56 episodes

"Podcasts for Patients" from the Aplastic Anemia and MDS International Foundation.

For more, see our podcast page at: https://www.aamds.org/podcast/

AAMDSIF Podcasts for Patients The Aplastic Anemia and MDS International Foundation

    • Health & Fitness

"Podcasts for Patients" from the Aplastic Anemia and MDS International Foundation.

For more, see our podcast page at: https://www.aamds.org/podcast/

    Recent FDA Approval of Danicopan for patients with PNH

    Recent FDA Approval of Danicopan for patients with PNH

    Dr. Caroline Piatek describes the purpose and use of this new drug approval for some patients with PNH, or Paroxysmal Nocturnal Hemoglobinuria

    • 9 min
    Athletic Service Member Conquers Aplastic Anemia and MDS with Transplant

    Athletic Service Member Conquers Aplastic Anemia and MDS with Transplant

    Damian describes his story of diagnosis, treatment, and bone marrow transplant in this compelling episode.

    • 17 min
    Conquering PRCA: a conversation with Ron Duncan, Patient Survivor

    Conquering PRCA: a conversation with Ron Duncan, Patient Survivor

    Director for Patient Services, Leigh Clark, interviews Ron Duncan about his journey with Pure Red Cell Aphasia, or PRCA.

    • 12 min
    Hepatitis-Associated Aplastic Anemia with Dr. Roma Rajput

    Hepatitis-Associated Aplastic Anemia with Dr. Roma Rajput

    Dr. Roma Rajput explains the origins and treatment of hepatitis-associated Aplastic Anemia in this AAMDSIF Podcast for Patients Episode.

    • 5 min
    Brian Anderson Explains Life, Treatment, and Surviving MDS

    Brian Anderson Explains Life, Treatment, and Surviving MDS

    AAMDSIF Director of Patient Programs, Leigh Clark, asks Brian about his life before diagnosis, during "watch and wait," through transplant, to now. Listen here to his myelodysplastic syndromes, or MDS, patient journey.

    • 21 min
    Conversation with patient, Mario Rivera: His Experience with Aplastic Anemia

    Conversation with patient, Mario Rivera: His Experience with Aplastic Anemia

    AAMDSIF Director of Patient Services, Leigh Clark, asks Mario about his journey with Aplastic Anemia. The conversation includes treatment and survivorship.

    • 15 min

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