69 episodes

The latest information from medical and nutrition experts about living with celiac disease and managing a gluten-free lifestyle!

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    • Nutrition

The latest information from medical and nutrition experts about living with celiac disease and managing a gluten-free lifestyle!

    Hot Topics at the 2020 Columbia Celiac Symposium

    Hot Topics at the 2020 Columbia Celiac Symposium

    Today we are talking about the recent Celiac Disease Symposium at the Columbia Celiac Disease Center. This biennial event hosts two forums, one scientific and one clinical, and attracts, researchers, physicians, patients, parents, and nutritionists from around the world. It’s an amazing time to come together to learn, see old friends and make some new ones. Unfortunately, this year because of the Corona virus, the conference had a last-minute shift and only the speakers were able to gather in New York City. Thankfully the organizers (Dr. Peter Green and his team) were able to set up a web-based service so that the attendees could tune in via live stream and still partake in the incredible sharing of knowledge. 

    Since we know many of our listeners were unable to attend, we are going to do a recap of the conference today on the podcast and talk about some of the big topics with one of our favorite guests, Dr. Jocelyn Silvester from Boston Children’s Hospital.

    Thank you to the Global Autoimmune Institute for their ongoing support to make this podcast possible. 

    • 22 min
    Is a Gluten-Free Diet More Aspirational Than Achievable?

    Is a Gluten-Free Diet More Aspirational Than Achievable?

    Todays’ topic is about the recent “Doggie Bag” study published in the journal Gastroenterology, that suggests that a truly “gluten-free diet may be more aspirational than achievable.” We talk a lot about strict gluten-free diets on the podcast, but this study points out that even at our strictest, we may still be exposed to gluten.  

    To help us better understand why this is and what it means for the future of patients with celiac disease, we have Dr. Jocelyn Silvester from Boston Children’s Hospital in the studio. Dr. Silvester is the lead researcher on the study and one of our favorite podcast guests!

    • 17 min
    Narrowing the Gap in Health Education in Celiac Disease

    Narrowing the Gap in Health Education in Celiac Disease

    Education is really important when it comes to living with a chronic disease. With celiac disease, patients and their families have to keep up reading food labels, new food products, changing food products, drug development, and research. Medical providers have to stay current on new testing methods, guidelines for managing the disease, and all of the food stuff too in order to help patients manage the gluten-free diet. It’s a lot! 

    On this episode of the podcast, we're sitting down with Dr. Alan Leichtner, the Chief Medical Education Officer at Boston Children’s Hospital to discuss celiac disease education. He’s going to talk to us about education of patients and families as well as education of medical professionals…and he’s going to answer some of our listener questions about what to do if you think your doctor needs a little beefing up on celiac disease! 

    Links we talk about on the episode: 
    NASPGHAN Clinical Guide: https://naspghan.org/professional-resources/medical-professional-resources/celiac-disease/  Evidence-Informed Recommendations for the Management of Celiac Disease in Children: https://pediatrics.aappublications.org/content/138/3/e20153147Celiac Disease Foundation: https://celiac.org/about-celiac-disease/what-is-celiac-disease/

    • 39 min
    Food Bullying and Celiac Disease

    Food Bullying and Celiac Disease

    Food bullying. It can range from teasing others at school or online in social media groups, to kids throwing bread at children with celiac disease. In many cases it’s parents that are doing the bullying...But how do you address this problem? As the issue has come up numerous times in the past few weeks in our Celiac Clinic at Children's National Hospital, we wanted to address it on the podcast. Joining Vanessa in the studio are two of the CNMC community education specialists, Kate Raber and Joyana McMahon. 

    Links in Episode: 
    The Princess and the Peanut Allergy: https://www.amazon.com/Princess-Peanut-Allergy-Wendy-McClure/dp/0807566233Can I Have Some Cake Too? https://www.amazon.com/Have-Story-about-Allergies-Friendship/dp/1935914286What Treat Can Ruben Eat? https://www.amazon.com/What-Treat-Can-Ruben-Eat/dp/1481753762Pediatrics study: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3529950/
     

     

    • 22 min
    Gluten-Free Travel Finds with Leslie Bari of Gluten-Free Finds PA

    Gluten-Free Travel Finds with Leslie Bari of Gluten-Free Finds PA

    Today’s topic is an always popular one. We all love to travel, it’s one of the best parts of life. But doing so is a bit more complicated while following a gluten-free lifestyle. Today we have an expert to share some of her favorite tips for gluten-free travel. Leslie Bari is the founder of Gluten Free Finds PA and the Constitutional Walking Tour. She loves to find and share her gluten-free finds and travel tips with her readers and has built quite a community doing so. We’re so happy to have her join us today to share some of her travel wisdom!

    • 16 min
    Social Media and Celiac. Has Facebook Become Your Doctor?

    Social Media and Celiac. Has Facebook Become Your Doctor?

    Most of us use social media in one way or another to connect with family, friends, and other communities that enrich our lives. But sometimes social media groups present information about medical conditions that is just wrong. It's frightening that some people might take online posts as fact instead of talking to their doctor or other health care professional.  To help us talk about these issues we have a wonderful group here in the studio…Our Children's National Community Education Specialist Joyana McMahon….and one of our amazing board members Maureen Basye, who is a mom to a child with celiac disease and the founder of Celiac Cruise. 

    Thank you to the Walter and Jean Boek Global Autoimmune Institute for their ongoing support to make this podcast possible. 

    • 21 min

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