141 episodes

Ocular melanoma information on treatment, research, and living with ocular melanoma.

The Eye Believe Podcast A Cure In Sight

    • Health & Fitness

Ocular melanoma information on treatment, research, and living with ocular melanoma.

    Eye on COOG: an Eye Believe Mini-Seminar

    Eye on COOG: an Eye Believe Mini-Seminar

    Join A Cure in Sight, an ocular melanoma foundation, to bring you an Eye Believe Mini-Seminar, Eye on COOG, where we're joined by Dr. Harbour, Dr. Reichstein, Dr. Williams, and Dr. Correa to discuss the Collaborative Ocular Oncology Group, it's founding and history, the research this collaborative study has yielded, and where COOG hopes to take the ocular melanoma community in the future. Topics covered:History of the COOG studyCurrent Published Studies from COOG (COOG 1 and COOG 2)The Future of COOGThank you to our Eye Believe 2023 sponsors who also helped sponsor this years mini eye believe online seminars. Castle Biosciences, Aura Biosciences, Immunocore, IDEAYA, Delcath Systems, and Trisalus Life Sciences.
     
    ANNOUNCEMENTS:
    STEPS FOR SIGHT 2024 is still going strong--over $60k raised so far--an exciting feat! Be part of the world wide movement: www.charityfootprints.com/SFS2024
     
    5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! Highest record for registrations is 306! Who can top it!? Fundraisers have a record of $30K+ in Palo Alto–who can help beat that!? March 24, 2024, Tampa, FL
    https://runsignup.com/Race/FL/Tampa/LookinForACureTampaFL
    March 30, 2024, Brooklyn, NY
    https://runsignup.com/Race/NY/Brooklyn/LookinForACureBrooklyn
    May 18, 2024, Raleigh, NC
    https://runsignup.com/Race/NC/Raleigh/LookinForACureRaleigh
    Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!!www.lookinforacure.org 
    COMING OCTOBER 2024: Eye Believe Survivorship Seminar in Scottsdale, Arizona - Join A Cure in Sight and Dr. Justin Moser from Honorhealth Research Institute for our upcoming survivorship seminar in the sunny state of Arizona! Details on registration coming soon!Subscribe to the newsletter to stay in the knowNewsletter link
    Email contact@acureinsight.org for questions regarding any upcoming events!*********
    Be sure to follow us on Facebook, Twitter, Linked In, or  Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM!
    *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via  PAYPAL OR VENMO or reach out directly to contact@acureinsight.org 

    • 2 hrs 12 min
    Making Meaning of the Cancer Journey: 2024 Eye on Mental Health Session 1

    Making Meaning of the Cancer Journey: 2024 Eye on Mental Health Session 1

    Ocular Melanoma is a beast of a diagnosis. Fellow cancer survivor and patient Eve Bogdanove shares strategies for coping with your diagnosis and making meaning throughout the journey. Eve N. Bogdanove has been a clinical social worker for 28 years. She is a psychodynamically trained with additional training in IFS, SE, EMDR, DBT and is a AASECT Certified Sex & Gender Therapist.  She has expertise in CPTSD and working with perpetrators who harm their intimate partners.   Our mini seminar this year was brought to you by Castle Biosciences, as well as Aura Biosciences, Immunocore, IDEAYA Biosciences, Delcath Systems, and Trisalus Life Sciences. 

    • 39 min
    Why therapy? Therapy Modalities & Radical Acceptance: 2024 Eye on Mental Health Session 2

    Why therapy? Therapy Modalities & Radical Acceptance: 2024 Eye on Mental Health Session 2

    Ocular Melanoma is enough to justify extra support. Dr. Allison Dashow, a patient and psychologist, shares a summary of therapies patients may find supportive, emphasizing the skills that can be developed to reach a point of radical acceptance in your diagnosis.Dr. Allie Dashow is a clinical psychologist and has been seeing clients for psychotherapy and group therapy for the past 6 years. She specializes in the following therapy modalities: cognitive behavioral therapy, dialectical behavioral therapy, and acceptance and commitment therapy. Allie also specializes in eating disorders and body image difficulties. She has run multiple psychoeducational trainings for colleagues and early career therapists, workshops for students, and therapy groups relating to eating disorders, disordered eating, and body image challenges. In her spare time, she also spent 8 years as a senior administrator for Beating Eating Disorders, an online based platform with over 150,000 followers that aims to raise eating disorder awareness and provide support and resources to those in need. On the side, Allie also provides executive functioning coaching for people with ADHD.
    Our mini seminar this year was brought to you by Castle Biosciences, as well as Aura Biosciences, Immunocore, IDEAYA Biosciences, Delcath Systems, and Trisalus Life Sciences. 

    • 51 min
    Resilience In Spite of Fear: 2024 Eye on Mental Health Session 3

    Resilience In Spite of Fear: 2024 Eye on Mental Health Session 3

    Ocular Melanoma patients face a LOT in their diagnosis journey. Facing the fear of recurrence, the fear around scans, fear of dying - there's a lot to unpack. Join us to hear from Katie Wilson, a therapist and patient herself, who specifically studies resilience and the development of post traumatic growth.Katie Wilson is a therapist and an adult educator. She received her master’s degree in counseling Psychology from Gonzaga in 2003. She has worked as a mental health clinician for almost 20 years specializing in trauma. Katie was a psychology instructor and spent several years teaching for North Idaho College. As a Ph.D. student at the University of Idaho, she has done extensive research on transformative learning, attachment theory, posttraumatic growth, and human flourishing in the adult organizational leadership and learning program. Katie has a history of volunteer work at Hospice of North Idaho and currently volunteers as an advocate for the Ocular Melanoma Foundation in which she provides education and mental health care for newly diagnosed cancer survivors. Katie is also a cancer survivor and is passionate about helping individuals live their best lives following trauma.
    Our mini seminar this year was brought to you by Castle Biosciences, as well as Aura Biosciences, Immunocore, IDEAYA Biosciences, Delcath Systems, and Trisalus Life Sciences. 

    • 42 min
    Coping with Ocular Melanoma as a Family: 2024 Eye on Mental Health Session 4

    Coping with Ocular Melanoma as a Family: 2024 Eye on Mental Health Session 4

    Ocular Melanoma is a family disease. It doesn't just affect one person - having this diagnosis, the fear of the unknown can affect everyone from immediate family, friends, and more. Learning how to support each other with varying needs and boundaries amidst your diagnosis is worth the listen to this unique patient panel, led by patient and therapist, Carol McColl.Carol McColl has worked as a licensed professional counselor for 16 years, specializing in trauma recovery. She is also the author of The Single Mom’s Devotional (Revell, 2009.) Carol lives in Dallas, TX, with her husband Angus, their adorable mini-goldendoodle Barney, and her 94-year old father, “Grampy." Carol’s large step-family includes eight adult daughters, with various spouses and partners, and 10 grandchildren. Carol was diagnosed with OM in July 2018, and had plaque therapy in August 2018. In her free time, Carol enjoys coffee with friends, baking, crocheting, Bible study, serving at her church, travel, and quiet weekends at Holly Lake in East TX. 
    Our mini seminar this year was brought to you by Castle Biosciences, as well as Aura Biosciences, Immunocore, IDEAYA Biosciences, Delcath Systems, and Trisalus Life Sciences. 

    • 1 hr 20 min
    Eye on Mental Health: Session 1: Getting Your Passion Back; Turning Talents into Healing

    Eye on Mental Health: Session 1: Getting Your Passion Back; Turning Talents into Healing

    Kathy Doocy and Wendy Carpenter will discuss turning their talents into healing, and how they refused to allow ocular melanoma to limit their ability to practice their talents.

    • 46 min

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