The Lucky Few The Lucky Few Podcast

254. The Next Step: Navigating Healthcare Transitions for Individuals with Down Syndrome (w/ Dr. Emily Johnson)

Today, we’re chatting about navigating healthcare transitions with Dr. Emily Johnson, a dedicated advocate and physician specializing in the healthcare needs of individuals with Down syndrome. We discuss the importance of starting the transition process early, the challenges families may face, and the key considerations for a successful transition. Dr. Johnson also shares her personal experience as a mother and sister, to individuals with Down syndrome, and how her personal experiences have shaped her career as a physician. Friends, this episode will leave you with valuable insights that left us confident in starting conversations with our kid's providers that will set them up for successful transitions of care. This is an episode you’re going to want to bookmark!





SHOW NOTES




Global Down Syndrome Foundation medical care guidelines 
More information on the National Down Syndrome Adoption Network



Our episode with DSDAN:


45. Adoption & Down Syndrome w/Stephanie Thompson from the NDSAN



JOIN THE MOVEMENT

Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! 



THANK YOU TO OUR SPONSOR:

Thank you, Enable SNP for sponsoring this episode!

47. Planning for the Future w/Phillip Clark from Enable SNP

191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP



DISCOUNT CODE

Mother's Day is coming! You know this. But did you know we have a “I am really good mom shirt”?! Just for Mother's Day, we are offering a 21% discount on all orders until Mother's Day. Head over to theluckyfew.co and use code: LUCKYMAMA 

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!



LET’S CHAT

Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.


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Send in a voice message: https://podcasters.spotify.com/pod/show/theluckyfewpod/message
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What does it mean to feel “lucky” to have a child with Down syndrome? We’re having a candid conversation about the evolving meaning of “lucky” within our community and personal journeys. Through the challenges and the joys, we know that things like toxic positivity and social media can leave us struggling to feel “lucky.” We’re sharing our thoughts, experiences, and some feedback from one of Heather’s social media posts on what “lucky” in The Lucky Few has come to mean. Join the conversation and share your experiences, perspectives, and advice on reframing the narrative around parenting a child with Down syndrome. Whether you’re feeling “lucky” or not, this episode offers a space for honesty and support. 



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SHOW NOTES


Learn more about Kate Bowler


Study “Self Perceptions For People With Down syndrome” mentioned by Heather



Other episodes to check out:


95. What Are You Thankful For?
117. Discussing "Dignity Beyond Accomplishment," An Article by Justin Hawkins (ft. author, Justin Hawkins)
138. What do you wish you knew when you got your child's diagnosis?
151. Finding People That Don't Feel Sorry For You (ft. Jo Lopez)



JOIN THE MOVEMENT

Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! 



MICHA’S NEW BOOK

Pre-order Micha’s new book Blessed Are The Rest Of Us coming April 9, 2024! (All pre-order’s purchased through Baker Book House receive a signed copy with a lucky few temporary tattoo!)



DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!



HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!



LET’S CHAT

Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.


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Send in a voice message: https://podcasters.spotify.com/pod/show/theluckyfewpod/message
Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

We’re so excited to have Phillip Clark back on the show, he’s the founder of ENABLE Special Needs Planning and is here to chat with us about involving siblings in the guardianship and decision-making process. Phillip shares the importance of having open conversations early on with siblings about guardianship and gives advice about getting the conversation started. He dives into the differences between guardianship and supported decision-making and the importance of personalizing decisions for each individual’s needs. Phillip shares his journey and experience with his sister, Sarah, who has Down syndrome, emphasizing how beneficial it has been for his family to have a plan, open communication, and involvement of the entire family in the process of planning for Sarah’s future. Friends, we know there are so many what-ifs to the future of having a loved one with Down syndrome, this episode gives valuable tips and resources on approaching a plan for the future.



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SHOW NOTES

Previous episodes with Phillip Clark:


47. Planning for the Future w/Phillip Clark from Enable SNP


191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP


Learn more about Enable Special Needs Planning


Enable Special Needs Planning Facebook Group


National Down Syndrome Society (NDSS) Sibling Resources



More episodes to check out:


214. Guardianship, Conservatorship, & Supportive Decision-Making



JOIN THE MOVEMENT

Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! 



MICHA’S NEW BOOK

Pre-order Micha’s new book Blessed Are The Rest Of Us coming April 9, 2024! (All pre-orders purchased through Baker Book House receive a signed copy with a lucky few temporary tattoo!)



DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!



HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!



LET’S CHAT

Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.


---

Send in a voice message: https://podcasters.spotify.com/pod/show/theluckyfewpod/message
Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

You know and love her as the bubbly blonde that breaks into song on nearly every episode, today our girl Micha Boyett isn’t just The Lucky Few Podcast host, she’s our guest!! Join us in celebrating her new book Blessed Are The Rest Of Us (available April 9th!)! We’re chatting about her journey of writing this book, and how she chose to write more than just a memoir. What does it mean to be “blessed”? What makes us worthy? What makes life good? Micha shares how her journey with Ace’s Down syndrome and Autism diagnosis made her see society’s obsession with success for what it actually is: fear of vulnerability. In finding language to push against society’s intrinsic ableism she found the connection in the Beatitudes, an ancient sacred text. She explores the concept of worthiness and the good life inviting us to reconsider the meaning of blessing and envision a world where everyone’s worth is recognized. It’s an honor to celebrate our magnificent friend’s work, this is an episode you don’t want to miss!



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SHOW NOTES


Learn more about Micha Boyett, and The Slow Way Podcast & Newsletter


Pre-order Micha’s new book Blessed Are The Rest Of Us coming April 9, 2024! (All pre-order’s purchased through Baker Book House receive a signed copy with a lucky few temporary tatoo!)


Learn more about Nadia Bolz-Weber


Learn more about Richard Rohr



JOIN THE MOVEMENT

Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! 



DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!



HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!



LET’S CHAT

Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.


---

Send in a voice message: https://podcasters.spotify.com/pod/show/theluckyfewpod/message
Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Friends, we had another hot topic in our group text that we knew we needed to bring on the pod to have with all of you! Today we’re chatting about the February 25th episode of “Saturday Night Live” with a guest host who used his niece and her Down syndrome diagnosis as a punch line to his set. We’re talking about our reactions and the larger conversation: who has the right to use Down syndrome and disability as a joke or punch line? Join us as we discuss the discomfort when jokes are made for an audience not connected to someone with Down syndrome and whether the laugh is at the expense of the person with the disability. Listen in as we unpack the complexities of comedy, connection, and the importance of shifting narratives.



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SHOW NOTES


Comedian Shane Gillis opening the February 25, 2024 episode of “Saturday Night Live”


One of the articles written about the backlash



Learn more about Josh Blue



More episodes to check out:


245. Can An Advocate Get It Wrong Sometimes?
234. Producing A Diverse, Authentic, & Honoring Netflix Series (w/Down For Love Producer Robyn Paterson)
217. The Things People Say
208. Growing Through Uncomfortable Conversations (w/Ashley - TLFP Producer & Self-Advocate)
186. Our Response to the Ableist Comments on Netflix's "Love Is Blind"
169. The Harm in Using People with Disabilities As "Inspiration" in Clickbait Viral Videos



JOIN THE MOVEMENT

Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! 



MICHA’S NEW BOOK

Pre-order Micha’s new book Blessed Are The Rest Of Us coming April 4, 2024! (All pre-order’s purchased through Baker Book House receive a signed copy with a lucky few temporary tatoo!)



THANK YOU TO OUR SPONSOR:

Thank you, Enable SNP for sponsoring this episode!


47. Planning for the Future w/Phillip Clark from Enable SNP


191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP



DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!



HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!



LET’S CHAT

Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.


---

Send in a voice message: https://podcasters.spotify.com/pod/show/theluckyfewpod/message
Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

For nearly 250 episodes we’ve had educational, encouraging, and meaningful conversations amplifying voices and shifting narratives for individuals with Down syndrome. Over the last 6 years, we’ve tackled topics on education, health & wellness, accessibility, stereotypes, legal rights, media representation, advocacy, and so much more! We were even recognized with the 2023 Media Award at the National Down Syndrome Congress Convention! We’ve had so many great moments but the best part of this podcast is being part of this one-in-a-million community!

March 8th we got to celebrate LIVE in San Diego, California! It was so special getting to meet our listeners, play some trivia, chat about the many ways we’ve learned, advocated, and celebrated over the last six years, and have a special guest share their good news!! 

On March 14, 2024, we marked our MILLIONTH DOWNLOAD, we’re so grateful to every one of you, for listening, sharing, and being part of The Lucky Few community. We look forward to a million more laughs and reasons to learn, advocate, and celebrate alongside this incredible community. Thanks for your support narrative shifters, cheers to a million more!!!



SHOW NOTES

Trivia Links:


17. Self Advocacy - Down Syndrome in DC with Kayla McKeon!


92. Politics & Down Syndrome w/Kayla McKeon & Ashley Helsing


204. Self-Advocates On Capitol Hill w/Kayla McKeon, Matthew Schwab, & Charlotte Woodward


 57. Shelley Gottsagen On Her Son Zack Gottsagen's Fame, The Oscars, + More!


10. Inclusion - An Educator’s Perspective with Kristin Enriquez Pt. 1


85. Is Inclusion Always The Best Option?


198. The Best We Can: An Unscripted Conversation on Inclusion In Our Schools


218. Creating Inclusion For All Learners (w/Tim Villegas) 





Ways we’ve learned, advocated, and celebrated:


26. Owning Your Influence By Using Your Words with Amy Julia Becker


88. (Un)learning the Advocacy Language


172. Defining Ableism, Allyship & Advocacy + Redefining "Inclusion" - ft. Dr. Priya Lalvani


117. Discussing "Dignity Beyond Accomplishment," An Article by Justin Hawkins (ft. author, Justin Hawkins)


163. What does success mean to you?


160. Organ Transplant Discrimination Against People with Disabilities (ft. incredible advocates!) 


217. The Things People Say


16. Live From the Dear Mom Conference!


225. NYC Buddy Walk Highlights 


150. Cole Sibus on Being An Actor w/Down Syndrome, Moving Away From Home, + SO Much More! 


227. French Fries, Modeling, & Meeting the Vice President (w/Ronnie "The Fry Guy" and Sister LaTasha)


229. Poet, Author, "Levitator of Language" Sid Gosh (w/Mom Dr. Vaish Sarathy) 





Thank you to our event sponsors and vendors:


ARCC Center Respite


Inclusive Education Project


Functional Nutrition For Kids


Weaver & Associates


San Diego Regional Center


Path-Now


Resounding Joy 


Amanda’s Adaptive Martial Arts


Includ(Ed) San Diego


Grace Place Art





Special thanks to our partner:

GiGi’s San Diego



Special thanks to Haven by Communal, Jen Byard, Jen & Addie Jones



JOIN THE MOVEMENT

Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! 

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!



HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!



LET’S CHAT

Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.


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