SMA My Way

Roche
  • 0.0 (0)
  • PERSONAL JOURNALS
  • MONTHLY
SMA My Way Podcast

What’s it like living with spinal muscular atrophy (SMA)? Join Karli, Louise, Martyn and Pia, the SMA My Way Champions, and their special guests as they talk careers, science, dating, travel, parenting, music and fashion and much more.  SMA is a rare neuromuscular disease with a close-knit community of resilient problem-solvers at its heart. Focusing on their passions, the Champions foster conversations that are dynamic, inspiring and bring people together. All episodes are available with subtitles on YouTube: https://www.youtube.com/playlist?list=PLmXzuVn0p6GD0W59WShp5lC2ucwlqVD8E. For a transcript of the episodes and more information: https://global.smamyway.com/resources. Please note, this podcast features the specific, personal stories of individuals with SMA, and their views and experiences do not necessarily represent those of the entire community. This podcast series is sponsored by Roche.  Hosted on Acast. See acast.com/privacy for more information.

Episodes

  1. 25 JUL

    Martyn speaks with Josh Wintersgill, Founder and Entrepreneur - Part 2

    Martyn is a founder, CEO, author, advisor, and social activist, driven by the vision of a truly inclusive world. In part 2 of Martyn's episode he is joined by his friend and entrepreneur, Josh Wintersgill. Together they explore the world of entrepreneurship for disabled founders, navigating the challenges of securing funding, and the profound impact entrepreneurship can have in fostering inclusivity on a global scale. Listen with subtitles via YouTube. For a transcript of this episode: https://global.smamyway.com/resources. Please note, this episode features the specific, personal stories of individuals with SMA, and their views and experiences do not necessarily represent those of the entire community. This podcast series is sponsored by Roche. M-XX-00016668 Date of Preparation: March 2024 Hosted on Acast. See acast.com/privacy for more information.

    29 min

  2. 25 JUL

    Martyn speaks with Josh Wintersgill, Founder and Entrepreneur

    Martyn is a founder, CEO, author, advisor, and social activist, driven by the vision of a truly inclusive world. In part 1 of Martyn's episode he is joined by his friend and entrepreneur, Josh Wintersgill. Together, they delve into their travel adventures, dissecting the complexities of tourism, unveiling innovative solutions in development, and sharing their collective aspirations for the future. Listen with subtitles via YouTube. For a transcript of this episode: https://global.smamyway.com/resources. Please note, this episode features the specific, personal stories of individuals with SMA, and their views and experiences do not necessarily represent those of the entire community. This podcast series is sponsored by Roche. M-XX-00016668 Date of Preparation: March 2024 Hosted on Acast. See acast.com/privacy for more information.

    26 min

  3. 5 JUL

    Care for adults living with SMA in Europe - from critical changes to best practices

    Across Europe, the lived experience of adults with Spinal Muscular Atrophy (SMA) varies drastically. That’s why it’s important that we recognise disparities in care and champion positive change, as advocates for the SMA community. Join us for this episode as we explore perspectives from people living with SMA on best practices and critical changes needed for those living with this rare disease in Europe. Listen with subtitles via YouTube. For a transcript of this episode: https://global.smamyway.com/resources. Please note, this episode features the specific, personal stories of individuals with SMA. Their views and experiences do not necessarily represent those of the entire community. This podcast series is sponsored by Roche. M-XX-00017821. Date of Preparation: June 2024 Hosted on Acast. See acast.com/privacy for more information.

    30 min

  4. 7 FEB

    Pia speaks with Anna Kuusela, leadership coach and business mentor - Part 2

    Pia is the mother of a child with SMA. She's also a caregiver, working professional, student, daughter, wife and so much more! In part 2 of Pia's episode, she's joined by Anna Kuusela, a leadership coach and mentor, to discuss emotional intelligence and the role leaders need to play to ensure better inclusion and diversity in the workplace. Listen with subtitles via YouTube. For a transcript of this episode: https://global.smamyway.com/resources. Please note, this episode features the specific, personal stories of individuals with SMA. Their views and experiences do not necessarily represent those of the entire community. This podcast series is sponsored by Roche. M-XX-00015970. Date of preparation: January 2024. Hosted on Acast. See acast.com/privacy for more information.

    17 min

  5. 10 JAN

    Pia speaks with Anna Kuusela, leadership coach and business mentor

    Pia is the mother of a child with SMA. She's also a caregiver, working professional, student, daughter, wife and so much more! In part 1 of Pia's episode, she's joined by Anna Kuusela, a leadership coach and mentor, to discuss Pia's life as a caregiver and the process of coming to terms with her child's SMA diagnosis. Listen with subtitles via YouTube. For a transcript of this episode: https://global.smamyway.com/resources. Please note, this episode features the specific, personal stories of individuals with SMA, and their views and experiences do not necessarily represent those of the entire community. This podcast series is sponsored by Roche. M-XX-00015751. Date of preparation: December 2023. Hosted on Acast. See acast.com/privacy for more information.

    19 min

  6. 21/11/2023

    Meet Karli, Louise, Martyn and Pia

    Karli is a disabled writer, music enthusiast, and pun connoisseur, and she’s just one of your hosts! In the very first episode of SMA My Way, Karli introduces SMA Champions Louise, Martyn, Pia, their passions and the conversations that inspired them to speak on life with SMA. Listen with subtitles via YouTube. For a transcript of this episode: https://global.smamyway.com/resources. Please note, this episode features the specific, personal stories of individuals with SMA, and their views and experiences do not necessarily represent those of the entire community. This podcast series is sponsored by Roche. M-XX-00015592. Date of preparation: November 2023. Hosted on Acast. See acast.com/privacy for more information.

    21 min

  7. 20/11/2023

    Introducing…SMA My Way

    Introducing Karli, Louise, Martyn and Pia - four incredible people who live with or care for people with Spinal Muscular Atrophy (SMA). Listen with subtitles via YouTube. For a transcript of this episode: https://global.smamyway.com/resources Please note, this podcast features the specific, personal stories of individuals with SMA, and their views and experiences do not necessarily represent those of the entire community. This podcast series is sponsored by Roche. M-XX-00015591. Date of preparation: November 2023. Hosted on Acast. See acast.com/privacy for more information.

    3 min

Trailer

About

What’s it like living with spinal muscular atrophy (SMA)? Join Karli, Louise, Martyn and Pia, the SMA My Way Champions, and their special guests as they talk careers, science, dating, travel, parenting, music and fashion and much more.  SMA is a rare neuromuscular disease with a close-knit community of resilient problem-solvers at its heart. Focusing on their passions, the Champions foster conversations that are dynamic, inspiring and bring people together. All episodes are available with subtitles on YouTube: https://www.youtube.com/playlist?list=PLmXzuVn0p6GD0W59WShp5lC2ucwlqVD8E. For a transcript of the episodes and more information: https://global.smamyway.com/resources. Please note, this podcast features the specific, personal stories of individuals with SMA, and their views and experiences do not necessarily represent those of the entire community. This podcast series is sponsored by Roche.  Hosted on Acast. See acast.com/privacy for more information.

Information

  • Creator
    Roche
  • Years Active
    2023 - 2024
  • Episodes
    7
  • Rating
    Clean
  • Copyright
    © Roche
  • Show Website
    SMA My Way

To listen to explicit episodes, sign in.

Stay up to date with this show

Sign in or sign up to follow shows, save episodes and get the latest updates.
Select a country or region

Africa, Middle East, and India

Asia Pacific

Europe

Latin America and the Caribbean

The United States and Canada