Never Delegate Understanding Never Delegate Understanding

Patrick Gee, who himself underwent years of dialysis and a kidney transplant, discusses advocating for people with kidney disease, people of color, and people in his community in Virginia who lack access to care and information about their health.

After her infant son suffered due to a succession of medical errors, Sue worked tirelessly to prevent this from happening to others, starting by writing letters to the health care regulatory bodies until she and a group of mothers had formed a nonprofit and put out guidelines for the regulatory bodies to follow. In the … Read More Read More

Dana Lewis was diagnosed with Type I Diabetes at 14. She struggled as a teenager with the cumbersome equipment, but struggled more as a college student without parents to help wake her when her glucose was out over range overnight. Since then, her now-husband and others along the way have helped her to create an … Read More Read More

Christie Mangir, breast cancer survivor, entrepreneur, and patient advocate, joins Harlan Krumholz to discuss what it means to be the “perfect patient.” Throughout her treatment, Christie felt pressure to do everything the doctor told her. At the same time, through a system of keeping spreadsheets on her symptoms, and a commitment to asking questions and … Read More Read More

Andrea Downing is living with a BRCA1 mutation, which puts her at a high risk for cancer, the same disease that she saw her mother and grandmother endure. Although at first her diagnosis created a pervading feeling of loneliness, Andrea has found a group on Facebook, the BRCA Sisterhood support group, to share information and … Read More Read More

When e-Patient Dave was diagnosed with kidney cancer, he was given an estimated 24 weeks to live. Now, twelve years later, Dave sits down for an interview with Harlan Krumholz in which he delves into just how he became an engaged patient, and what “e-Patient” means to him. Dave’s journey began when he first joined … Read More Read More