2 episodes

If you're new to myalgic encephalomyelitis (ME), commonly referred to as chronic fatigue syndrome (CFS), we're here to tell you that you are not alone. There are millions of others like you. At #MEAction, our mission is to advocate for people with ME to raise awareness, educate, and fight for better access, better treatments, and ultimately a cure. Whether you’re new to this disease or you’ve been living with it for decades, there’s something here for you.

We're your hosts, Steven Molony and Jaime Seltzer. Steven is an actor, writer, and filmmaker who makes all of #MEAction's videos and provides lots of voiceover as well. He is an ally to people with ME, Long COVID, and other chronic illnesses. Jaime is #MEAction's director of scientific and medical outreach, and she does research at Stanford University on ME and other complex chronic diseases. She is a person living with ME, and ME runs in her family with both her mother and sister affected.

We'll be interviewing some of the most influential voices in ME/CFS and Long COVID, discussing books and articles on complex chronic disease, having candid chats about life with ME, #MillionsMissing and what it means to #StopRestPace, disability activism and advocacy, art and music from disabled artists you love, and so much more.

If you’re looking for an outlet on the road of chronic illness, you’ve come to the right place.

Chronically Complex #MEAction

    • Leisure
    • 5.0 • 1 Rating

If you're new to myalgic encephalomyelitis (ME), commonly referred to as chronic fatigue syndrome (CFS), we're here to tell you that you are not alone. There are millions of others like you. At #MEAction, our mission is to advocate for people with ME to raise awareness, educate, and fight for better access, better treatments, and ultimately a cure. Whether you’re new to this disease or you’ve been living with it for decades, there’s something here for you.

We're your hosts, Steven Molony and Jaime Seltzer. Steven is an actor, writer, and filmmaker who makes all of #MEAction's videos and provides lots of voiceover as well. He is an ally to people with ME, Long COVID, and other chronic illnesses. Jaime is #MEAction's director of scientific and medical outreach, and she does research at Stanford University on ME and other complex chronic diseases. She is a person living with ME, and ME runs in her family with both her mother and sister affected.

We'll be interviewing some of the most influential voices in ME/CFS and Long COVID, discussing books and articles on complex chronic disease, having candid chats about life with ME, #MillionsMissing and what it means to #StopRestPace, disability activism and advocacy, art and music from disabled artists you love, and so much more.

If you’re looking for an outlet on the road of chronic illness, you’ve come to the right place.

    Fiona Lowenstein

    Fiona Lowenstein

    Fiona is an award-winning independent journalist whose works have been published in The New York Times, Vox, The Guardian, and many other publications. In 2018, they founded Body Politic, a queer feminist wellness collective and events series, which has become a grassroots patient-led health justice organization. Then in 2020, they co-founded Body Politic’s COVID-19 support group which serves over 11,000 COVID-19 patients. Most recently, Fiona embarked on a book project — The Long COVID Survival Guide — now available for pre-order. Follow their incredible work on Instagram and Twitter @fi_lowenstein.

    • 55 min
    Meghan O'Rourke and The Invisible Kingdom

    Meghan O'Rourke and The Invisible Kingdom

    Meghan is a graduate of Yale University, a New York Times bestselling author, a poet, essayist, and memoirist. She worked as an editor at The New Yorker, Slate, and The Paris Review. Her work has been featured in The Atlantic, The New York Times, Harvard Radcliffe Institute, The New Yorker, Scientific American, and The Wall Street Journal. Her written works include Halflife, The Long Goodbye, Once, Sun in Days, and most recently, she’s put out her brand new book, The Invisible Kingdom: Reimagining Chronic Illness. Steven and Jaime discuss her latest book as well as her experience as a mother and accomplished writer living with chronic illness.

    • 53 min

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Woodyrob ,

Wow! Great information!

Awesome podcast. Good to hear the latest info.

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