58分

Jessica and Caleb Confessions of a Special Needs Parent

    • 子育て

September 9, 2021 

In this episode, we talk to Jessica, mom to 10-year-old Caleb who was born with Pierre Robin Sequence, or PRS for short. PRS is a condition with several clinical features: a small lower jaw (micrognathia), displacement of the tongue toward the back of the oral cavity (glossoptosis) and, often but not always, an opening in the roof of the mouth (cleft palate). Jessica had to fight for the diagnosis because the doctors did not believe Caleb fit the criteria. She explains why it's so important to be a voice and advocate for our children. Follow us on Instagram -- @snconfessions. Visit us and give us a ‘like’ on our Facebook page https://www.facebook.com/SNCONFESSIONS/. 

SPONSOR -- Amanda Jessup from @illuminatedsketchbook. Amanda is an author, illustrator, and digital artist who makes beautiful custom sketches. Check out her artwork on Instagram!  

You can now support our podcast and help keep our show going by visiting https://anchor.fm/csnp/support. Monthly donations start at just $0.99 per month. 

If you liked this episode, please share it with your family and friends! 

You can go to https://anchor.fm/csnp/message to leave us a voice message and let us know what you think of the podcast, leave a confession, or just say hi!  

Thanks so much for listening! ~Rachel


---

Send in a voice message: https://podcasters.spotify.com/pod/show/csnp/message
Support this podcast: https://podcasters.spotify.com/pod/show/csnp/support

September 9, 2021 

In this episode, we talk to Jessica, mom to 10-year-old Caleb who was born with Pierre Robin Sequence, or PRS for short. PRS is a condition with several clinical features: a small lower jaw (micrognathia), displacement of the tongue toward the back of the oral cavity (glossoptosis) and, often but not always, an opening in the roof of the mouth (cleft palate). Jessica had to fight for the diagnosis because the doctors did not believe Caleb fit the criteria. She explains why it's so important to be a voice and advocate for our children. Follow us on Instagram -- @snconfessions. Visit us and give us a ‘like’ on our Facebook page https://www.facebook.com/SNCONFESSIONS/. 

SPONSOR -- Amanda Jessup from @illuminatedsketchbook. Amanda is an author, illustrator, and digital artist who makes beautiful custom sketches. Check out her artwork on Instagram!  

You can now support our podcast and help keep our show going by visiting https://anchor.fm/csnp/support. Monthly donations start at just $0.99 per month. 

If you liked this episode, please share it with your family and friends! 

You can go to https://anchor.fm/csnp/message to leave us a voice message and let us know what you think of the podcast, leave a confession, or just say hi!  

Thanks so much for listening! ~Rachel


---

Send in a voice message: https://podcasters.spotify.com/pod/show/csnp/message
Support this podcast: https://podcasters.spotify.com/pod/show/csnp/support

58分