When Life Gives You Parkinson's Curiouscast

SUMMARY: In the book, “Mary & Me,” author Robyn Cotton draws upon her own experiences with Parkinson’s in a fictional novel based in contemporary times and early 1800’s London, England when Dr. James Parkinson was roaming the streets and noticing a condition, he called shaky palsy. Not often does Parkinson’s play such a key role in a fictional piece of work, Robyn’s journey grounds the book in near-real experiences as she and her characters struggle with the degenerative brain disease. 

EMAIL Larry and Rebecca: ParkinsonsPod@curiouscast.ca
Have questions, comments, or a story idea? We would love you to click here and leave a message https://www.speakpipe.com/WhenLifeGivesYouParkinsons

Follow us, Larry & Rebecca Gifford 
Twitter: @ParkinsonsPod
Facebook: Facebook.com/ParkinsonsPod
Instagram: @parkinsonspod

KEY LINKS 
“Mary & Me” by Robyn Cotton – Buy it on Amazon
The BC Brain Wellness Program
Tightrope Theatre – “Playing with Words” workshops and the more intense “Express Yourself” six-week course with Rebecca Gifford are open for registration. 

Thanks to 
Dila Velazquez – Story Producer

Our Promotional Partners include: 
Diagnosed with Parkinson’s? You are not alone. Contact presenting partner Parkinson Canada http://www.parkinson.ca/, call the toll free hotline 1-800-565-3000 or on Twitter you can message @ParkinsonCanada.
Thanks also to our content and promotional partners 
The Michael J. Fox Foundation Parkinson’s Podcast hosted by Larry Gifford as featured in the MJFF2021 Year in Review. 
PD Avengers – We are building a global alliance to end Parkinson’s. Join us. 
World Parkinson Congress 2023 – It’s time to start thinking about making your plans to join us for #WPC2023 in Barcelona, Spain for the sixth triennial congress. 
Spotlight YOPD – The only Parkinson’s organization dedicated to raising awareness for Young Onset Parkinson’s disease and funds for the Cure Parkinson’s Trust. 

Larry & Rebecca Gifford highlight two Canadians with Parkinson’s who are sparking awareness, raising money and building community by riding their bicycles across every Canadian Province over the next three months. 

Jim Redmond and Steve Iseman take a break from pedaling to sit down with Larry at picnic table outside their RV on Day two of the journey when they stopped at the Capilano River RV Park in West Vancouver. 

Thank you for listening. Add your voice to the show and leave a message for us here; https://www.speakpipe.com/WhenLifeGivesYouParkinsons

Follow us, Larry & Rebecca Gifford 

Twitter: @ParkinsonsPod

Facebook: Facebook.com/ParkinsonsPod

Instagram: @parkinsonspod

Thank you to the following people and organizations featured in this episode:

Jim Redmond  - LISTEN to Jim’s episodes from Season One 

Parkinson’s Doesn’t Have to Be a Career Killer.  

Hope, Fear, Frustration and Levadopa

Steve Iseman   

Mike Loghrin

Darlene Richards-Loghrin

WANDA (The RV)

Diagnosed with Parkinson’s? You are not alone. Contact presenting partner Parkinson Canada http://www.parkinson.ca/, call the toll free hotline 1-800-565-3000 or on Twitter you can message @ParkinsonCanada.

Here is a link to Parkinson Canada’s “Together: No Matter What” campaign

Thanks also to our content and promotional partners

The Michael J. Fox Foundation Parkinson’s Podcast hosted by Larry Gifford

Spotlight YOPD – The only Parkinson’s organization dedicated to raising awareness for Young Onset Parkinson’s disease and funds for the Cure Parkinson’s Trust.  

PD Avengers –  We are building a global alliance to end Parkinson’s. Join us.

World Parkinson Congress 2023 –Make plans to join us for #WPC2023 in Barcelona, Spain.

Credits

Dila Velazquez – Story Producer

Greg Schott – Sound Design

This is part one of three of a mini-series of episodes we are calling “Down Under.” Host Larry Gifford gets you ready for World Parkinson’s Day. Learn about the new international symbol for Parkinson’s disease named “THE SPARK” and how you can use it.  Where to watch the world premiere of the new documentary “The Long Road to Hope: Ending Parkinson’s Disease.” The Parkinson Unity Walk in Central Park in New York City is going to take place April 23. IF you can’t make it, you can still participate, we’ll tell you how.  

The featured guest is Founder of PD Warrior and the Insight into Parkinson’s virtual conference Melissa McConaghy, FACP. Melissa takes us behind the curtains of PD Warrior and gets us ready for Insight into Parkinson’s Conference.

We discuss stigma, self care, and neuro plasticity.

Thank you for listening.

EMAIL US: ParkinsonsPod@CuriousCast.ca  

Have questions for Larry & Rebecca?  Want to share how your conversations go with your partner? We would love you to click and call us here.   https://www.speakpipe.com/WhenLifeGivesYouParkinsons

Follow us, Larry & Rebecca Gifford 

Twitter: @ParkinsonsPod

Facebook: Facebook.com/ParkinsonsPod

Instagram: @parkinsonspod

KEY LINKS FOR THIS EPISODE

Documentary: The Long Road to Hope | Ending Parkinson’s Disease

The Spark     www.WorldParkinsonsDay.com

PD Warrior   www.PDWarrior.com

Insight into Parkinson’s www.PDWarrior.com/insight-into-PD

Unity Walk – www.unitywalk.com

Mediflix – www.mediflix.com

Thanks to

Dila Velazquez – Story Producer

Greg Schott – Sound Design

Our Promotional Partners include:  

Diagnosed with Parkinson’s? You are not alone. Contact presenting partner Parkinson Canada http://www.parkinson.ca/, call the toll free hotline 1-800-565-3000 or on Twitter you can message @ParkinsonCanada.

Thanks also to our content and promotional partners

The Michael J. Fox Foundation Parkinson’s Podcast hosted by Larry Gifford as featured in the MJFF2021 Year in Review.

PD Avengers –  We are building a global alliance to end Parkinson’s. Join us.

World Parkinson Congress 2023 – It’s time to start thinking about making your plans to join us for #WPC2023 in Barcelona, Spain for the sixth triennial congress.

Spotlight YOPD – The only Parkinson’s organization dedicated to raising awareness for Young Onset Parkinson’s disease and funds for the Cure Parkinson’s Trust.  

 

 

This is the final instalment of our three episode mini-series we are calling “The Talk.” Hosts Larry and Rebecca Gifford talk about how Parkinson’s can send them into a hopeless spiral – at times it feeling as if they aren’t both committed to the marriage. And then there are times when Parkinson’s brings them closer together than ever.  

A difficult, intimate, deeply personal conversation about keeping connected and the importance of communication for people with Parkinson’s and care partners. 

This episode is dedicated to our dog Nina. We mention her a couple times in here. After this recording, her health turned and she’s no longer of this earth, but is someone where she can run free, where bully sticks are unlimited and she is free of pain. 

Thank you for listening. 

EMAIL US: ParkinsonsPod@CuriousCast.ca  

Have questions for Larry & Rebecca?  Want to share how your conversations go with your partner? We would love you to click and call us here.   https://www.speakpipe.com/WhenLifeGivesYouParkinsons

 

Follow us, Larry & Rebecca Gifford 

Twitter: @ParkinsonsPod

Facebook: Facebook.com/ParkinsonsPod

Instagram: @parkinsonspod

Thanks to 

Dila Velazquez – Story Producer

Greg Schott – Sound Design

 

Our Promotional Partners include:  

Diagnosed with Parkinson’s? You are not alone. Contact presenting partner Parkinson Canada http://www.parkinson.ca/, call the toll free hotline 1-800-565-3000 or on Twitter you can message @ParkinsonCanada.

 

Thanks also to our content and promotional partners 

The Michael J. Fox Foundation Parkinson’s Podcast hosted by Larry Gifford. The latest podcast, released on February 16th, 2022 features Larry & Rebecca and Kat & Ken Hill about intimacy and Parkinson’s. Happy Valentine’s Day.

PD Avengers –  We are building a global alliance to end Parkinson’s. Sign up today and check out the events calendar at www.PDAvengers.com 

World Parkinson Congress 2023 – It’s time to start thinking about making your plans to join us for #WPC2023 in Barcelona, Spain for July 2023… It’ll be here before you know it.  

Spotlight YOPD – The only Parkinson’s organization dedicated to raising awareness for Young Onset Parkinson’s disease and funds for the Cure Parkinson’s Trust.  

This is part two of three for a mini-series of episodes we are calling “The Talk.” Hosts Larry and Rebecca Gifford are also the guests this week. In this episode, they check share the emotional toll Parkinson’s takes on each of them.
How to maintain agency of your life while dealing with Parkinson’s, how apathy impacts everything and where hope is found when you feel hopeless.
 
Thank you for listening. 
EMAIL US: ParkinsonsPod@CuriousCast.ca 
Have questions for Larry & Rebecca? Want to share how your conversations go with your partner? We would love you to click and call us here. https://www.speakpipe.com/WhenLifeGivesYouParkinsons
 
Follow us, Larry & Rebecca Gifford 
Twitter: @ParkinsonsPod
Facebook: Facebook.com/ParkinsonsPod
Instagram: @parkinsonspod
 
Thanks to 
Dila Velazquez – Story Producer
Greg Schott – Sound Design
 
Our Promotional Partners include: 
Diagnosed with Parkinson’s? You are not alone. Contact presenting partner Parkinson Canada http://www.parkinson.ca/, call the toll free hotline 1-800-565-3000 or on Twitter you can message @ParkinsonCanada.
 
Thanks also to our content and promotional partners 
The Michael J. Fox Foundation Parkinson’s Podcast hosted by Larry Gifford as featured in the MJFF2021 Year in Review. Also noted in the 34 page booklet was…
PD Avengers – We are building a global alliance to end Parkinson’s. The next Assemble meeting is Tuesday, Jan 25th at 11a PT. Join us. Details under “meetings” at PD Avengers dot com. 
World Parkinson Congress 2023 – It’s time to start thinking about making your plans to join us for #WPC2023 in Barcelona, Spain for t he sixth triennial congress. 
Spotlight YOPD – The only Parkinson’s organization dedicated to raising awareness for Young Onset Parkinson’s disease and funds for the Cure Parkinson’s Trust. 

This is part one of three for a mini-series of episodes we are calling “The Talk.” Hosts Larry and Rebecca Gifford are also the guests this week. They will check on how each other is doing physically and emotionally. 

They will talk about personal priorities, advocacy, and how chronic disease changes and challenges the dynamics of a family. We will also get into what gives us hope. In part one, that you are about to hear – we are talking about where our life sits from a practical perspective, the joys and pressures. 

Also, what we are discovering about what we need as people and a family to maintain balance and productivity in our relatively new life where Parkinson’s is a main character.

We are figuring out how to take true breaks, a concept and practice that changes its meaning constantly and looks different as Parkinson’s progresses. And we’re relearning how energy conservation and awareness affects our wellbeing and ability to be present and as healthy as possible. 

Thank you for listening. 

EMAIL US: ParkinsonsPod@CuriousCast.ca  

Have questions for Larry & Rebecca?  Want to share how your conversations go with your partner? We would love you to click and call us here.   https://www.speakpipe.com/WhenLifeGivesYouParkinsons

Follow us, Larry & Rebecca Gifford 

Twitter: @ParkinsonsPod

Facebook: Facebook.com/ParkinsonsPod

Instagram: @parkinsonspod

 

Thanks to 

Dila Velazquez – Story Producer

Greg Schott – Sound Design

This episode is dedicated in memory of my friend and fellow improve performer Sukhi. Thanks for the laughs pal. Godspeed.

 

Our Promotional Partners include:  

Diagnosed with Parkinson’s? You are not alone. Contact presenting partner Parkinson Canada http://www.parkinson.ca/, call the toll free hotline 1-800-565-3000 or on Twitter you can message @ParkinsonCanada.

 

Thanks also to our content and promotional partners 

The Michael J. Fox Foundation Parkinson’s Podcast hosted by Larry Gifford as featured in the MJFF2021 Year in Review. Also noted in the 34 page booklet was…

PD Avengers –  We are building a global alliance to end Parkinson’s. The next Assemble meeting is Tuesday, Jan 25th at 11a PT. Join us. Details under “meetings” at PD Avengers dot com. 

World Parkinson Congress 2023 – It’s time to start thinking about making your plans to join us for #WPC2023 in Barcelona, Spain for t he sixth triennial congress. 

Spotlight YOPD – The only Parkinson’s organization dedicated to raising awareness for Young Onset Parkinson’s disease and funds for the Cure Parkinson’s Trust.