100 afleveringen
Stronger Every Day Bo Bigelow
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- Kind en gezin
I quit my law job to be at home with my kids. Turns out our daughter Tess has a rare genetic disorder called Hao-Fountain Syndrome, or USP7. She's different. And now, so is everything else. #USP7 #HaoFountainSyndrome #autism
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#485: Costa Rica - Part 2
More stories from near the equator. Part 2 of 2 about our recent trip with Tess to Costa Rica.
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#484: Costa Rica - Part 1
It's time. It's time to take Tess out of the United States and into another country.
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#483: I Can Do It, I Know How
We have a saying in our house. We talk about "the age of independence". And yes, there are some eyerolls from our kids, but we push them to do stuff for themselves.
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#482: Eclipse
A rare event. A solar eclipse in the United States. Where was Tess on that day, and what was she doing?
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#481: A Massive Piece of the Quest for a Cure
You're busy. Sometimes you think about how busy you were a year ago and think wistfully--man, that wasn't busy at all compared to now! But in spite of this busyness, there's something that's required from all Hao-Fountain patients.
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#480: Thirteen Gallons of Milk
I always tell you I got more questions than answers. But this week, I've come up with an answer. And it's helping me every single day.