ALS Podcast ALS Philadelphia

Jessie Meier is a social worker at The ALS Association Recognized Treatment Center at Lehigh Valley Health Network. Through her years of working for people with ALS, she has come across many amazing stories, but she wanted a special way to highlight them.
Lenny Rafalko is a person with ALS who attends the ALS Treatment Center at LVHN. He was looking for an uplifting project, especially as the global pandemic turned the world upside down for everyone. Jessie and Lenny collaborated and created their own special podcast called Roots Radio to showcase some of these personal ALS stories.
In this Talk to Defeat ALS Podcast, Lenny and Jessie talk about the creation of Roots Radio, what they hope to accomplish, how ALS has affected them personally, the work of the Philadelphia Phillies to Strike Out ALS, and more.
Listen and share and find their podcast online at: https://rootsradioals.captivate.fm/
Join the LVHN team for the Lehigh Valley Walk to Defeat ALS at www.lehighvalleywalktodefeatals.org
Learn more about ALS, our services, and how to get involved at www.alsphiladelphia.org

The ALS Association continues to find new ways to listen to all parts of the ALS community to better deliver its mission. In this Talk to Defeat ALS Podcast, Sarah Parvanta discusses the new ALS Focus survey project.
Topics include:
Developing the right surveys using expert input
What The ALS Association has already learned from surveys
How people can participate and what voices are needed
Creating the next round of surveys
Listen and share and learn more about ALS Focus at https://www.als.org/als-focus
 
Follow The ALS Association on Twitter @alsassociation and follow our Chapter on Twitter @alsphiladelphia and online at www.alsphiladelphia.org

Jim Doyle is the voice of Berwick Bulldogs Football. In this Podcast, he discusses Berwick Coach George Curry and the Walk to Defeat ALS. Register at www.walk2defeatals.org

A new season of the Talk to Defeat ALS Podcast starts with Steve Spaulding, Director of Care Services at The ALS Association Greater Philadelphia Chapter as he discusses how The ALS Association has adapted to the challenges surrounding COVID-19.
In this episode, we discuss:
Transitioning to Telehealth
How Care professionals are helping more ALS families than ever
Steps you can take to stay safe and keep others with ALS safe
Why people with ALS are more at risk from COVID-19
Listen and share this discussion on whatever program you use for podcasts and support the fight against ALS at www.alsphiladelphia.org
 
Thank you to our sponsor First Keystone Community Bank for making this episode possible. If you have a topic or guest suggestion for the Talk to Defeat ALS, email Tony@alsphiladelphia.org 

The ALS Association Greater Philadelphia Chapter is proud to have many exceptional nurses on staff to provide needed quality care for people with ALS and their families. For Nurses Week 2019, Erica Smith joins the Talk to Defeat ALS Podcast to discuss why she became a nurse, the challenges of being a nurse for The ALS Association, what makes her job so rewarding, and why more people should choose nursing. Erica also talks about her support of the Berwick Walk to Defeat ALS. You can support Walk to Defeat ALS teams, learn about the Chapter's care services programs, and donate to the ALS cause all at www.alsphiladelphia.org 

March is National Social Work Month and our own MaryBeth Tomczak is joining the Talk to Defeat ALS Podcast to talk about her role as a social worker with The ALS Association Greater Philadelphia Chapter. She also talks about why she joined the social work field, the challenges of being a social work provider for ALS families, and what she hopes to accomplish this year for the ALS cause. MaryBeth works mostly in North East Pennsylvania, which brings its own unique challenges to providing care with a large geography, different county departments, and different understanding of ALS. Listen, share, subscribe and join MaryBeth and others in the fight against ALS at www.alsphiladelphia.org