Lupus: The Expert Series Lupus Foundation of America

March is Kidney Month! Join us for a conversation with Dr. Brad Rovin, an expert in autoimmune kidney disease, where we talk about lupus nephritis and kidney health for people with lupus.

In this episode, we talk with Dr. Sasha Bernatsky, about lupus and cancer, if there’s a link between lupus and cancer, and a new abstract about cancer incidence and risk factors in a large SLE cohort. 

Dr. Bernatsky is a rheumatologist, a James McGill professor and a senior scientist in the Centre for Health Outcomes Research and Division of Clinical Epidemiology at the Research Institute of the McGill University Health Centre. Her expertise lies in using ‘big data’ from health services, linked to additional clinical sources of information.


Read more about lupus facts and statistics


Learn how doctors diagnose lupus


FAQs about participating in clinical trials


Help expand lupus research through RAY (Research Accelerated by You)




Read the mentioned abstract: Updated analyses  of cancer incidence and risk factors in a large international SLE cohort



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In this episode of the Expert Series, we speak with Dr. Christie Bartels about stress and stress management for people with lupus. Dr. Bartels covers how to manage stress, resources to manage stress and the difference between stress symptoms and lupus symptoms. 

Dr. Bartels is Division Chief of Rheumatology at the University of Wisconsin School of Medicine and Public Health and Chair of the American College of Rheumatology (ACR) RISE Registry Health IT Committee. As a rheumatologist health services and implementation researcher, Bartels’ work aims to improve cardiovascular health and reduce disparities among patients with lupus and rheumatic diseases. 

For more resources on stress and stress management:


Managing stress when you have lupus


Managing mental health with lupus


Find Support Near You



Other resources mentioned in the episode


SELF


Insight Timer


Arthritis Foundation’s Walk with Ease program

In this episode of The Expert Series, Dr. Tamar Rubinstein, a pediatric rheumatologist at the Children’s Hospital at Montefiore in New York, talks with us about how lupus affects teenagers, how they can cope with lupus, and how to communicate with health care providers as teens get older. 



Her research focuses on improving mental health and disease outcomes in youth with lupus and has been funded by the Lupus Foundation of America, the Rheumatology Research Foundation, the Childhood Arthritis and Rheumatology Research Alliance (CARRA)/ Arthritis Foundation, and the National Institute of Arthritis and Musculoskeletal and Skin Diseases at the NIH.


Resources:


Find out more about lupus and teens
School survival guide for teens with lupus
Helping teens learn to cope with lupus
SELF app, for people 18+ in the U.S.



Mentioned resources:


Take a pain check, a chronic disease podcast meant to support youth with rheumatic diseases

In this episode of The Expert Series, Dr. Anca Askanase, professor of medicine, the founder and director of Lupus Center and director of Rheumatology Clinical Trials at the Division of Rheumatology of the Columbia University Irving Medical Center in New York City, will be sharing about her role in the successful treatment of a catatonic woman who awakened after 20 years.



Read the article on April’s case and others on the Washington Post,

How autoimmune disease can attack the brain, cause psychiatric symptoms



Lupus resources:


Coping with the cognitive symptoms of lupus
What is inflammation?
How lupus affects the body

In this episode, we talk with Dr. Jillian Rose-Smith, vice president and chief equity officer at the Hospital for the Special Surgery, about lupus in the LGBTQ+ communities. We discuss what it means to have gender affirming care, how to protect yourself from implicit bias in the healthcare space and  how to get the support you need.


Review these resources to learn more:


What role do sex and gender play in lupus?
Lupus facts and statistics
What is self-advocacy
Speak with a health educator
Fenway Health - A health organization dedicated to helping LGBTQ+ communities



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