Spinal Cast MCPF

You’ve heard the saying, “it’s the little things that make a difference,” right? In this episode of Spinal Cast you’ll discover just how profound those little things can be! Dr. Samuel Chung (Sam) and Noa Grooms hail from Northeastern University where they have been working with C. elegans (roundworms). They uncovered a fascinating phenomenon: by precisely cutting a fiber in a neuron they can observe regrowth and redevelopment and begin to understand how they can influence it. It is this seemingly small breakthrough that holds the potential to transform the way we approach spinal cord injury therapies.

With Dr. Chung’s expertise in lasers, optics and bioengineering, combined with Noa’s deep understanding of genetics, they are driving a revolution in neuroscience that gives testament to the power of interdisciplinary collaboration.

We also discuss the vital role of MCPF funding and the “New Investigator Grant.” By supporting new investigators in the field, MCPF is making strategic investments in high-risk, high-reward projects and championing visionary thinkers. The extraordinary achievements of Sam and Noa underscore the immense value of this approach.

What might seem like a ripple now is destined to create waves that will change lives for those living with spinal cord injuries. Tune in!

Bios for Sam and Noa can be found below.

Thanks again to Sam and Noa for being our guests on today's podcast! This production is a collaborative effort of volunteers working to create a quality audio and visual experience around the subject of spinal cord injury. A special shout out of appreciation to Clientek for providing studio space and top-notch recording equipment. Most importantly, thank YOU for being part of the Spinal Cast audience!

Interested in watching these episodes?! Check out our YouTube playlist! - https://youtube.com/playlist?list=PL40rLlxGS4VzgAjW8P6Pz1mVWiN0Jou3v

If you'd like to learn more about the Morton Cure Paralysis Fund you can visit our website at - https://mcpf.org/

Donations are always appreciated - https://mcpf.org/you-can-help/

Samuel Chung, Ph.D.
Prof. Chung is an Assistant Professor in the Bioengineering Department at Northeastern University. He leads a multidisciplinary group to study a special form of regeneration that can regrow the mammalian central nervous system. His laboratory leverages highly precise laser surgery and powerful genetic tools in the simple roundworm C. elegans to illuminate the biological mechanisms of regeneration. His laboratory also develops optical tools to clearly see individual brain cells and their regrowth, with the goal of automating his experiments. Together, his technologies and his unique model in the worm enable him to make broad, fundamental discoveries that may ultimately produce a viable therapy for spinal cord injuries.

Noa Grooms
Noa Grooms is a recently graduated bioengineering PhD student from Samuel Chung's laboratory at Northeastern University. His research explores the genetic mechanisms underlying brain cell regeneration. In his studies, Noa identified cAMP response element binding protein (CREB) as a primary driver of protein expression that promotes regeneration across several neurons in the roundworm C. elegans. His results also demonstrate a strong cell-type dependence on regenerative capacity and contributions from different genes.

Josh Basile and Kelley Brooks Simoneaux, both seasoned attorneys, shed light on the multifaceted challenges individuals face after a spinal cord injury. Beyond the immediate focus of recovery, they uncover the daunting realities of navigating financial burdens, deciphering insurance complexities, managing fundraisers, safeguarding assets, and understanding one’s legal rights. Josh’s founding of SPINALpedia, aptly named for its comprehensive support network, serves as an invaluable resource for those seeking guidance and community. Through mentorship and shared experiences, SPINALpedia offers solace and encouragement to individuals grappling with the mindboggling obstacle course post-injury. Tune in to better understand why Josh likes to say, “Together we are stronger and together we are not alone!”

For more information about Josh & Kelley and the important work they do, follow the links below:

Joshua Basile, Esq., Jack H. Olender & Associates, and Founder of SPINALpedia
https://www.olender.com/attorneys/joshua-basile-esq/

Kelley Brooks Simoneaux, Esq., and Founder of Spinal Cord Injury Law Firm
https://spinalcordinjurylawyers.com/meet-kelley/

SPINALpedia
https://spinalpedia.com/about-us/

HelpHopeLive
https://helphopelive.org/

United Spinal Association
https://unitedspinal.org/

Insurance Appeals Process
https://spinalpedia.com/health-insurance-appeals-process

Special thanks to Josh and Kelley for being our guests! This production is a collaborative effort of volunteers working to create a quality audio and visual experience around the subject of spinal cord injury. A special shout out of appreciation to Clientek for providing studio space and top-notch recording equipment. Most importantly, thank YOU for being part of the Spinal Cast audience!

Interested in watching these episodes?! Check out our YouTube playlist! - https://youtube.com/playlist?list=PL40rLlxGS4VzgAjW8P6Pz1mVWiN0Jou3v

If you'd like to learn more about the Morton Cure Paralysis Fund you can visit our website at - https://mcpf.org/

Donations are always appreciated - https://mcpf.org/you-can-help/

Jack Jablonski has a tattoo on his forearm, it reads: “I understand my injury. I don’t accept it.”  That should give you some insight as to who he is and how he perceives the future.

In this episode of Spinal Cast, we have a candid conversation as Jack reflects on the past 13 years.  We discuss his injury, experience with the SpineX SCONE spinal electrical stimulator, and his decision to come out as a gay man.  We also explore his current role with the LA Kings, love of hockey, and the inspiring work of his foundation.  Jack’s determination is undeniable.  Through raising awareness and staying true to himself, Jack’s voice resonates with anyone facing adversity, reminding us all of the power of resilience and being our true selves.

Jack’s full bio and more information about the Jack Jablonski Foundation, BEL13VE in Paralysis Recovery can be found here: https://mcpf.org/jack-jablonski/        

Or here, www.jablonskifoundation.org

Thanks again Jack for being our guest on today's podcast! This production is a collaborative effort of volunteers working to create a quality audio and visual experience around the subject of spinal cord injury. A special shout out of appreciation to Clientek for providing studio space and top-notch recording equipment. Most importantly, thank YOU for being part of the Spinal Cast audience!

Interested in watching these episodes?! Check out our YouTube playlist! - https://youtube.com/playlist?list=PL40rLlxGS4VzgAjW8P6Pz1mVWiN0Jou3v

If you'd like to learn more about the Morton Cure Paralysis Fund you can visit our website at - https://mcpf.org/   

Donations are always appreciated - https://mcpf.org/you-can-help/             

Welcome to the latest episode of Spinal Cast, where we discuss the often over looked challenges of air travel, particularly for those with disabilities.  In this segment, Ian Ruder, Editor-in-Chief of New Mobility, shares shocking stories of air travel.  You’ll discover the alarming lack of industry training for individuals with paralysis as well as the handling of essential equipment like wheelchairs.  Ian also offers practical tips for smoother travel and highlights positive changes, including Delta’s wheelchair-friendly seating prototype and ongoing federal efforts to amend the Air Carrier Access Act.  Join us for a discussion on the path towards a more accessible and inclusive air travel experience for everyone.

More information about Ian and New Mobility can be found using the links below:
 
New Mobility - https://newmobility.com/meet-the-team/

United Spinal - https://unitedspinal.org/

Injury - https://www.youtube.com/watch?v=B-0mbh7Di-w
 
Ian’s Bio:
Ian Ruder is the Editor-in-Chief of New Mobility, the longest-running, most-trusted magazine and web site for active wheelchair users (newmobility.com). A quadriplegic himself, Ruder joined the New Mobility team in 2011 when the magazine was purchased by United Spinal Association, a non-profit focused on mobility-related disability. Prior to working for New Mobility, he worked as a freelance journalist in the Pacific Northwest. When he is not working to promote authentic voices and stories from the disability community, he can likely be found enjoying the culinary delights in his hometown of Portland, Oregon, or rooting for his San Francisco Giants.

Thanks again Ian for being our guest on today's podcast! This production is a collaborative effort of volunteers working to create a quality audio and visual experience around the subject of spinal cord injury. A special shout out of appreciation to Clientek for providing studio space and top-notch recording equipment. Most importantly, thank YOU for being part of the Spinal Cast audience!

Interested in watching these episodes?! Check out our YouTube playlist! - https://youtube.com/playlist?list=PL40rLlxGS4VzgAjW8P6Pz1mVWiN0Jou3v

If you'd like to learn more about the Morton Cure Paralysis Fund you can visit our website at - https://mcpf.org/

Donations are always appreciated - https://mcpf.org/you-can-help/

Have you ever wondered what it’s like to be a Personal Care Assistant (PCA) for someone with quadriplegia? In this episode of Spinal Cast we sit down with Kortni Hollingsworth and Sarah Hollowell. Little did they know when they applied and got hired to be Peter Morton’s personal care assistants.
Through their lighthearted telling, Kortni and Sarah offer a candid look into the rollercoaster of emotions and responsibilities that come with the role of PCA. From heartwarming moments that created strong bonds to tough situations that demanded resilience, they share it all. It easy to see how the relationships they formed were more than a contractual client/PCA relationship … a deep friendship was forged, more like being part of the Morton “family.”
Whether you’re curious about the intricacies of the PCA profession or wonder about the realities faced by individuals living with paralysis, this episode is a compassionate and eye-opening discussion about the PCA experience.
Bios for Kortni and Sarah below:

Kortni Hollingsworth -
Kortni is an Emergency Room Registered Nurse. She earned her Bachelor of Science in Nursing while attending Arizona State University. Kortni’s ER career began in Dallas, TX at a Level One Trauma Center, and she currently works in Austin. Kortni loves the fast-pace, high intensity work environment of the emergency room. In her spare time, Kortni enjoys running, spending time with friends and family, and hanging out with her two pups, Dublin and Finley.

Sarah Hollowell -
Sarah is a Neonatal Intensive Care Unit Nurse in Austin, TX. She grew up in Gila, AZ and earned her Bachelor of Science in Nursing from Grand Canyon University in Phoenix. After graduation Sarah moved to Austin, TX. She loves working in the NICU and couldn’t imagine working with any other patient population! When not working Sarah enjoys traveling the world, reading, and enjoying good food and wine.

Thanks again to Kortni and Sarah for being our guests on today's podcast! This production is a collaborative effort of volunteers working to create a quality audio and visual experience around the subject of spinal cord injury. A special shout out of appreciation to Clientek for providing studio space and top-notch recording equipment. Most importantly, thank YOU for being part of the Spinal Cast audience!

Interested in watching these episodes?! Check out our YouTube playlist! - https://youtube.com/playlist?list=PL40rLlxGS4VzgAjW8P6Pz1mVWiN0Jou3v

If you'd like to learn more about the Morton Cure Paralysis Fund you can visit our website at - https://mcpf.org/

Donations are always appreciated - https://mcpf.org/you-can-help/

In this episode of Spinal Cast you’ll meet the compelling Peter Morton, Executive Director of the Morton Cure Paralysis Fund (MCPF). He’s more than a leader; he’s an open book sharing his knowledge, experience and unfiltered honesty. Get ready for a deep conversation with the man behind the mission. And, if you’re meeting him for the first time, you’ll soon understand why he’s a man many admire.

We’ll unravel Peter’s personal story, from the circumstances surrounding his injury to the inception of MCPF. We’ll also discuss the impact MCPF is making in the field of spinal cord injury and what the future may hold.

But what truly sets this episode apart is the candidness with which Peter discusses his life as a quadriplegic on a ventilator. He meets his situation head on and shares the often dark and difficult places where ethical conflicts arise. A spinal cord injury has a ripple effect on family and friends, the daily mental and physical strain takes a toll. What is remarkable is the grace and purpose Peter found in having control over his own situation.

Be inspired, moved and above all, in awe as Peter’s extraordinary story unfolds. This episode is a testament to the resilience of the human spirit and the power of finding purpose even in the face of immense challenges. Thanks for all that you do, Peter!

Thanks again to Peter for being our guest on today's podcast! This production is a collaborative effort of volunteers working to create a quality audio and visual experience around the subject of spinal cord injury. A special shout out of appreciation to Clientek for providing studio space and top-notch recording equipment. Most importantly, thank YOU for being part of the Spinal Cast audience!

Interested in watching these episodes?! Check out our YouTube playlist! - https://youtube.com/playlist?list=PL40rLlxGS4VzgAjW8P6Pz1mVWiN0Jou3v
If you'd like to learn more about the Morton Cure Paralysis Fund you can visit our website at - https://mcpf.org/
Donations are always appreciated - https://mcpf.org/you-can-help/