46 episodes

Connecting ALS is a weekly podcast produced by The ALS Association’s national office and the Association’s Minnesota/North Dakota/South Dakota Chapter. We aim to discuss research and technology developments, highlight advocacy efforts, and share the personal stories woven through the community.

Connecting ALS ALS Association

    • Health & Fitness

Connecting ALS is a weekly podcast produced by The ALS Association’s national office and the Association’s Minnesota/North Dakota/South Dakota Chapter. We aim to discuss research and technology developments, highlight advocacy efforts, and share the personal stories woven through the community.

    "A Sunny Conversation…"

    "A Sunny Conversation…"

    Welcome to Connecting ALS. This week we chat with ALS advocate Sunny Brous, who shares how she finds hope and maintains connections during what has been a rollercoaster of a year.

    • 27 min
    "Living With ALS When A Natural Disaster Hits…"

    "Living With ALS When A Natural Disaster Hits…"

    Welcome to Connecting ALS. This week we are joined by Donnie Graham and Jan Steinbock, who tell us how they are facing wildfires and a global pandemic with ALS.

    • 35 min
    "Injecting a Dose of Hope and Urgency in the Fight…"

    "Injecting a Dose of Hope and Urgency in the Fight…"

    Welcome to Connecting ALS. This week we continue the discussion around Amylyx Pharmaceutical’s phase 2 clinical trial results of AMX0035, which was shown to slow down progression of ALS in trial participants.

    • 41 min
    "Expediting Access to a Promising New ALS Drug…"

    "Expediting Access to a Promising New ALS Drug…"

    Welcome to Connecting ALS. This week we dig into the latest development out of Amylyx Pharmaceuticals, which recently announced findings of a phase 2 clinical trial of AMX0035, a drug compound shown to be safe and clinically effective at slowing down disease progression.

    • 29 min
    "College in 2020 and Resources for Families Facing ALS..."

    "College in 2020 and Resources for Families Facing ALS..."

    Welcome to Connecting ALS. This week we discuss what back-to-school means in 2020 for families impacted by ALS.

    • 17 min
    "Hearing Directly From the ALS Community Through ALS Focus…"

    "Hearing Directly From the ALS Community Through ALS Focus…"

    Welcome to Connecting ALS. This week we turn our focus to ALS Focus, a survey platform that brings the needs and perspectives of people living with ALS to the center of our fight.

    • 40 min

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