Global Hemophilia Report BloodStream Media

Historically, camps for kids with hemophilia have played a specific and valuable role, enabling a young person with hemophilia to experience all the benefits of a traditional, summer camp experience. On this episode, we dig into the camp experience with some of the leading voices within the space. 
Contributors:
Tracey Gaslin PhD, CPNP, FNP-BC, CRNI, RN-BC
Michael Wang, MD
Pat Torrey
Sarah Shinkman
Chris Bombardier
 
Senior Advisor:
Donna DiMichele, MD
 
Hosted by:
Patrick James Lynch
 
Written by:
Simantini Karve, PhD
 
Show Notes:
Presenting Sponsor: Sanofi
 
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Historically, people with hemophilia and especially children, have lived with considerable limitations when it comes to engagement in sports and athletics, thereby missing out on the numerous biopsychosocial and general health. However, both advancements in hemophilia care/treatment and advancements in understanding the benefits of engaging in sports have significantly changed the risk/benefit equation– but exactly, how?
 
Contributors:
Marilyn Manco Johnson, M.D.
Olav Versloot, PhD
Paul Mclaughlin
Chris Bombardier
 
Senior Advisor:
Donna DiMichele, MD
 
Hosted by:
Patrick James Lynch
 
Show Notes:
Presenting Sponsor: Sanofi
 
Subscribe to the Global Hemophilia Report
 
Watch the film Bombardier Blood
Listen to The Final Summit podcast
 
Connect with the Global Hemophilia Report
Global Hemophilia Report on LinkedIn
Global Hemophilia Report on Twitter
Global Hemophilia Report on Facebook
 
Connect with BloodStream Media:
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On this episode we’re in conversation with research leaders to learn more about the current state of hemophilia research, the barriers and opportunities we're facing today, and what the future of hemophilia research might look like.  
 
Contributors:
Flora Peyvandi, MD, PhD
Keith Hoots, MD
Len Valentino, MD
Michelle Witkop, DNP, FNP-BC
Glenn Pierce, MD, PhD
 
Senior Advisor:
Donna DiMichele, MD
 
Hosted by:
Patrick James Lynch
 
Show Notes:
Presenting Sponsor: Sanofi
 
Subscribe to the Global Hemophilia Report
 
Connect with the Global Hemophilia Report
Global Hemophilia Report on LinkedIn
Global Hemophilia Report on Twitter
Global Hemophilia Report on Facebook
 
Connect with BloodStream Media:
BloodStreamMedia.com
BloodStream on Facebook 
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There has been a remarkable increase in the life expectancy of persons living with hemophilia (PLWH) over the past century, largely due to access to safe factor replacement products.  However, the course of progress has been uneven, and rocky, for many. This is part two of our series on Aging with Hemophilia.
Contributors:
William McKeown, MD
Randall Curtis
Gerry Dolan, MD, MBChB, FRCP, FRCPath
Barbara Konkle, MD
Sara L. Schwartz, PhD 
Tam Perry, PhD
 
Senior Advisor:
Donna DiMichele, MD
 
Hosted by:
Patrick James Lynch
 
Show Notes:
Presenting Sponsor: Sanofi
 
Subscribe to the Global Hemophilia Report
 
Connect with the Global Hemophilia Report
Global Hemophilia Report on LinkedIn
Global Hemophilia Report on Twitter
Global Hemophilia Report on Facebook
 
Connect with BloodStream Media:
BloodStreamMedia.com
BloodStream on Facebook 
BloodStream on Twitter 
 

There has been a remarkable increase in the life expectancy of persons living with hemophilia (PLWH) over the past century, largely due to access to safe factor replacement products.  However, the course of progress has been uneven, and rocky, for many.
 
Contributors:
William McKeown, MD
Randall Curtis
Gerry Dolan, MD, MBChB, FRCP, FRCPath
Barbara Konkle, MD
 
Senior Advisor:
Donna DiMichele, MD
 
Hosted by:
Patrick James Lynch
 
Listen to Blood of the Paladin Podcast
 
Show Notes:
Presenting Sponsor: Sanofi
 
Subscribe to the Global Hemophilia Report
Listen to BloodStream’s Journey to Joint Health episode.
 
Connect with the Global Hemophilia Report
Global Hemophilia Report on LinkedIn
Global Hemophilia Report on Twitter
Global Hemophilia Report on Facebook
 
Connect with BloodStream Media:
BloodStreamMedia.com
BloodStream on Facebook 
BloodStream on Twitter 

Renowned hematologist, researcher, and senior advisor to the Global Hemophilia Report Dr. Donna DiMichele shares some of her Season 1 takeaways and thoughts about the future of hemophilia research.
Senior Advisor:
Donna DiMichele, MD
 
Hosted by:
Patrick James Lynch
 
Show Notes:
Presenting Sponsor: Sanofi
 
Subscribe to the Global Hemophilia Report
Listen to BloodStream’s Journey to Joint Health episode.
 
Connect with the Global Hemophilia Report
Global Hemophilia Report on LinkedIn
Global Hemophilia Report on Twitter
Global Hemophilia Report on Facebook
 
Connect with BloodStream Media:
BloodStreamMedia.com
BloodStream on Facebook 
BloodStream on Twitter