51 episodios
HAE Speaks US HAEA
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- Economía y empresa
HAE Speaks, a podcast series on important Hereditary Angioedema (HAE) topics. Listen to patients, caregivers, and medical professionals discuss strategies to manage stress, prepare for a visit with your HAE specialist, care for a loved one with HAE, what to expect when you are newly diagnosed, the road to treatment, and much more.
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Episode 47: US HAEA National Summit Ask the Experts Q&A
Did you miss it? Tune in to our latest podcast episode as we bring you highlights from the Ask the Experts Q&A session at the 2023 US HAEA National Summit in Orlando, Florida.
In this episode, members of the US HAEA Medical Advisory Board address pressing questions and provide invaluable insights into the challenges and advancements in the field of Hereditary Angioedema (HAE). Listen in on this informative and enlightening discussion!
For more information, please visit www.haea.org.
A special thanks to CSL Behring and Takeda for sponsoring the 2024 HAE Speaks Podcast Series! -
Episode 46: My Cross-Country Trip Across the United States to Raise HAE Awareness
This month’s HAE Speaks Podcast episode features John, an individual with HAE, as he shares his inspiring journey of raising awareness cross-country. Join us as John recounts his innovative tactics and heartfelt efforts while traveling through twenty states, fundraising, and spreading awareness for HAE.
For more information, please visit www.haea.org.
A special thanks to CSL Behring and Takeda for sponsoring the 2024 HAE Speaks Podcast Series! -
Episode 45: HAEA DIY Community Events - Red Lake Nation HAE Awareness Walk
In this episode, we chat with Alecia, who shares her experiences hosting a memorial HAE walk in memory of her brother, Joseph Fairbanks Jr., who passed away due to HAE. Over 100 participants attended Alecia’s event in her hometown of Red Lake Nation, Minnesota!
For more information, please visit www.haea.org.
A special thanks to CSL Behring and Takeda for sponsoring the 2024 HAE Speaks Podcast Series! -
HAE, the holidays and you. Navigating the holiday season with HAE
Senior Nurse Advocate with over 20 years of experience working with HAE patients will discuss tips and recommendations for successfully navigating the busy holiday season with HAE.
For more information about Hereditary Angioedema please visit HAEA.org
This episode is brought to you by our sponsor: BioCryst Pharmaceuticals, Inc. -
Episode 44: A word from the HAE Community
2023 was a busy year for the HAE community. Listen in as community members share their
highlights of 2023.
For more information about Hereditary Angioedema please visit HAEA.org
Thank you to our sponsors:
BioCryst Pharmaceuticals
Kalvista Pharmaceuticals
Takeda -
Episode 43: Kate is living Beyond HAE
Kate has lived with HAE all of her life but she does not let HAE control her life. Listen in as Kate shares her amazing feats and living her “dash” life.
For more information about Hereditary Angioedema please visit HAEA.org
Thank you to our sponsors:
BioCryst Pharmaceuticals
Kalvista Pharmaceuticals
Takeda