26 episodes

Join Gwen & Kristen on their proverbial couch (the most INCLUSIVE of couches) as they share irreverently honest stories and wisdom gained through a collective 35 years of parenting FIERCELY EPIC neurodiverse humans.  These friends have spent eons talking together about the hilarity and the hard of their parenting journeys and they want to invite you into those conversations too.  Thanks for tuning in. They already think you're rather fantastic. To get more of Gwen & Kristen, join our newsletter:  https://www.youdontwantahug.com/

You Don’t Want a Hug, Right? The Hilarity and the Hard of Raising Humans with Neurodiversity Gwen & Kristen

    • Kids & Family

Join Gwen & Kristen on their proverbial couch (the most INCLUSIVE of couches) as they share irreverently honest stories and wisdom gained through a collective 35 years of parenting FIERCELY EPIC neurodiverse humans.  These friends have spent eons talking together about the hilarity and the hard of their parenting journeys and they want to invite you into those conversations too.  Thanks for tuning in. They already think you're rather fantastic. To get more of Gwen & Kristen, join our newsletter:  https://www.youdontwantahug.com/

    Ep 23: Puberty & Autism Don’t Mix: Navigating Puberty with Our Neurodivergent Kids

    Ep 23: Puberty & Autism Don’t Mix: Navigating Puberty with Our Neurodivergent Kids

    And we’re not going to sugar coat it friends: navigating puberty with neurodivergent kids is rough. And it’s not just because we have to explain to our kids the importance of showering and explaining the function of certain parts of their anatomy in great and uncomfortable detail.
    Puberty also brings with it some intense emotional and personality changes. The little kids that we knew so well are maturing into adults that we often don’t understand quite as well anymore, and that transition can be tough too.
    In this episode, we’re reflecting on what puberty looked like for our kids, the direct and honest ways we navigated conversations with our kids, and the tricky emotional and relationship territory that our kids find themselves in now. 
    All these changes are necessary and important… but that doesn’t make it easy. We’re here for you, friends, as you travel down this road. Let’s dive in! 
    In this episode, you’ll learn…
    [00:00] Intro
    [01:56] Gwen’s very exciting Rylansim and a Grahamism that highlights some personal growth
    [06:16] Why puberty and autism don’t mix well (according to both science and personal experience!)
    [11:25] The very factual, detailed approach that can help some neurodivergent kids navigate puberty more easily (and why it doesn’t work for all of them)
    [17:48] The stark personality changes that Gwen and Kristen’s kids went through during puberty
    [21:11] The difficulties in navigating sexuality and sexual behavior in neurodivergent teens
    [27:44] Why some neurodivergent teens experience additional fear and uncertainty than their peers when it comes to growing up and maturing in new ways
    [35:19] The Last Word
    Get full show notes and the episode transcript: https://www.youdontwantahug.com/post/ep-23-puberty-autism-don-t-mix-navigating-puberty-with-our-neurodivergent-kids
    If you can’t get enough of us, and want stay up to date with our other projects and ways you can connect, join our newsletter: https://www.youdontwantahug.com/

    • 44 min
    Ep 22: Flipping the Lens: the Autistic Experience with Becca Lory Hector

    Ep 22: Flipping the Lens: the Autistic Experience with Becca Lory Hector

    Burnout. It’s a word that comes up often in society and is often synonymous with being tired and needing a vacation. But when it comes to neurodivergent folks, autistic burnout can look radically different and have long-lasting effects.
    In today’s episode, Becca Lory Hector shares her experience of being diagnosed with autism as an adult after an extensive bout of autistic burnout. She explains why her burnout occurred, what support she wished she had received, and what might have kept her from getting to that point, if only she’d had the language and framework to ask for the support she needed.
    She also shares what a workplace that doesn’t only include neurodivergent folks, but offers them truly belonging, would look like, and why this change is so necessary for our workplaces.
    Becca shares so much of herself, and her insights are so enlightening for the parents of autistic and neurodivergent kids. Let’s jump in!
    In this episode, you’ll learn…
    [00:00] Intro
    [02:07] Gwen and Kristen recap their lives since the last episode and share their Rylanism and Grahamism
    [09:54] An introduction to who Becca Lory Hector is and why she’s so passionate about advocacy
    [13:07] Becca’s experience of receiving an autism diagnosis as an adult
    [17:03] The way Becca’s autism presents, after masking for so many years
    [22:10] Becca’s perspective on how parents can prepare their autistic children to advocate for themselves
    [26:24] What autistic burnout is and how it presents differently than is often portrayed in society
    [34:58] The support Becca wishes she could have received while recovering from autistic burnout
    [43:16] Why our workplaces need to change and not just for those with neurodivergence
    [48:21] The “B” in DEIB and why it’s crucial when it comes to making space for autistic folks in the workplace
    [58:17] The Last Word
    Get full show notes and the episode transcript: https://www.youdontwantahug.com/post/ep-22-flipping-the-lens-the-autistic-experience-with-becca-lory-hector
    If you can’t get enough of us, and want stay up to date with our other projects and ways you can connect, join our newsletter: https://www.youdontwantahug.com/

    • 1 hr 11 min
    Neurodiverse Families and the Many Faces of Isolation [Replay]

    Neurodiverse Families and the Many Faces of Isolation [Replay]

    Isolation and loneliness are realities for parenting raising humans with neurodiversity. We’ve experienced both and know how difficult it can be through the many ages and stages of our kids’ lives.
    In today’s episode, we talk all about isolation and loneliness and their impact on neurodiverse families. We go into the data behind it, share stories related to feelings of isolation in many different areas of our lives, and offer strategies for how we’ve coped over the years.
    In this episode, you’ll learn...
    [01:31] Some Rylan-isms and Graham-isms to start off the show
    [05:02] The data on isolation and its impact on neurodiverse families
    [08:52] Kristen’s experience of isolation in raising triplets 
    [16:10] How Gwen’s isolation began during infertility
    [19:30] What isolation looked like for us during our children’s early education years
    [26:36] How we spent so many years trying to be “typical” families when we’re anything but
    [31:14] The isolation we felt from our religious communities
    [35:53] The difference between isolation and loneliness and how we’ve learned to cope and find support
    [43:27] The Last Word from one of our kids and their thoughts on isolation
    Get full show notes and the episode transcript:
    https://www.youdontwantahug.com/post/ep-3-neurodiverse-families-and-the-many-faces-of-isolation
    If you can’t get enough of us, and want stay up to date with our other projects and ways you can connect, join our newsletter: https://www.youdontwantahug.com/

    • 45 min
    Ep 21: The Purgatory of the Therapy Waiting Room

    Ep 21: The Purgatory of the Therapy Waiting Room

    Therapy plays an important role in our neurodiverse children’s lives… But let’s be real: the act of constantly driving all over to drag our kids into dingy, uncomfortable waiting rooms multiple times a week is not fun. 
    In this episode, Gwen and Kristen dive into this phenomenon: why parents of neurodiverse kids end up in this situation, how to make the process and experience a little more tolerable, and when it might be time to pull the plug on certain therapies (and escape the excruciating waiting room experience.) 
    Plus, we’ve got our usual -isms, The Last Word from our kids, and Gwen even wrote a little ditty about the waiting room experience. This is one super relatable episode that you won’t want to miss.
    In this episode, you’ll learn…
    [00:00] Intro
    [05:51] What those waiting rooms where we spent hours, days, and months in with ALL of our kids are actually like
    [09:10] Gwen’s waiting room ditty
    [14:49] The things (and people) that made waiting in those dingy little rooms more tolerable
    [16:17] What it felt like to question the usefulness of therapy in those waiting rooms
    [22:34] The benefits and limitations of talk therapy for our neurodivergent children
    [28:04] Our key takeaways from this episode on the purgatory that is the therapy waiting room and how to make it just a little bit better
    [30:05] The Last Word
    Get full show notes and the episode transcript: https://www.youdontwantahug.com/post/ep-21-the-purgatory-of-the-therapy-waiting-room
    If you can’t get enough of us, and want stay up to date with our other projects and ways you can connect, join our newsletter: https://www.youdontwantahug.com/

    • 34 min
    Ep 20: Inclusion over Ego: How the Special Olympics Organization Embraced Universal Design with Jen VanSkiver

    Ep 20: Inclusion over Ego: How the Special Olympics Organization Embraced Universal Design with Jen VanSkiver

    Sports can be critically important to a child’s development and even their family’s place in the community. That’s why our kids, regardless of ability, deserve more than a church basement to hone those social connections and their skills as athletes!
    In today’s episode, we’re interviewing Jen VanSkiver, Chief Officer of Strategic Growth for Special Olympics of Michigan and her daughter’s biggest advocate. You’ll learn how Jen has helped to facilitate the creation of a first-of-its-kind Unified Inclusion Center, how its stakeholders informed the building’s design, and why this project serves so much purpose for everyone, not just people with disabilities. Listen in now to hear how we’re changing the game of unified sports!
    In this episode, you’ll learn…
    [11:42] What led to Jen’s work at Special Olympics
    [22:07] What the Unified Inclusion Center is and why it exists
    [31:57] How stakeholders contributed to the design discussions
    [42:55] The Last Word
    Get full show notes and the episode transcript: https://www.youdontwantahug.com/post/ep-20-inclusion-over-ego-how-the-special-olympics-organization-embraced-universal-design-with-jen
    If you can’t get enough of us, and want stay up to date with our other projects and ways you can connect, join our newsletter: https://www.youdontwantahug.com/

    • 47 min
    Ep 19: Universal Design for Classroom Spaces with Virginia Tech

    Ep 19: Universal Design for Classroom Spaces with Virginia Tech

    The classroom is the essential component across every school from K-12 to higher education. So why is it that physical space is often overlooked as being a central player in the learning experience? If you’re a parent to a child with a disability, then you know that their environment can make all the difference!
    In today’s episode, we’re interviewing Dr. Elif Tural and Dr. David Kniola, experts in the field of universal design and its various applications in educational settings and beyond. They share what universal design actually is, common barriers to learning in typical classrooms, and important aspects to consider when designing equitable spaces. Listen in to hear how universal design can benefit both neurodivergent populations and entire communities as a whole!
    In this episode, you’ll learn…
    [15:24] Defining universal design and purposeful learning spaces
    [18:53] Common barriers to learning in typical educational settings
    [22:13] Important aspects to consider in universal design and wayfinding
    [26:47] The process of designing equitable spaces and why they benefit the whole
    [33:42] Simple design solutions that can be implemented in classrooms right away
    Get full show notes and the episode transcript:
    https://www.youdontwantahug.com/post/ep-19-universal-design-for-classroom-spaces-with-virginia-tech
    If you can’t get enough of us, and want stay up to date with our other projects and ways you can connect, join our newsletter: https://www.youdontwantahug.com/

    • 45 min

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