44 集

Ask The Expert from BloodStream Media is a podcast series features hematologists and other healthcare experts answering listener-submitted questions about hemophilia, von willebrand disease, and other inherited bleeding disorders. Learn more at BloodStreamMedia.com.

The content contained within Ask The Expert is for informational purposes only. Please consult your health care provider before making any decisions about treatment.

Ask The Expert - A BloodStream Media Podcast BloodStream Media

    • 健康與體能

Ask The Expert from BloodStream Media is a podcast series features hematologists and other healthcare experts answering listener-submitted questions about hemophilia, von willebrand disease, and other inherited bleeding disorders. Learn more at BloodStreamMedia.com.

The content contained within Ask The Expert is for informational purposes only. Please consult your health care provider before making any decisions about treatment.

    Ep 40 - TO THE FUTURE w/ Patrick James Lynch

    Ep 40 - TO THE FUTURE w/ Patrick James Lynch

    Our guest for this month is Believe Limited CEO and Bloodstream host, Patrick James Lynch. Ask the Expert is headed in a new direction and Patrick joins us to share what the future will hold for the Bloodstream Media network. Even though this will be the final episode of Ask the Expert, we are excited to announce the new path for our expert interviews, because they’re not going away! Listen in with Patrick and Amy as they share the new and exciting things coming from Bloodstream Media!
    Welcome to Episode 40, or To the Future! The final episode of the Ask The Expert Podcast! 
     
    Check out all the podcast offerings from Bloodstream Media: https://www.bloodstreammedia.com/
    Register for the virtual Bleeding Disorder Conference here: https://events.hemophilia.org/ehome/bleedingdisordersconference/about/?&_ga=2.12224756.1785968952.1589565712-1855623951.1578586058
     

    • 55 分鐘
    Ep. 39 - w/ Dr. Len Valentino (Part 2) - Get to Know the Expert

    Ep. 39 - w/ Dr. Len Valentino (Part 2) - Get to Know the Expert

    Join us for our “Get to Know the Expert” episode of Ask the Expert! Having the opportunity to know our national leaders in a personal way is an honor and a treat for any community. Join us on today’s episode to get to know CEO the National Hemophilia Foundation, Dr. Len Valentino! We’ll learn how Dr. Valentino got his start, what lessons he learned from treating patients, his interests in the global disparity of care, and his thoughts of the Michael Jordan documentary, The Last Dance! Join us to get to know Dr. Valentino a little better!
    Welcome to Episode 39 - or our Get to Know the Expert Episode - of the Ask The Expert Podcast! 
     
    Check out the weekly webinar series provided by the National Hemophilia Foundation here:
    The National Hemophilia Foundation: https://www.hemophilia.org/
    Register for the virtual Bleeding Disorder Conference here: https://events.hemophilia.org/ehome/bleedingdisordersconference/about/?&_ga=2.12224756.1785968952.1589565712-1855623951.1578586058
     
     

    • 22 分鐘
    Ep. 39 - w/ Dr. Len Valentino (Part 1) - Become an Expert

    Ep. 39 - w/ Dr. Len Valentino (Part 1) - Become an Expert

    The National Hemophilia Foundation announced new leadership in Dr. Len Valentino weeks before the COVID-19 outbreak and his unique position to guide our community during this unprecedented time has been welcome. Dr. Valentino joins us on Ask the Expert this month to share a bit of his story and his thoughts on the pandemic could affect the bleeding disorder community. Dr. Valentino shares how NHF is addressing the current COVID pandemic, NHF’s national research agenda, and how COVID could impact the shift in treatment in hemophilia. We’ll also chat about the Bleeding Disorder Conference going virtual this year, so join us for a can’t miss episode of Ask the Expert!
    Welcome to Episode 39 - or our Dr. Valentino Episode - of the Ask The Expert Podcast! 
    Check out the weekly webinar series provided by the National Hemophilia Foundation here:
    The National Hemophilia Foundation: https://www.hemophilia.org/
    Register for the virtual Bleeding Disorder Conference here: https://events.hemophilia.org/ehome/bleedingdisordersconference/about/?&_ga=2.12224756.1785968952.1589565712-1855623951.1578586058
     

    • 32 分鐘
    ATE - Ep. 38 - w/ Sharon Meyers (Part 2) - Get to Know the Expert

    ATE - Ep. 38 - w/ Sharon Meyers (Part 2) - Get to Know the Expert

    Join us for our “Get to Know the Expert” episode of Ask the Expert! Having the opportunity to know our national leaders in a personal way is an honor and a treat for any community. Join us on today’s episode to get to know CEO of Hemophilia Federation of America (HFA), Sharon Meyers, as she begins her tenure at the organization. Sharon shares how she became involved in non-profit work, her passion and philosophy on fundraising, and how she became involved within the bleeding disorder community! Join us to hear more about Sharon’s personal journey and what makes her tick! A fun episode of Ask the Expert!
    Welcome to Episode 38 - or our Get to Know the Expert Episode - of the Ask The Expert Podcast! 
     
    Check out the terrific resources from the Hemophilia Federation of America in the midst of COVID-19 outbreak:
    Hemophilia Federation of America: https://www.hemophiliafed.org/
    HFA COVID-19 Resources Page: https://www.hemophiliafed.org/news-stories/2020/04/coronavirus-covid-19-what-hfa-is-doing/
    HFA COVID-19 Relief Fund: https://www.hemophiliafed.org/our-role-and-programs/assisting-and-advocating/financial-assistance/covid-19-relief-fund/
    HFA Helping Hands Financial Assistance Program: https://www.hemophiliafed.org/our-role-and-programs/assisting-and-advocating/financial-assistance/helping-hands-emergency-assistance/
    NHF Informational Webinars during COVID Crisis: https://www.hemophilia.org/ 

    • 20 分鐘
    ATE - Ep. 38 - w/ Sharon Meyers, HFA (Part 1) - Become an Expert

    ATE - Ep. 38 - w/ Sharon Meyers, HFA (Part 1) - Become an Expert

    During this period of unprecedented turmoil and uncertainty, the bleeding disorder community has found comfort in the Hemophilia Federation of America’s (HFA) messaging and voice. Newly-minted CEO of HFA, Sharon Meyers, joins us to share the behind the scenes work HFA has done to prepare statements, resources, and education during the COVID pandemic. She shares how HFA has set up a COVID-19 Relief Fund, as well as utilizing their foundational Helping Hands financial assistance program to provide support to community members during the crisis. Sharon stops by to share her vision for HFA going forward and how increased communication with NHF sets both organizations up for success. Join us for another great episode of Ask the Expert!
    Welcome to Episode 38 - or our Meet Sharon Meyers Episode - of the Ask The Expert Podcast! 



    Check out the terrific resources from the Hemophilia Federation of America in the midst of COVID-19 outbreak:
    Hemophilia Federation of America: https://www.hemophiliafed.org/
    HFA COVID-19 Resources Page: https://www.hemophiliafed.org/news-stories/2020/04/coronavirus-covid-19-what-hfa-is-doing/
    HFA COVID-19 Relief Fund: https://www.hemophiliafed.org/our-role-and-programs/assisting-and-advocating/financial-assistance/covid-19-relief-fund/
    HFA Helping Hands Financial Assistance Program: https://www.hemophiliafed.org/our-role-and-programs/assisting-and-advocating/financial-assistance/helping-hands-emergency-assistance/
    NHF Informational Webinars during COVID Crisis: https://www.hemophilia.org/ 

    • 37 分鐘
    ATE - Ep. 37 - w/ Brian Ragaishis (Part 2) - Get to Know the Expert

    ATE - Ep. 37 - w/ Brian Ragaishis (Part 2) - Get to Know the Expert

    Join us for our “Get to Know the Expert” episode featuring Brian Ragaishis! Brian is a teenager with vWD who created the website Live Smart, Play Smart, a community where other teens affected by bleeding disorders can share their story. In today’s episode, we hear about what it was like for Brian when he was diagnosed with vWD and how he felt isolated from his friends. How did he manage and why did he think it was important for other teens to share their story? Check out this great episode and if you know an amazing teen affected by a bleeding disorder doing incredible things for their community, nominate them for the Teen Impact Award at www.teenimpactawards.com 

    Welcome to Episode 37 Part 2- or our Get to Know the Expert Episode - of the Ask The Expert Podcast! 
     
    Check out the following resources mentioned in our episode:
    Nominate a teen for the Teen Impact Awards:
    https://www.teenimpactawards.com/
    Apply for the Adam Lynch Scholarship here:
    https://www.teenimpactawards.com/scholarship
    To learn more about Live Smart, Play Smart and share your story: https://www.livesmartplaysmart.com/
    To learn more about Bleeding Disorders Awareness Month and how you can contribute: https://redtiecampaign.org/
     

    • 19 分鐘

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