending? Can you tell when a disabled person is struggling but ok, compared to floundering and not ok?
Cultural Corner has us singing and getting the lyrics wrong after Geoff tells us about BBC’s Soul Music. We’re laughing when we hear of Jenny Eclair’s latest radio show, Little Lifetimes.
Remote Working by Dr Frances Ryan
Little Lifetimes by Jenny Eclair On Audible and On BBC Sounds
BBC Soul Music
Africa by Toto
Missed it by half a second!
One person, many facets: disability, ethnicity, mental health, being a woman and youth.
On this month's show, we are delighted to welcome Doaa Shayea. In her 22 years, she has packed in an extraordinary amount.
Doaa talks frankly about her mental health challenges and what she's learned about herself and the world she lives in. Energetic, resilient and determined, she faces the future with optimism and confidence. She also believes as disabled people we mature much more quickly that others as we become aware of others around us ands their reactions.
Born in Yemen with spina bifida. She and her family settled in the UK when she was aged 6. Attending a special school in the UK, Doaa quickly learned how to survive
At the age of 11, she was spotted as a potential wheelchair track star (Simon is so jealous) and still trains twice a day, every day. Doaa set up her beauty business in 2019 and has added disability advocate to her working portfolio.
As a young woman of colour with a disability, as you will hear, she has faced all sorts of difficulties. She missed out on the qualifying time for the Rio Paralympics by half a second.
It’s a compelling story, from someone who appears to have so much on her shoulders whilst maintaining her self-belief. Her motto: "In order to be the best you've got to fail hundreds of times and be strong enough to keep getting up."
BBC article on Dooa
Dooa Shayea Socials
Say the Word
If you use the word ‘disabled’ with something you’re promoting, do people switch off? If you create a product to assist a disabled person but ignore this, are you authentic? Are products created for disabled people only used by disabled people…except the telephone, electric can openers, electric windows, pre-cut fruit, voice dictation, automatic doors…but other than these…?
Does the word ‘disability’ point to a history, to culture, to shared experience?
Is using the word ‘disabled’ appropriate when talking about someone who has a long term or chronic health condition? Where do ‘Energy Limiting Impairments’ fit? Does the social model struggle to get going when an individual struggles to get going?
All these questions provide a rich source for Phil and Simon to discuss and debate. The questions come from new research into energy limiting impairments and Nike promoting their new Go Fly Ease trainer. We have a contribution from Lawrence Carter-Long, Director of Communications at DREDF (In California) and #SayTheWord evangelist. We wrap with your letters and emails.
We don’t profess to have all the answers, and we know there are gaps. Let us know your thoughts email@example.com
Slate Article - Nike’s avoidance of the word Disabled
NPR Article - Disabled - Say The Word
Twitter feed - Peeled Orange Phenomenon
Nike Fly Ease Shoes
Research reports recently published about, Energy Limiting impairments
People we mention
Catherine Hale Twitter
Chronic Illness Inclusion Twitter
Katie Elizabeth Twitter
Marie Pye Twitter
Kay Allen OBE Twitter
Lawrence Carter Long Twitter
Ross Hovey YouTube
Ross Hovey Instagram
Russell Silver Syndrome Podcast
Dope Black Disabled
Warm discussion between two good friends highlights current issues
Phil and Simon are lovely to listen to, from having a laugh about life or an in-depth debate about the most troublesome ethical issues about accessibility and inclusion. They're the reason I subscribed to Netflix (to watch Crip Camp) and I'm really enjoying Geoff's cultural recommendations. Thank you!
Declaration of Interest
I should declare an interest at the very beginning of this review – this is one amazing podcast, by two people who are very well known to me and who I consider to be very good friends. Mind you, lots of my friends make podcasts and very few of them get a review out of me.
Phil and Simon bring their combined years of experience in the disability field to bear on current events and debates. Sometimes the two of them chew the fat and other times they interview someone. In both instances, the result is an extremely thoughtful and an essential hour’s listening for anyone with even a passing interest in the world of disability.
If you want disability demystified, you come to the right place.
Dad to a disabled boy, listening to these guys is an education and provides clarity to a lot of the issues we deal with every day.