25 avsnitt

My name is Frankie Caputo and on this podcast I have people from all around the world talk to me about their experience with Nystagmus. From students, to parents, to artists, and everyone in the middle, I want to talk to them all! Having Nystagmus can play a huge role in determining the kind of person someone will become. I want to dig into that and find out how Nystagmus has affected the lives of others and share stories of past experiences.

Dancing Eyes Podcast Frankie Caputo

    • Fritid

My name is Frankie Caputo and on this podcast I have people from all around the world talk to me about their experience with Nystagmus. From students, to parents, to artists, and everyone in the middle, I want to talk to them all! Having Nystagmus can play a huge role in determining the kind of person someone will become. I want to dig into that and find out how Nystagmus has affected the lives of others and share stories of past experiences.

    How Can Vision Therapy Help Nystagmus? Dancing Eyes Podcast #25 - Dr Julie Steinhauer

    How Can Vision Therapy Help Nystagmus? Dancing Eyes Podcast #25 - Dr Julie Steinhauer

    Vision therapy and syntonics can be used to improve vision and lessen the movements of people with nystagmus. In episode 25 of the Dancing Eyes Podcast, Dr. Julie Steinhaur joins me to discuss her practice and the benefits of vision therapy and syntonics.
    Have a consultation with Dr. Julie - https://visiont.krtra.com/t/LSW6qNgzcP9c
    Vision Therapy Youtube Channel - https://www.youtube.com/@visontherapy/videos
    TIMESTAMPS
    0:00 Intro
    1:05 What is vision therapy?
    1:55 What is syntonics?
    3:30 Are the syntonics always used when you practice vision therapy?
    4:20 All of Dr. Julie’s patients have experienced at least a 2 line increase in their vision acuity.
    8:20 What is the youngest age that Dr. Julie would have a patient do syntonics?
    12:00 Do you see a decrease in the eye movements of your nystagmus patients?
    16:35 Breathing technique demonstrations to slow down eyes
    21:00 Does the new and improved vision remain once therapy is complete?
    23:50 Vision therapy is available both in person and virtually.
    30:20 How does someone know whether they should go for vision therapy or for a surgical procedure?
    34:40 Do you see an increase in balance in your nystagmus patients?
    37:40 Can you tell me some of your favorite success stories?
    39:30 What are some common misconceptions about syntonics and why do some people choose to not practice vision therapy with them?
    43:40 How much would vision therapy cost?
    48:45 Closing words
    Podcast Instagram: https://www.instagram.com/dancingeyespodcast/
    Personal Instagram: https://www.instagram.com/frankiecaputocomedy/
    Want to be a guest? https://form.jotform.com/222415937902154
    All Links https://linktr.ee/dancingeyespodcast
    Email: frankiecaputo@gmail.com
    Thank you for watching. I hope everyone enjoys!

    • 49 min
    Finding Love With Nystagmus | Becky’s Blurred Perspective | Dancing Eyes Podcast #24 - Becky

    Finding Love With Nystagmus | Becky’s Blurred Perspective | Dancing Eyes Podcast #24 - Becky

    In episode 24 of the Dancing Eyes Podcast, Becky, a university student in England and creator of Becky's Blurred Perspective, joins me to chat about her life with nystagmus as well as answer some questions that listeners have sent in. Some questions include "Is it hard to find love with nystagmus"? and "How were your eye movements when you were younger compared to now"?
    Becky's Blurred Perspective - https://beckysblurredperspective.co.uk/
    Instagram - https://www.instagram.com/beckys.blurred.perspective/
    TIMESTAMPS
    0:00 Intro/ American Nystagmus Network
    1:20 Episode begins/ Becky’s blog: Becky’s Blurred Perspective
    4:40 Being hyper aware of our eyes
    6:00 How did Becky become less insecure about her eyes?
    7:55 The impact that influencers with nystagmus have on us
    9:54 Becky’s friend who has nystagmus
    12:15 Becky’s vision acuity
    13:55 A nystagmus pet peeve
    16:30 Not wanting to disclose our nystagmus during a job search
    17:45 The stereotype that people with unordinary eyes lack intelligence 
    20:20 Becky’s thoughts on not being able to drive
    23:50 Where does Becky find fulfillment?
    25:00 Listener question #1 How are your eye movements now compared to when you were younger?
    29:45 Listener question #2 Is it hard to find love?
    40:10 Listener question #3 How do I discuss my child’s eyes in front of them?
    45:15 Becky’s advice for people who are struggling with nystagmus
    Dancing Eyes Podcast is brought to you by The American Nystagmus Network. The American Nystagmus Network works to improve the quality of life for all persons and families affected by nystagmus through organized community support, education, public awareness, and research. Visit them at https://nystagmus.org/new/
    Podcast Instagram: https://www.instagram.com/dancingeyespodcast/
    Personal Instagram: https://www.instagram.com/frankiecaputo22/
    Want to be a guest? https://form.jotform.com/222415937902154
    All Links https://linktr.ee/dancingeyespodcast
    Email: frankiecaputo@gmail.com
    NEW EPISODES ON THE FIRST AND THIRD MONDAY OF EVERY MONTH Thank you for watching.
    I hope everyone enjoys!

    • 46 min
    How Nystagmus Affects Personality | Psychologist With Nystagmus | Dancing Eyes Podcast #23 - Cameron

    How Nystagmus Affects Personality | Psychologist With Nystagmus | Dancing Eyes Podcast #23 - Cameron

    In episode 23 of the Dancing Eyes Podcast, Cameron joins me to talk about his work as a provisional psychologist and how nystagmus affects his job. We also discuss how living with nystagmus has an affect on our personalities and what we would do if we were given the option to to longer have the condition.
    TIMESTAMPS
    0:00 Intro/ American Nystagmus Network
    1:44 Episode begins/ Cameron talks about being able to relate to previous guests
    2:50 The nystagmus related content available online is not satisfying
    6:27 How do you mention your nystagmus to others/ Cameron’s organic way of bringing it up in conversation
    11:25 It is a relief when you meet someone who already knows what nystagmus is
    13:10 How does your nystagmus affect sessions with your therapy patients?
    15:42 What led Cameron to working in psychology?
    17:30 Has Cameron’s knowledge of psychology helped him cope with his eyes?
    18:55 When did nystagmus start playing a role in your life?
    22:00 Cameron’s experience with his inability to drive.
    26:50 Is the 20/20 system a bad way to measure our vision?
    31:35 If you could get rid of your nystagmus right now, would you?
    35:30 I love when I am in an environment in which sunglasses are necessary.
    37:00 People have thanked me for mentioning my nystagmus to them.
    39:10 How has nystagmus affected Cameron’s relationships with women?
    42:20 Making jokes about our eyes/ coping mechanisms when passing by people who we can’t see/ comedy talk
    54:40 Fun podcast idea
    56:50 Cameron’s supportive friend/ awkward visually impaired scenarios
    1:02:15 What is some advice for people living with nystagmus?
    What is some advice for parents of children with nystagmus?
    1:04:20 Closing words
    Dancing Eyes Podcast is brought to you by The American Nystagmus Network. The American Nystagmus Network works to improve the quality of life for all persons and families affected by nystagmus through organized community support, education, public awareness, and research. Visit them at https://nystagmus.org/new/
    Podcast Instagram: https://www.instagram.com/dancingeyespodcast/
    Personal Instagram: https://www.instagram.com/frankiecaputo22/
    Want to be a guest? https://form.jotform.com/222415937902154
    All Links https://linktr.ee/dancingeyespodcast
    Email: frankiecaputo@gmail.com
    NEW EPISODES ON THE FIRST AND THIRD MONDAY OF EVERY MONTH Thank you for watching.
    I hope everyone enjoys!

    • 1 tim. 5 min
    Vision Therapy, Changing the Color of Our Environment, Philosophy | Dancing Eyes Podcast #22 - Chris

    Vision Therapy, Changing the Color of Our Environment, Philosophy | Dancing Eyes Podcast #22 - Chris

    In episode 22 of the Dancing Eyes Podcast, Chris introduces me to a lot of interesting ideas including new philosophies, how changing the color of our environment can affect our eyes, and how nystagmus affects the way he thinks. He also explains to me some of the things that he has learned from vision therapy including how breathing can affect the movement of our eyes, the usage of prisms, and eye exercises.
    TIMESTAMPS
    0:00 Intro/ American Nystagmus Network
    1:40 Episode begins. 
    3:35 What gravitated you towards a degree in philosophy? Why do people treat us differently because of our eyes?
    5:15 How has nystagmus made you more of a thinker?
    7:35 Painting and mindful breathing helps Chris calm his eyes.
    9:00 Vision therapy as a way to treat nystagmus. Looking hard vs looking soft.
    13:45 Helping our eyes by adjusting the lighting in our environment.
    17:50 How can we get less self conscious about our eyes?
    20:55 Antifragility
    23:25 How is nystagmus an “Invisible disorder”? Getting a job with nystagmus.
    29:20 My experience with having lawyers on the podcast
    32:00 Nystagmus in comparison to other disorders.
    33:30 The benefit of laughing at ourselves.
    37:50 PARENTS listen to this.
    41:10 Chris was a Ukrainian dancer for 15 years. What kind of effects does dancing have on our eyes?
    44:50 Using prisms to treat double vision and nystagmus. More vision therapy talk.
    53:40 Syntonic light therapy
    57:50 Closing words
    Dancing Eyes Podcast is brought to you by The American Nystagmus Network. The American Nystagmus Network works to improve the quality of life for all persons and families affected by nystagmus through organized community support, education, public awareness, and research.
    Visit them at https://nystagmus.org/new/
    Podcast Instagram: https://www.instagram.com/dancingeyespodcast/
    Personal Instagram: https://www.instagram.com/frankiecaputo22/
    All Links https://linktr.ee/dancingeyespodcast
    Email: frankiecaputo@gmail.com
    NEW EPISODES ON THE FIRST AND THIRD MONDAY OF EVERY MONTH
    Thank you for watching. I hope everyone enjoys!

    • 1 tim. 3 min
    Walking the Length of New Zealand and Raising Money For Nystagmus | Dancing Eyes Podcast #21 - Mikey

    Walking the Length of New Zealand and Raising Money For Nystagmus | Dancing Eyes Podcast #21 - Mikey

    Through documenting his journeys walking the full length of New Zealand and cycling the border of Tasmania, Mikey has raised thousands of dollars for nystagmus research. In episode 21 of the Dancing Eyes Podcast, Mikey, the creator of Walk for Wiggly Eyes joins me to talk all about it.
    Walk For Wiggly Eyes Links
    Instagram - https://www.instagram.com/walk_for_wiggly_eyes/
    Youtube - https://www.youtube.com/channel/UC1SMD02-pbkHDUAtSrIzw4w/videos
    Facebook - https://www.facebook.com/watch/WalkforWigglyEyes/
    Dancing Eyes Podcast is brought to you by The American Nystagmus Network. The American Nystagmus Network works to improve the quality of life for all persons and families affected by nystagmus through organized community support, education, public awareness, and research. Visit them at https://nystagmus.org/new/
    Podcast Instagram: https://www.instagram.com/dancingeyespodcast/
    Personal Instagram: https://www.instagram.com/frankiecaputo22/
    All Links https://linktr.ee/dancingeyespodcast
    Email: frankiecaputo@gmail.com
    NEW EPISODES ON THE FIRST AND THIRD MONDAY OF EVERY MONTH Thank you for watching. I hope everyone enjoys!

    • 1 tim. 18 min
    Skateboarding With Nystagmus, Stand Up Comedy and Tattoos | Dancing Eyes Podcast #20 - Chad

    Skateboarding With Nystagmus, Stand Up Comedy and Tattoos | Dancing Eyes Podcast #20 - Chad

    Chad was born with Congenital Nystagmus and also happens to be a great skateboarder. In episode 20 of the Dancing Eyes Podcast, we discuss stand up comedy, tattoos, having a twin with nystagmus, Chad's experience with skateboarding and a lot more!
    Dancing Eyes Podcast is brought to you by The American Nystagmus Network. The American Nystagmus Network works to improve the quality of life for all persons and families affected by nystagmus through organized community support, education, public awareness, and research. Visit them at https://nystagmus.org/new/
    Chad's Instagram: https://www.instagram.com/chaddisfaction/
    Podcast Instagram: https://www.instagram.com/dancingeyespodcast/
    Personal Instagram: https://www.instagram.com/frankiecaputo22/
    All Links https://linktr.ee/dancingeyespodcast
    Email: frankiecaputo@gmail.com
    NEW EPISODES ON THE FIRST AND THIRD MONDAY OF EVERY MONTH Thank you for watching. I hope everyone enjoys!

    • 58 min

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