88 episodes

PodcastDX is an interview based podcast series in a “peer-to-peer supportive format."

We have found that many people are looking for a platform, a way to share their voice and the story that their health journey has created. Each one is unique since even with the same diagnosis, symptoms and the way each person will react to a diagnosis, is different. Sharing what they have experienced and overcome is a powerful way our guests can teach others with similar ailments.

Many of our guests are engaging in self-advocacy while navigating a health condition, many are complex and without a road-map to guide them along their journey they have developed their own. Sharing stories may help others avoid delays in diagnosis or treatment or just give hope to others that are listening. Sharing is empowering and has a healing quality of its own. Our podcast provides tips, hints, and support for common healthcare conditions. Our guests and our listeners are just like you- navigating the complex medical world. We hope to ease some tension we all face when confronted with a new diagnosis.

We encourage anyone wanting to share their story with our listeners to email us at PodcastDX@yahoo.com .

PodcastDX PodcastDX

    • Medicine

PodcastDX is an interview based podcast series in a “peer-to-peer supportive format."

We have found that many people are looking for a platform, a way to share their voice and the story that their health journey has created. Each one is unique since even with the same diagnosis, symptoms and the way each person will react to a diagnosis, is different. Sharing what they have experienced and overcome is a powerful way our guests can teach others with similar ailments.

Many of our guests are engaging in self-advocacy while navigating a health condition, many are complex and without a road-map to guide them along their journey they have developed their own. Sharing stories may help others avoid delays in diagnosis or treatment or just give hope to others that are listening. Sharing is empowering and has a healing quality of its own. Our podcast provides tips, hints, and support for common healthcare conditions. Our guests and our listeners are just like you- navigating the complex medical world. We hope to ease some tension we all face when confronted with a new diagnosis.

We encourage anyone wanting to share their story with our listeners to email us at PodcastDX@yahoo.com .

    Sickle Cell (part 4 of 4) with Lwimba

    Sickle Cell (part 4 of 4) with Lwimba

    I am  Lwimba Kasongo and I have been living with sickle cell for over 30 years! I call myself a warrior because i have come this far despite the challenges that come with living with Sickle cell . The pain, the stigma, the in an out of hospital , the medicines all make it a hard journey.

    • 34 min
    Sickle Cell Disease (3 of 4 with Yemi)

    Sickle Cell Disease (3 of 4 with Yemi)

    Oluyemi ‘Yemi’ Moses was born in Durham, NC, USA to parents who immigrated from Nigeria. She was the middle child in a family with seven children; four of those children were born with sickle cell disease, and Yemi was one of them. Throughout her life she has stood firm on the belief that sickle cell would not diminish her life, and her life experiences attest to that.

    • 22 min
    Sickle Cell Disease

    Sickle Cell Disease

    Our guest today is Sophia Anna, also known as "The Sick Sexy" and continues in our series on Sickle Cell.  Born in 1993 and originally from England with a background of Greek and South American heritage, Sophia Anna is an online writer, content creator, model and works in healthcare.  She is extremely passionate about invisible illness and launched her youtube channel: The Sick Sexy as an honest, raw platform about de-stigmatizing invisible illness and how to embrace it.

    • 25 min
    Sickle Cell Disease (1 of 4) with Agnes

    Sickle Cell Disease (1 of 4) with Agnes

    Sickle cell disease (SCD) is a chronic vascular disease, with a range of acute and chronic complications driven by ongoing vaso-occlusion. The diverse clinical manifestations of SCD can affect organs throughout the body. The self-perpetuating cycle of vaso-occlusion and vaso-occlusive crises (VOCs) may account for the majority of the burden of SCD. 

    • 31 min
    Primary Sclerosing Cholangitis

    Primary Sclerosing Cholangitis

    Bile ducts carry the digestive liquid bile from your liver to your small intestine. In primary sclerosing cholangitis, inflammation causes scars within the bile ducts. These scars make the ducts hard and narrow and gradually cause serious liver damage.  Our guest today is Jenna Ziegler an avid blogger at The Comical Colon  

    • 35 min
    Narcolepsy

    Narcolepsy

    Narcolepsy is a chronic sleep disorder characterized by overwhelming daytime drowsiness and sudden attacks of sleep. People with narcolepsy often find it difficult to stay awake for long periods of time, regardless of the circumstances. Narcolepsy can cause serious disruptions in your daily routine.  Our guest today is Lindsey who will discuss her life with narcolepsy.  

    • 30 min

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