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Cortical visual impairment (CVI) is the leading cause of pediatric visual impairment in the developed world. The eyes can see, but the brain can't interpret the visual world. Due to neuroplasticity, the functional vision of a child with CVI can improve. The number of children with CVI is growing, so why isn't anyone talking about this public health crisis? We are.

Music by Storm Crews. Art by Ian Kleinfeld.

Kaleidoscope: The Cortical Visual Impairment Podcast Jessica Marquardt, CVI Parent Advocate

    • 子育て

Cortical visual impairment (CVI) is the leading cause of pediatric visual impairment in the developed world. The eyes can see, but the brain can't interpret the visual world. Due to neuroplasticity, the functional vision of a child with CVI can improve. The number of children with CVI is growing, so why isn't anyone talking about this public health crisis? We are.

Music by Storm Crews. Art by Ian Kleinfeld.

    Team Archer! | Cheyanne Marcy | 13

    Team Archer! | Cheyanne Marcy | 13

    Cheyanne Marcy has been an advocate on big stages, on everyday social media platforms and in day-to-day life on behalf of her son, Archer (5). She values action and advocacy – and has navigated not one, not two, but three state education systems. We sit down to talk about overcoming the fear of speaking up, vital services and resources for kids with CVI and NeuroMovement.

    • 1 時間2分
    This Mom With a Blog | Mia Carella | 12

    This Mom With a Blog | Mia Carella | 12

    Mia Carella of thismomwithablog.com shares wisdom from the head and the heart, which comes from navigating life as a CVI mom / heart mom. (Her daughter Evalyn, 8, has cortical visual impairment and a congenital heart defect.) Mia describes the ups and downs of being a special needs parent and why we should let go of the Super Mom ideal.

    • 30分
    Word Bubble Much? | Tommy Szalapski | 11

    Word Bubble Much? | Tommy Szalapski | 11

    Tommy Szalapski – Google accessibility engineer and CVI dad – has created a new app for CVI literacy. The Roman Word Bubbling project automates the tedious process of adding color outlining to letters, numbers and words, based on Dr. Christine Roman’s CVI literacy research and methodology.

    • 21分
    Rosalie, Small but Mighty| Stephanie Kung | 10

    Rosalie, Small but Mighty| Stephanie Kung | 10

    Rosalie (1.5) has hydrocephalus, a build-up of fluid in the cavities deep within the brain, which comes with the risk of vision problems. After Rosalie's cortical visual impairment (CVI) diagnosis, mom Stephanie Kung quickly learned how to implement CVI-friendly routines and started a blog called Everyday CVI. She talks about Rosalie’s tremendous progress, how to advocate for CVI-appropriate early intervention services and that moment when you realize you are a special needs parent.

    • 59分
    Emma’s Renaissance | Lynn Elko | 9

    Emma’s Renaissance | Lynn Elko | 9

    When Emma (16) received a cortical visual impairment diagnosis at age four, CVI literature was not widely available. The consensus was “this is just what she has, live with it,” says her mother, Lynn Elko. Her family didn’t know great gains could be made. They didn’t know how to help her learn or meet developmental milestones. Then Lynn discovered what kids with CVI can accomplish with strategic, appropriate interventions that give them visual access to the world. And that changed everything.

    • 45分
    Helping River Read | Judy Endicott | 8

    Helping River Read | Judy Endicott | 8

    Judy Endicott works with her grandson River (9) on his reading skills, relying on her background as a special educator and continuing education in CVI principles and practices. How does she manage to keep up with his needs, including the countless custom materials he requires to access print? What techniques does she use to motivate him to practice? Judy talks about putting the CVI overlay on River’s reading curriculum.

    • 46分

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