Radio Rare Rare Cancers Australia
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Radio Rare is a podcast where we share the stories of those in and around the rare and less common cancer community.
Being diagnosed with a rare cancer doesn’t mean you’re alone. Radio Rare will dive into the human stories of the rare cancer experience, the innovation and the advocacy.
Addressing the feeling of isolation experienced by so many, we look to create a close community of those affected by rare and less common cancers.
Produced by Rare Cancers Australia
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Fundraising for treatments only available overseas
Two-year-old Luna’s family is fundraising for treatments only available overseas for her rare childhood cancer, neuroblastoma. They sat down with Gary Hardgrave on the 4BC Radio Drive program to share their experiences.
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RCA CEO, Christine Cockburn, interviewed with i98 Power FM radio on the need for a pan-tumour approach to cancer care
People living with cancer urgently need action on expanded access to precision therapies
Over the past two decades, our ability to rapidly obtain genomic information on an individual and their cancer has led to a dramatic shift in how we can diagnose, treat, monitor and prevent cancer, leading to an era of precision oncology.
With this expanded knowledge of cancer there are several promising treatments that can specifically target the drivers of an individual’s cancer, that are already under review through Australia’s health technology assessment process. Too many people living with cancer in Australia still don’t have access; and they can’t afford to wait. -
What happens when you are diagnosed with a rare cancer?
In this edition of The Conversation Hour, hosted by ABC Radio Melbourne, we hear the experiences of callers who have been diagnosed with a rare cancer and their families. We also learn about the latest developments in treatment and support with guests Professor Clare Scott who is a clinician scientist, leading the ovarian and rare cancer laboratory at WEHI and Danielle Spence from the Cancer Council Victoria.
Credits
Richelle Hunt, Presenter
All rights belong to ABC Radio Melbourne. -
ABC Radio Interview: The cost of treatment for rare cancers
Noel Carmona, living with thymic carcinoma, and Rare Cancers Australia CEO Christine Cockburn, sat down with ABC Radio in the Upper Hunter to talk about the cost of treatment for people diagnosed with a rare cancer, and what needs to change to make things fair for rare.
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Thought Leader Series: Thinking big, how we can make a difference for patients, Professor Grant McArthur
Professor Grant McArthur
Executive Director, VCCC Alliance
Head of the Molecular Oncology Lab, Peter Mac
Thinking big: how we can make a difference for patients
In this episode, RCA Chief Executive Richard Vines speaks to Professor Grant McArthur about:
· The challenges of personalising cancer treatment
· How the moon landing sparked a career in medicine
· Why he chose to specialise in cancer, and melanoma
· What gets him out of bed in the morning, and what drives him
· The vision of the VCCC, and how it came about
· Why he moved from a full-time research and clinical role to a leadership position
· The sensitivities around prescribing medications that are not PBS funded
· The gaps between published evidence, TGA approval and PBS listing
· Ideas on how to speed up patient access to life-extending and life-saving treatment
· The challenges and opportunities of developing combination treatments
· How we can continue to improve cancer outcomes in the next 10 years
More about Professor Grant McArthur
Grant is the Executive Director of the VCCC Alliance, a powerful partnership of 10 leading research, academic and clinical institutions, working together to fundamentally reshape the way we tackle cancer. Grant is also Head of the Molecular Oncology Lab at the Peter MacCallum Cancer Centre, and a highly cited melanoma researcher. -
Thought Leader Series: The future of cancer and medical research, Emeritus Professor Ian Frazer
Emeritus Professor Ian Frazer
University of Queensland
The future of cancer and medical research
In this episode, RCA Chief Executive Richard Vines speaks to Professor Ian Frazer about:
Inventing the technology behind the world’s first cancer vaccine
Vaccine hesitancy, and the potential of other vaccines for cancer
What makes the Translational Research Institute so special
The interface between clinicians, scientists and patients in medical research
Our expanding understanding of cancer and targeted treatment
The experience of being Australian of The Year, and what he’s working on now
How the Medical Research Future Fund works
The alleged brain drain of medical researchers from Australia
The need to better embed medical research into the health system
How he sees medical research benefiting patients in 10 years’ time
More about Emeritus Professor Ian Frazer
Ian and his colleague co-invented the technology behind the world’s first cervical cancer vaccine.
He is the founding CEO of the Translational Research Institute in Brisbane, heads a biotechnology company working on new vaccine technologies, and chairs the advisory board of the Medical Research Future Fund.