Patient Centricity ZS

Dennis’s storyDennis is a retired minister, husband and father who is focused on his artwork and writing a series of books for his grandchildren. Dennis was diagnosed with multiple myeloma at 72 and he is currently in remission. In his own words, “my hope for the future is to live to 100, with sound mind and body… I love life and I love living and I have more appreciation for life than ever before.” Produced by Samantha Keyes and Georgianna Moreland

Marsha’s storyMarsha is a proud grandmother who dreams of taking her granddaughters to Disney World, gardening and finding love. She was diagnosed with MS at 37 after spending years caring for other MS patients. In her words, “I am dealing with it my way. I am dealing with it by being optimistic. I pray a lot and I take good care of myself…This is not the end for me. This is close to the beginning.” Produced by Samantha Keyes and Georgianna Moreland

Nicole’s storyNicole Johnson is the co-founder of the FOXG1 Research Foundation and the mother of 11-year Josie who suffers with a rare neurological condition, FOXG1 Syndrome. With more than two decades of experience in media and communications, Nicole serves as Executive Director overseeing every vertical across the organization. Nicole was a co-founder and Director of Communications for streaming music service, Qello Concerts, sold to Stingray in 2018. Prior, Nicole was a producer for CNN a...

MaryAnn’s storyMaryAnn is a wife, mother, sister and grandmother who looks forward to being more active, traveling and spending time with her grandchildren. She was diagnosed with multiple myeloma at 67 and is currently in remission. In her words, “I am not worried about multiple myeloma doing me in… I am stronger than that.” Produced by Samantha Keyes and Georgianna Moreland

Nathan Peck is the CEO of Cure VCP Disease, a VCP disease patient, husband and father.Nathan possesses a Bachelor of Industrial Engineering from the Georgia Institute of Technology as well as an MBA and Masters of Civil and Environmental Engineering from the Massachusetts Institute of Technology. As a patient, in January 2018, he formed Cure VCP Disease, Inc. along with a passionate group of IBMPFD patients, caregivers and researchers. Through Cure VCP Disease, Inc. he is committed to b...

“Patients in their own words,” features patients sharing their health journeys, the challenges they face and their hopes for the future. Many of the participants are from ZS’s Patients as People Co-Lab, a panel of patients that work with ZS across multiple initiatives and issues. Other patient participants were identified through ZS’s work in rare diseases. Being patient-led starts with listening. These inspirational stories can serve as guideposts for pharma, and healthcare in general, ...