Empowering Voices: The Transformative Power of Public Involvement in Health Research Connecting Citizens to Science

Welcome to another episode of the Connecting Citizens to Science podcast, where we explore the dynamic role of public involvement in advancing health research. In this episode, hosted by Dr. Kim Ozano, we delve into the impactful world of Patient and Public Involvement (PPI) with insights from the PPI Summer School at the University of Limerick.
Episode Guests:
Dr. Jon Salsberg - Senior Lecturer in Primary Healthcare Research, University of Limerick
A dedicated public health researcher, Dr. Salsberg has an academic background in health promotion and development anthropology. His research primarily explores the dynamics of research partnerships and the transition of research leadership from academic institutions to community stakeholders.
Over his career, Dr. Salsberg has been involved in collaborative research with a diverse array of stakeholders, including patients, health practitioners, community organisations, policymakers, and health service decision-makers. His extensive work with indigenous communities includes his significant involvement in the Kahnawake Schools Diabetes Prevention Project, which is detailed here.
In this episode, Jon discusses the evolution and impact of the PPI IGNITE Network.
Lora Ruth Wogu - Founder and CEO of Sickle Cell and Thalassemia Ireland
Lora Ruth Wogu is an Allied Health Professional and a passionate advocate for diversity, equity, and inclusion in healthcare, focusing on quality patient care for migrants and individuals with disabilities. As the founder and CEO of Sickle Cell and Thalassemia Ireland, she champions initiatives to educate and improve care for those affected by these conditions. Lora also leads the Migrant Health Alliance, aiming to enhance research participation and address barriers faced by migrant communities in healthcare settings. Her work is driven by a commitment to ensuring compassionate, competent, and inclusive healthcare for all, making her a respected voice in health advocacy and policy discussions.
Lora shares her experiences with engaging migrant communities in health research.
Alison Johnson - keynote speaker PPI Summer School 2023
Alison is a passionate advocate for patient, public, and carer involvement in healthcare, focusing on serious medical conditions. Her work in PPI began as a research participant, evolving into roles as a collaborator, where she champions the inclusion of patient and carer voices in health research. A lifelong learner, Alison's voluntary efforts extend to mentoring researchers and advising on best practices for effective patient engagement.

In This Episode:
Introduction to PPI and its Significance
Dr. Kim Ozano introduces the concept of patient and public involvement and its critical role in shaping health research.
Deep Dive with Dr. Jon Salsberg
Learn about the establishment and achievements of the PPI IGNITE Network, its goals for institutional change, and how it's transforming health research culture in Ireland.
Community Engagement Insights from Lora Ruth Wogu
Discussion on the challenges and strategies for involving diverse communities, especially migrants, in health research to ensure their voices are heard and represented.
Experiences from the Field with Alison Johnson
Alison shares her personal experiences and the importance of having meaningful contributions from public collaborators in research projects.
Email us at hello@thesclagency.co.uk for more information or to share your thoughts.
Subscribe and follow us:
Don’t forget to subscribe to our podcast on platforms like Spotify, Apple Podcasts, and Google Podcasts. Rate us and leave